Our little angel, Mackenzie, has gone to be with her Lord.

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Our daughter Mackenzie died Tuesday, April 8th from a large blood clot that stopped her heart and lungs from working. The blessing is that she died instantly and we were with her so she wasn't alone.
My message to you is that since people with nephrotic syndrome are at a higher risk of blood clots to ask your doctor if you should be put on a medication to avoid them. Mackenzie was not very active because of all the edema so this also contributed to her increased risk.
Please be praying for our family to have strength to face the days ahead.
We miss you baby girl.
Love Momma and Daddy.
Thanks and good luck to everyone for good health.
Love, Shannon

40 replies

My prayers are with you and your family. God bless Mackenzie.

Linda

Dear Shannon,

I am very very sorry to hear that. It is not right! what age was Mackenzie? Nothing i can say will bring her back or make you feel better but you are in my thoughts and prayers. A terrible tragedy for you all.
kevin
Ireland.

Mackenzie was three years old.
Thank you for your thoughts and prayers.

3 years of age, my god! It does not seem right! sorry hard to be positive about it...... In Ireland they say God brings home the angels first...... maybe it is true, but I am sure it does not hurt any less.

My daughter Caoimhe is 4 with NS, could not even begin to imagine what you are going through...
kevin
Ireland.

I am sorry for your loss. Thank you for telling us about it. The more information we have the better to deal with this disease.
Thank you.

my heart goes out to you and your family. I am terribly sorry for your loss.

Beth

hello
my thougts en prayers go out to you and your family
a lot of love
sabrina

In time and when you are ready, i would recommend the lady below. Elizabeth Kubler Ross is someone who may help in the dark days ahead. She devoted her life to the study of dying and death and has a lot of good things to say. She is studied in every medical school throughout the world. http://www.elisabethkublerross.com her most famous books are "On death and dying" and "on grief and grieving". some of her quotes are below..
"When we have passed the tests we are sent to Earth to learn, we are allowed to graduate". "We are allowed to shed our body, which imprisons our souls" they are a bit hard to take when it comes to the death of a child of 3 but i hope there is some consolation in them. …
I have read these books and gained a lot of comfort, i hope you find the same.
kevin,
ireland.

Your family is in our thoughts and prayers. God Bless.
A

I am so sorry for the loss of your little girl. I will pray for her peace and your strength!

I am VERY sorry to hear about your loss. I can't put into words how it must feel to lose your little angel way too soon!!! God works in mysterious ways and apparently he needed McKenzie for something really special in heaven. My prayers are with you and your family!!!

I am so completely sorry. I am wishing you all my love and strength in this hard time.

My heart goes out to you and your family for the loss of Mackenzie. My thoughts and prayers are with you.
God Bless you all.

My thoughts and prayers are with u and your family, I feel that right now Jesus is cuddling Mackenzie in his arms, holding her close she is free from NS now and in a safe place waiting for the day Jesus opens up his arms and lets her run into yours when he calls upon you. God bless you, and McKenzie. I know that the time we came close to losing James it was unbearable, but i pray for God to give u the strength to cope without her. My love to you all xxxx

"Even Though You Are Gone"
http://www.angelis-music.com/ click on audio, top left, and select song 6 sung by 6 children from England. beautiful.

Words, Words are not enough
For me to say how much I miss you
You, flew away too soon
I feel so alone not with you

Chorus:
But when I close my eyes
Every night
I hear your voice like an angel
And you're here again by my side
I swear I hear your words
They sing through me
And I'm back where I belong
You are here even though you are gone

Verse 2:
You're here, everywhere I go
Deep inside my heart forever
And one, one sweet day I know
We will be back together

Chorus:
But until we are, here in the dark
I hear your voice like an angel
And you're here again by my side
I swear I hear your words
They sing through me
And I'm back where I belong
You are here even though you are gone
And I know that inside you'll live on

I hear your voice like an angel
And you're here with me by my side
I swear i hear your words
They sing through me
And I'm back where I belong
You are here even though you are gone
And I know that inside you'll live on

I'm sorry to hear that. I would feel horrible if that was one me mine. I can't even say I know what you mean. We'll pray for you guys.

You and your family will be in my thoughts and prayers during this sad time. I know that sometimes it is just so hard to understand the plan God has. I hope that you find peace in knowing that she is in heaven and you will see her again someday.

"The Lord will cover you with His feathers, and under His wings you will find refuge. His faithful promises are your armor. " Psalm 91:4

My sympathies to your family. I pray that God will mend your broken hearts. When I have been fearful of this illness, I have come to the conclusion that my child might die. But then I think, that's not so bad because she will get to heaven to be with Jesus. Then the fear melts away and I simply try to make the best of today. The blood pressure pills and low salt diet help prevent blood clots but there are no guarantees. I am so glad you both were with her that day. God Bless You

I am so deeply sorry for your loss. Your little angel is certainly more comfortable now and I will pray for your and your family's healing. My prayers are with you all.

I'm so sorry for your loss! You and your family will be in my prayers. Karen.

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