Has Cellcept helped anyone?

• By linda717
• Posted July 16, 2008 at 8:31 am

Very gradual, I started with cellcept in 2007, my protein was over 8000, now I am at 2300, but I also take prograf and my neph thinks this is what's making the difference. I was on 3000 of cellcept, now at 500 and next visit hopefully off. (it doesn't agree with me, it's like irritable bowel everyday!)
Good Luck

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• By rfcnj68
• Posted July 16, 2008 at 9:50 am

I had my transplant 23 years ago abd was on immuran for 21 of those years I have been on Celcept for about 2 years for rejectection purposes there has been some improvement but not a lot. I am geeting ready to try a 3 month course of Nephrotab to see if this helps my transplanted kidney which is now infected with Nephrotic Syndrome. I figure I have nothing to loose and everything to gain.

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• By Mika
• Posted July 16, 2008 at 10:15 am

My son is doing very well on Cellcept. When he first got sick and diagnosed with FSGS he did not respond to anything. At that time Cellcept did not make any difference but was tried only for a very short time because my son was so sick that they could not wait for long to see if a med will work. He was given Rituximab and went into remission for six months but as soon as his B cells returned he relapsed again. He was given Rituximab again but a smaller dose and that put him in remission again. The doctor decided to start him on Cellcept in hopes that it will keep him in remission after the Rituximab wears out. His B cells started returning in April and he is still in remission. Now his B cells are back in normal numbers and since he is in remission his doctor believes that it is Cellcept that is keeping him this way. My son does not have much side affects from Cellcept, at first he had stomach problems but they lowered his dose a bit and that has improved. So I think that if you are doing better on Cellcept then Rituximab would probably put you in remission and you can maintain it with the Cellcept, but then again who knows, I'm no doctor and it did work for my son but I know different things work, or don't work for different people. Good luck.

Mika

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• By fsgsblahs
• Posted July 16, 2008 at 1:21 pm

I am about to start Cellcept (1000mg daily) and 10mg of predinisone. I am not excited about the steroid, but agreed to try it. I have never had 'nephrotic range' proteinuria...have stayed at ~1.6g since diagnosis. They said that they are doing this treatment in order to try and save what kidney function I have left...GFR 26, by stopping any scarring that may start. I am not sure if that will help or not....we will see. They did say that I will be on this for years. I am not sure it is worth that or not, since I will be on dialysis anyway.

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• By mamagemini
• Posted July 16, 2008 at 10:33 pm

If it works then its worth it!
Big hugs to you and all the luck!

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• By hope4health
• Posted July 17, 2008 at 1:20 pm

Thanks everyone for your responses and sharing your experiences!

All the best...

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