Our daughter Mackenzie died Tuesday, April 8th from a large blood clot that stopped her heart and lungs from working. The blessing is that she died instantly and we were with her so she wasn't alone.
My message to you is that since people with nephrotic syndrome are at a higher risk of blood clots to ask your doctor if you should be put on a medication to avoid them. Mackenzie was not very active because of all the edema so this also contributed to her increased risk.
Please be praying for our family to have strength to face the days ahead.
We miss you baby girl.
Love Momma and Daddy.
Thanks and good luck to everyone for good health.
Love, Shannon



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