going to see Neph today

• By Aweson-son
• Posted July 14, 2008 at 6:17 pm

Hope it went well. Every time I go they tell me they are not sure..... I am getting a new one very soon.

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• By mamagemini
• Posted July 14, 2008 at 6:42 pm

Good luck!

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• By linda717
• Posted July 14, 2008 at 7:05 pm

Good Luck, my prayers are with you, but remember sometimes it takes longer than we want. Don't get discouraged!!

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• By sk1
• Posted July 14, 2008 at 10:13 pm

Good luck Beth!!! Hope you get some good news. Great your hubby is going w/you. Let us know if he understands everything or if he is just as baffled as we are???

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• By jlinsanjose
• Posted July 15, 2008 at 3:30 am

I'm curious...how Tekturna is different from other hypertension drugs? Are you also on other meds to prevent protein leakage? I hope you receive good news.

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• By Beth75
• Posted July 15, 2008 at 12:38 pm

thanks everyone for your support, it means a lot to me!

My proteins went up from 2.6 to 7.5 and albumin from 3 down to 2.5. My Neph and I both think it is from taking me off of Tekturna and putting me on Enalapril. I just started the Tekturna again a few weeks before my labs (I stopped b/c ins. would not pay and then said what the heck, i'll pay I just want to get better, now Neph is writing a letter to my ins co. to get me approved), and he has another patient that proteins went up when they went off the Tekturna and went on Enalapril.

He upped my Tekturna from 150mg 1xday to 300mg 1xday and I have my next labs in 6 weeks and see him in 7 weeks. Can't wait for my summer to be over (how horrible is that?). If not responsive, will be going on Cellcept and off Imuran, not sure if Cellcept will help my colitis, I don't want that to flare (going for 2nd opinion) though Neph already talked to my GI prior to my appt (I really like my Neph) and they both "think" the Cellcept will help........will go for a 2nd and see what that Doc' thinks.

I am really going to try to be positive for the next 7 weeks and hope for the best.

Jilinjose - for MCD I take:
Simvastatin 20mg 1xday
Diovan 160mg 2xday
Tekturna 300mg 1xday
Prednisone - 30mg 1xday ~ tapering down to 5 again, had to up it b/c my UC was flaring.

I also take Imuran 200mg 1xday for my colitis + various other vitamins and Fosomax (b/c of pred).

What med's do you take?

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• By Beth75
• Posted July 15, 2008 at 12:43 pm

btw, hubby is as baffled as we all are, but less so than before, it was really good for me and him to go and he and the Dr. got on well, which was nice.

but most importantly he understands a lot more and I think he feels more connected/involved (if that makes sense). Plus it made me feel better to have him there.

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• By mamagemini
• Posted July 15, 2008 at 7:56 pm

beth have you checked into that post I put up for help with meds?

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• By linda717
• Posted July 16, 2008 at 8:43 am

Beth,
here's my rundown:
Cellcept
prograf
lipitor
atacand
prevacid
lasix
Fosamax
Vitamin D

That's great about your husband, mine is a great guy, but I think he just wants this over. DUH! I did hire a cleaning lady though, I told him I want to work, but I can't do what I used to. I LOVE my cleaning people!! And now I don't spend the weekends cleaning, I can rest! It's a struggle financially but if I had to quit work that would be worse.
Linda

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• By Beth75
• Posted July 16, 2008 at 11:10 am

Linda, we hired cleaning people too, it was too much for both of us, he works 6 days a week plus school 2 nights a week and side jobs and I am just so tired. We figured we both work and it is so worth it.

MamaG - I will look at the info, thank you very much!

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