~Hi! My name is Jenny and I have a 6 year old son who was diagnosed with MCNS last November. He was wheened off the pred. and was in remission for 3 weeks... He had a relapse and we are currently in the process of wheening him again and praying for a longer remission this time around!
~This has inspired me, along with family and friends to do a fundraiser for the NephCure Foundation to help try and find a cure for NS and FSGS. I recently have met a young man from the UK who has FSGS. He wanted to write my son a letter and he also wrote a separate letter for the night of our fundraiser that he would like us to read. Basically his "Story" and a thank you to everyone attending on our side to fight NS and FSGS. To make a long story short, there are others in our area that are doing the same. I have about 6-8 letters I am expecting. We would like to have them on display the night of our fundraiser for others to read. No 2 people are the same when it comes to this disease!
~My question to everyone here... Would any of you be willing to do the same? Write a letter to my son and write a separate letter of your/or your son or daughters "Story" we would be able to share? We feel that this would be a nice little display to share at our fundraiser. If interested, please contact me via email: bearhugznkisses@yahoo.com Thank you!!!
~I wasn't going to post this on here, but after reading about Mackenzie who recently passed away, really touched my heart! Broke my heart... Our main purpose for this fundraiser is to get AWARENESS out about it! We have suceeded at that! What we thought was going to be a small fundraiser, is turning out to be HUGE! I am even more determined... for Mackenzie! We need to find a cure!!! Please help us get awareness out for our fundraiser!!!
~jen~
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