Just diagnosed with MCD

Carly83
0 Recommendations

Hello,

I was recently diagnosed with MCD with nephrosis/NS confirmed by biopsy.

I also have other medical problems - type 1 diabetes, asthma and fat malabsorption (my pancreas doesn't make the enzymes to digest fat).

Bit scared about starting the steroids for MCD b/c I already have type 1 diabetes... so next few months should be fun... NOT! My kidney function is SLIGHTLY decreased too. Also was wondering how many others with MCD have immunoglobulin deposits? I have IgM, C3 and C1qmessangial and glomeruli deposits (no IgA or IgG though). I saw the kidney specialist on Thursday but I am just wondering if that would affect my response to treatment of not?

1 reply

CAgirl
  • By CAgirl
  • Posted November 16, 2008 at 9:02 am

Hi.

I was also just Dx'd with MCD with IgM deposits, also called IgM Nephropathy. It took them 8 months to figure it out since I was pregnant and they thought the proteinuria had something to do with the pregnancy.

I was also completely freaked out to go on steroids (even though I don't even have other illnesses). My Dr. said the IgM deposits mean it might be harder to respond well to steroids. The thought of all the bad side effects of Prednisone, and then being non-responsive or resistant or dependent! I think it's maybe a 50/50 chance they will work. But I've seen places where they say 70% do well on steroids, and other studies say it's as low as 20%.

However, since we waited so long to figure me out, it's finally starting to slowly go into spontaneous remission. I just took the pee test today and I've gone from an 8 to a 1.8 in the creatinine ratio department. I'm meeting with the doctor Wed. to see where we can go from here. So I don't know if you've started treatment already, but I just wanted to point out that maybe it will go away on it's own this time.

Good luck!

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