Proteins @ 1!!! Thanks to Tekturna!

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My proteins are at the lowest yet!!! In July they were 7.5 and now they are at 1 (goal is 0), my albumin is at 2.9 which is good (goal is 4). It was a huge jump, my Nephrologist was very happy and so am I.............I can't stop crying, which is annoying b/c I finally have really good news and am happy and hopeful. My husband says it's b/c I am finally letting my emotions out (damn, I am crying again!) plus I am due to get my period tomorrow so that could be it too.

I am down to 5mg of pred and over the next month will be alternating 5mg one day then 2.5 the next, then the month after 2.5 a day and the month after that 2.5 every other day.

I think it was the tekturna that was the real turning point for me, I am glad that I decided try it again.

Also, my Aunt told me to think positively about my kidney's working and I kept on trying to think about those tiny little foot processes unfuseing and healing. I wasn't too sure about it at first but am going to keep on doing that!!!

I am not out of the woods yet, I am trying to be hopeful but cautious. I am scared to be too optimistic.

It's been one whole year. Thanks everyone for your caring and support (ok crying again, gotta go!)


The steriods never did much for me, so for anyone w/MCD not going into remission, talk to your Neph about Tekturna!

13 replies

I am so happy for you, god is with you.

YOU GO GIRL!!!!!!

EVAG

Which test is the protein one? I don't see the word "protein" on the lab report.

thanks, '
River

Oh Beth I'm so happy for you! I only cry when there's good news too, so I know how that can throw off everyone around you.

Hopeful but cautious is a good place to be. Now's not the time to eat a jumbo movie popcorn by yourself or stop taking meds. It is, however, the time to treat yourself to something that will remind you it's okay to start dreaming again!

River==protein might be listed as "albumin"

congrats hon!!!!

thanks everyone for your support, please keep your fingers crossed it was not a fluke.

River - I am not sure which it is on the lab report, I will try to find a copy and see what it is called.

Congratulations!

I'm so happy for you!

I am happy for you, Beth.
but can't see why Tecturna, which is a blood pressure lowering drug, would have an effect on our kidney function.
In the meantime Steven is doing worse after being put on cyclosporine: his Gfr is 25 and creatinine 245.
Seeing the nephrologist on Tuesday.
Amelie

Beth:

Very - very - very good news. Leaking at 1 is my sort of normal state of remission. When I get off prednisone completely and past the few weeks of the blahs, then I really know (by comparison) what an altered state I was because of steroids, what a real night's sleep is like. I am very happy for you.

Oh! Negative on the celiac biopsy but I have gone back to gluten free and am so much better.

John

John that is great that the celiac biopsy was negative and good that the gluten free diet is helping, it's awful what we put in our bodies (I say this as I am eating a buffalo chicken salad....well there is green stuff in it!)
Glad you can sleep again, pred makes me tired, don't know why??

Amelie, my understanding is that the pred reduces the inflammation so that our kidneys can get better but it is the bp medicine that helps the rest of it along.........could be wrong, but that is what I think.

I started Tekturna a month ago... I have had some gastric issues since beginning it. Did this happen to anyone else. Oh course its working great, but my stomach is a mess! But I am apparently now allergic to ACE inhibitors, after 6 years on them!! Very weird. I am so glad to hear someone was doing well on Tekturna, I was about to give up!!!

Hey KB,

Sorry to hear that you can't take the other meds. I already have gastric problems (ulcerative colitis). Not sure what you have specifically?

I would recommend looking into probiotics, that may help with your stomach issues.

Hope the tekturna helps you!

Take care.
Beth

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