I've had FSGS for 10 years now and have never not spilt protein. I've been on prograf for 3 years now at 2mg 2x daily. My creatinine has consistanty been under 1.
I had a Dr appointment on tuesday and he wasn't happy with my bloodwork. He said that even though the prograf level in my blood was barely detectable, my BUN was elevated and my creatinine was elevated to 1. 65. He seemed concerned that this could be an indication to the beginning of slight kidney failure.
He raised my dosage of prograf to 4mg 2x a day along with 10 mg of prednisone to see if it will stop the progress. I guess my question is should a creatinine level of 1.65 be alarming after 10 years of it being .6-.9?
Any thoughts would be appreciated!





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