Can anyone please tell me what is the difference between Secondary FSGS and FSGS? I have secondary fsgs and have no clue.
Thank you,
River
Can anyone please tell me what is the difference between Secondary FSGS and FSGS? I have secondary fsgs and have no clue.
Thank you,
River
Here you go:
http://renux.dmed.ed.ac.uk/edren/EdRenINFObits/FSGSLong2.html
River, I would suggest asking your MD to explain it to you also. He/She might have a better idea of how you possibly got it (unless you already know).
How long have you had it?
River,
From what I have been tested for NUMEROUS times, is to actually find out if I have anything else that could cause the FSGS....then it would be considered secondary...i.e., hepatitis a-c, HIV, habitual NSAID usage (ibuprofen, etc.) autoimmune problems (Lupus), and so on. Since I was negative for all possibilites of another illness, I was then diagnosed with primary FSGS.
So basically, you have another disease/ disorder that has caused your FSGS. Just ask your doc what the FSGS is secondary to.
Thank you all for your replys, MamaG your link really helped and we did go monday to meet up with the nurse that goes over the computer slide show about my options of Dialysis, transplant and doing nothing. I will be having one of those fistulas done to me soon so it will have time to heal before I need dialysis. Being over weight makes the transplant not an option till I lose the weight and doing nothing isn't a option I want to travel. My fears are pretty much gone now, I have a much better understanding of what dialysis is all about... what a shock to find out when the kidneys fail i won't be peeing... i had no clue. I was told I'm stage 4 right now so I hope I can pull off another year or two before needing it. The only meds I'm on is a low dosage of bp med and hopefully won't need anything else cause we don't have medical insurance. I was told once on dialysis i will be getting medicare or something like that.
River
Hi River,
My nephrologist explained my 'secondary FSGS' to
my childhood history of CKD.
Here's part of what I found that might help you understand it better found from UNC KIDNEY CENTER .......
Doctors tend to put FSGS in two big categories, primary and secondary. Primary means that the disease occurs on its own, for no obvious reasons. Secondary means that we think the FSGS was caused by, or is at least associated with, another medical condition. How exactly the other condition caused the FSGS scarring has not been completely figured out for all diseases. Some of the secondary causes/associations are-
Congenital (from birth) kidney defects
Reflux Nephropathy (urine “backs up” into kidneys)
Obesity
Obstructive Sleep Apnea
Sickle Cell Anemia
Viruses (such as HIV)
Most people with the above conditions do not have FSGS, and having FSGS does NOT put you at risk for any of these conditions you do not already have. Although we don’t yet know if the disease is truly inherited, having family members with FSGS does increase your chances of developing it yourself. Also, the disease is twice as common in blacks than in whites.
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http://www.unckidneycenter.org/kidneyhealthlibrary/fsgs.html
This site has great photo examples of how good kidney tissue slide looks verses FSGS slides.
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I hope this info helps answer your question! Wishing you good heath and God bless!
Take care,
~ Gail ~
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