Headed For Dialysis

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Hello Everyone,

Yesterday was my monthly visit to the Neph and no good news at all. I have been feeling sick for way to long and just this past month things just got worse. I'm really tired of feeling sick all of the time. I'm tired of meds, I'm tired of being fatigue, I'm just really tired of all of this. And it seems as if there is no end in sight.

My neph told me yesterday that he has scheduled me for a visit with another doc next week to begin preparation for the peri-something dialysis. I can't keep up with all of these different terms that simply just tell you that your kidneys are messed up. By the end of next week I should be having surgery, YEAH!! Just another step closer to ??? Bad news is that my kidney function is down to 8%, and there is a good possibility that this procedure will not work for me and that I may have to have emergency surgery if it does not. Things just keep getting better. On top of all, I have to keep going to work feeling like puking all of the time.

We have such a great system here in Florida where you have to be on dialysis for 3 months, before they actually believe that you are on dialysis. Then maybe they will begin to cover the cost, hopefully. HAHA! I just made myself laugh.

Anyway, I just felt like venting. I'm very frustrated and just don't like my options. "For a New Kidney, Please Press One!" I'm sorry, all circuits are busy, please try again later.

2 replies

i so understand your frustration! Let me give you a quick back story on me. I was diagnosed in 92 at age 12, I had a living donor transplant in 98 and the FSGS came right back. I tried plasmapheresis and every drug out there at the time with no help. Within a few years of transplant I had to give in and finally start dialysis. I started with in center treatments then switched to peritoneal dialysis. I didnt like that - felt bloated all the time so I went back to in center dialysis. The past few year I was lucky enough to be in the nextstage program where I am now able to do dialysis at home, on my own schedule and I feel better then I have ever felt. If you have any questions or advice please feel free to ask anytime.

good luck my friend I hope it all goes quickly and painlessly.

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