0 Recommendations
Hi, we have a new problem,
laylas cyclosporin levels are lower than we want, but her dose is at its highest.it has dropped quite dramatically in one week.
How and why ??????
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Low cyclosporin levels
- By laylasimone
- Posted October 16, 2009 at 4:26 pm · 4 replies
- In Children with FSGS
- Shared with the public
Explore topics in this discussion:
4 replies
- Oldest first
- Newest first
- By lriso
- Posted October 17, 2009 at 2:40 pm
- Report post
Some say that cyclosporine blood levels are erratic. They may fluctuate widely even at the same dosage.
- By kjjohns91
- Posted October 18, 2009 at 8:31 pm
- Report post
Our experience with cyclosporin is this: Our daughters levels varied greatly until we changed her dosage times to every eight hours. It wasn't fun, but we gave her a dose at 8 a.m. and 4 p.m. and then at midnight. After we did this, we never had a problem maintaining the proper trough level once we hit it.
Hope this helps.
kjjohns91
- By Kristie13
- Posted October 21, 2009 at 9:25 pm
- Report post
Have you been taking her in for the trough before her dose is due?? For example, if she takes it every 12 hours, say at 8 and 8, do you take her for blood work before her morning 8am dose? If so, not sure why the levels would fluctuate so much???
- By laylasimone
- Posted October 22, 2009 at 3:54 am
- Report post
Hi, yes we have been going for her bloods before the dose is due. We are seeing our neph on monday, so i will ask why this has happened. I did read online that red wine can dramatically reduce the cyc leveles and she did have "spag bowl" for dinner with a small amout of red in, but I do find it hard to beleive that this has effected the level so much.
Events and resources
Add to the discussion