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hi just trying to get my head around things. Does anyone know if high levels of protien intake cause protien in urine to go up a bit while kids are nephrotic, I was just trying to docment stuff and trying to account for the the increase today when things were going well?
It sure does, that is why a low to moderate protein diet is recommended when you have ANY kidney disease since the filters are not working properly and protein puts extra stress on the kidneys.
Really... So if my son wants meat (he loves his meat and eggs) I should limit his intake... Always?... Or when he is relapsing?... Isn't this something the Neph should tell u? So does reading on the albustixs come higher? Well it's good to know thank u for your responses.
I found out I had FSGS in January 208. I was fortunate, I didn't have to take steriods or other heavy meds. I was placed on Lisinopril and I changed my diet. Cut my sodium intake significantly and lowered my protein consumption. It was hard because I put salt on everything and I was a big meat eater. But I think these changes helped me. I'm spilling virtually no protein, less than half a gram and my other numbers are great. Bottom line, protein stresses the body. FSGS people shouldn't eat eggs, period. The kidneys have to work too hard to process that much protein at one time. If you really crave an egg, buy the egg whites.
I would say the steroids given to most folks with FSGS is more taxing for the kidneys to flush out, especially the high doses of 60mg-80mg Predn. A glass off Milk now and again in moderation, or in tea or coffee.
There's now at last other drugs like cellcept and a few others, however if you feel steroids are working for you great.. I just wish I never started them.
I wish everyone well, however if you have the conviction to stay away from milk, cool.
I dont know what your doctors told you but I asked her nephrologist this exact question due to I am a lapband patient so our family eats a high protien diet. He said it was the best thing for her due to she is losing protein in her urine. So we now do at least one protein shake a day and eat meats and veggies as much as we can.
She seems to be doing a lil better yet we have hair loss that is distubing for a 16 year old. We battle with taking meds daily but I think its just learning to accept the diesease
Our neph does not limit protein intake- that is one of those "depends on the neph" things- some nephs put patients on low-protein diets all of the time, ours does not, and I can assure you, over the 12yrs of being in and out of remission, during the three yrs of continuous remission on prograf/cellcept, Garrett ate lots of protein, he drinks lots of milk and loves a good filet! For years, if he had not had his whole milk, the feeding tube would have been right back in his stomach. I think this is one of those crazy things that is different with every patient, like most of the things with this disease!!
our neph told us to avoid eating beef...contrary to what they that if their spilling the protein then let them eat high protein foods but the truth is, it makes the kidney work more hard...
My doctor never told me about protein, just low sodium when spilling.
The only thing my neph has ever talked to me about regarding my diet, is limit sodium and water when im nephrotic. It sort of worries me now to hear that other people were told not to eat certain foods. I hope im not doing something wrong!
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