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Hi to all,
Who has tried homeopathics with a child with nephrotic synrome. Who can tell me what kind of medication the homeopathic advisor has given you or your child to regulate what? What kind of problems did the homeopathic notice in the body?
Marieke V
High cholesterol Cancer Nephrotic syndrome Allergies Proteinuria Glaucoma Minimal change disease Dialysis Hypertension Cytoxan Prednisone Acupuncture Stress
Hi there,
I have tried several non-allopathic forms of treatment in the past, mainly out of desperation. Ayurvada,, rolfing, macrobiotics, Chi healing and some obscure form of homeopathy/chiropracty hybrid, NONE of which worked or even helped. The only regimen that has ever helped has been a strict renal diet and 100% compliance to prescribed medication. I can't stress enough, stick to the diet and medication prescribed by your doctor, it's the best chance we've got to prolong the health of our kidneys. Now that I am at 0% function, I wonder whether I'd be here if I had stuck with a strict renal diet and just ignored the snake oil. Sorry if I sound cynical, but the several thousand dollars I spent chasing these charlatans could have been put to better use saving for my kids future.
Amen, thats how we feel about all the homeopatic
treatment. Stay with your nephrologists; they have the most experience and the most specialized knowledge.
Amelie
That sounds good to say all alternative meds do not work but it is not true. I have had NS for 23 years and my transplant came at age 17 and things went well for 20 years but the NS came back and is attacking the transplanted kidney now. Doctors seem to be happy to just manage the disease but I am not and have looked at alternative medications one I took is thru www.goutwell.com and did help along with diet at bringing down my protien levels but not enough to make a difference in my book. I found another that I am taking now called Neph tabs it is a 3 month regiement that is suppose to heal the disease (I will let everyone know).
The big thing I found that made a difference is the foods I eat I have gotten away from the great steroid meats and by only natural and organic foods as well as some organic vitamins. Becarful if you start on any vitamin regiment not to take to much because even to much of a good thing can be bad. Some good websites www.mercola.com and www.vitacoast.com.
Sorry to hear about the recurrent NS, I hope the new tabs work out for you. I just wanted to reply to your statement about alternative medicines... what I said was that none of the alternatives I listed worked for me.
I wanted to let everyone know that Acupuncture and Chinese herbs have helped me tremendously. I was diagnosised with FSGS two years ago and my creatine levels on certain hypertension meds had climbed to 4.2. With chinese herbs this trend reverses for the past two years I had stable creatine levels in the 2.5/3.0 range. Prior to the herbs I was getting flu/colds frequently had developed and allergy to my cat. With regular treatments and drinking the tea made from a raw herbal formula my immune system has been normal for two years and I have not been allergic to my cat (who has been with me for 10 years and I was never allergic before - it got so bad I thought I might need to find another home for her). Chinese medicine is thousands of years old and knows far more about health than "modern" medicine. I reccomend finding a practitioner who can prescribe a raw herbal formula you make into a tea - it will taste terrbile but trust me it is worth it!! and who can give you acupuncture treatments. It has helped me maintain my kidney functioning for two years.
I understand, just like with any medication it works for some but not others. Treatments need to be based on the individual not the whole group as they are finding with cancer treatments now.
Re: "organic edibles" don't forget that arsenic is also organic!
I think it is only natural to seek help from non-western style alternatives. I know I have, but to no avail. I took albumoheel (a German product to control proteinuria and Emu Oil for inflammation) for over two years before I figured I was wasting my money. I also tried acupuncture for a few months. There are a couple of suggestions I would make:
1. Get a complete list of all ingredients in these remedies and have your neph check for any that may be toxic to the kidneys. Always check for viable clinical trials. How reliable are the testimonials on the sites?
2. If your neph gives you the OK always take in addition to prescribed meds ... never as a replacement.
3. Follow your renal diet.
4. Keep faith and remain as positive as possible throughout.
Any form of nephrotic syndrome is hard to treat because even our nephrologists cannot predict which of their patients will go into remission. There are even disagreements on what the definition of remission is. My neph has never mentioned the word remission to me even although I have been stable for a year.
I think it is only natural to seek help from non-western style alternatives. I know I have, but to no avail. I took albumoheel (a German product to control proteinuria and Emu Oil for inflammation) for over two years before I figured I was wasting my money. I also tried acupuncture for a few months. There are a couple of suggestions I would make:
1. Get a complete list of all ingredients in these remedies and have your neph check for any that may be toxic to the kidneys. Always check for viable clinical trials. How reliable are the testimonials on the sites?
2. If your neph gives you the OK always take in addition to prescribed meds ... never as a replacement.
3. Follow your renal diet.
4. Keep faith and remain as positive as possible throughout.
Any form of nephrotic syndrome is hard to treat because even our nephrologists cannot predict which of their patients will go into remission. There are even disagreements on what the definition of remission is. My neph has never mentioned the word remission to me even although I have been stable for a year.
I also have a cousin in India, whose daughter had MCNS. She was 10 when she had her first episode and was on pred for 2 years. After 2 years, she went to homepathic treatments (and never used prednisone again). The homepathy seemed to have worked well for her. She is now 18 - I understand the homeopathic medicine took long time to work for her.
My son has steroid-dependent MCNS for the past 2+ years. We are in Indiana (USA) and have talked to a homepathic / naturopathic doctor here. We went with one who trained in Canada (where homeopathic docs are licensed just like allopathic docs are).
We have also explored ayurvedic medicines. They seemed to have helped a number of people.
We are trying some of these alternate meds (in addition to prednisone and other meds - NOT in lieu of). Will keep you posted if we see some progress.
I´ve 30 years of NS and Homeophatic treatments never worked with me. I tried for almost 2 years.
We go to a homeopath monthly for or daughter who was diagnosed in April 2008 with probable MCNS. Knowing the harm (and help) that western medicine causes I feel like I need to try alternative meds as well. I think most homeopaths in the US are also MDs? Ours is so he has a complete understanding of her western meds and agrees that we should always continue with both homeopathic remedies as well as western meds. Right now our daughter is doing well but I am sure it is bc of the cytoxan she is finishing up. I will let you know how she does after finishing the cytoxan.
Yes it is, but only someone with a death wish will take it. The point is there are certified organic products out there that can be better for you then the pharmaceutical counter parts, that can have very adverse side effects.
Like I said in my previous post to much of anything organic or other wise or mixed with the wrong thing can be harmful.
My advice is to NOT use any types of alternative treatments in homeopathy that involve using "medications" that are not approved by the FDA. Many people do not know that these types of treatments can actually worsen the kidney condition and progress it. This is because many of the homeopathy used can be nephrotoxic (toxic to the kidneys). Trust me, I wanted to try it so bad because I wanted to do something new but all I learned was this info, and I learned it from many resources, not just one.
Chinese herbs especially are nephrotoxic and have been known to do so. My neph said absolutely to not take them because he didnt want my kidneys to worsen.
best wishes to all and happy holidays
This is definitely a hot topic. My dd was diagnoses with FSGS in 2002. She was non-responsive to the Mendoza protocol. We looked at many things along with medications, including homeopathics, herbs, and massage therapy. I wrote in a similar question to NephKids with absolutely no response from anyone. I figured no one else was considering alternatives. We did find some things to be helpful, and she went into remission for a short time. But the FSGS was so agressive, she had a transplant in 2004. (Long story short)
One product we found to be very helpful is called Moducare. It is a plant sterolin that helps balance the immune system. Now, post transplant this cannot be used. Our dd took it before she was on dialysis and we think it did help post-pone complete kidney failure. I spoke extensively with an RN at the company (in Canada) about using this with our dd. We know a girl in TN who has Minimal Change disease. She uses the Moducare and has been in remission for 5 years. It can be found at Vitamin Shoppe (best price).
Now with that said, as with any alternative products, always discuss them with your doctor. There are many things that can counter act the meds that are working. The Moducare doensn't interfere with pred.
Another thing we found to be helpful is a concentrated oregano supplement (ADP by Biotics Research only available from a practitioner) which is a natural antibiotic. Now, early on post-transplant, our dd had many problems with infections. We got tired of her being in the hospital getting IV antibiotics. Her docs agreed to allow us to try it. She has not been in the hospital since for any kind of infection (over 2 years). She takes this once daily along with all the meds and is doing very well.
I know how frustrating all of this is. There is much to consider. I will pray for you and that you will find what works for your body.
This is a really interesting topic to me. My son has NS and has had homeopathic treatment in the past. Today he started a course of cyclosporin combined with his high dose steroids after we ended up in hosptial yesterday with him getting his first albumin infusion.
We started homeopathy when he was 4 mths old for his excema. I took the drops which past to him through my breastmilk. We continued for about 5 or so mths until he was around 10mths old as he was then diagnosed with food and envinromental allergies - at which point we stopped treatment. He was then diagnosed with NS at age 2.
He was on was on Arsenicum alb, Argentum nit, Viola tricolor, hepar sulph and calc carb. I've since read that arensicum can be toxic in high doses and even though the dose wasn't high, perhaps it was just too high for a baby or even just for his particular consitution. I wonder now if I kicked started his NS by treating him homeopathically. It's a guilt I feel very often.
For this reason, I would NEVER use homeopathy again. Just my little story.
Sound like homeopathic is not good for this syndrome .
Eat Correctly !!! It works - we let our son's diet slip a bit over christmas - and guess what - he relapsed.
Can you please send me the contact details of doctor ?
I think we need to open minded to ALL options, and find what works best for you. There are many paths to wellness, all are viable, and success stories from both the Western & Eastern sides. So we cannot rule anything out--especially when nothing appears to work, and or doctors have no answers for us, or worse do not seem to care. We hear this all too often.
But first and foremost it has to start as, Linda H. mentioned with "diet." Watch what you eat, and make sure that the foods you are eating are not the cause. So she is partially right. =) We had great success with Eastern medicine, and they were the only ones that spoke about diet. Our Western doctor said we could eat anything we wanted. He was wrong. If we listened to our Neph, I am literally scared to death of where our daughter would be today.
I will also tell you that it will start with the daily log, and to monitor, document, read up, and to do your own science....but this seems to be like beating a dead horse here. Most of you know where I am coming from by now. I only trusted what the science and our own research told us. =)
But there is ONLY one reason why we pursue homeopathic treatments. This is because all the Western meds are double edge swords, and do as much harm to the body as they do good. So yes we may get into remission, but our bones are breaking, joints sore and swollen, our eyes are full of glaucoma, weight gain, mood swings, high cholesterol & blood pressure, weight distribution that turns us into monsters; and worse, the underlying fear of cancer. There needs to be something better, and medicine that thinks outside of the box, treats the whole body, and is not out to put dollars into the pockets of the drug companies. So until this happens, we all will look to alternatives.
We have no other choice.
I would like to add something. Although homeopathic medicine does not seem to work for the actual Nephrotic syndrome (and this is general, as maybe some people have had luck with it), it does work to help strengthen the immune system and hopefully stop the irritating colds, etc that bring on relapses. This must still be done in conjunction with prescribed meds and only after checking with the nephrologist that there is no interferance with each other.
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