Diets

Diets

By Mrs_M
Posted July 22, 2008 at 9:51 am · 3 replies
In Adults with FSGS

My husband has Advanced FSGS. We are not on a particular diet (we should be). We "try" and watch his sodium and protein intake and its so hard. I love Vegeterian type dishes, and I am a meat eater!

When we saw the dietician she told us to watch foods high in Sodium (stay below 140mg per serving - are you kidding me?), Protein and Potassium. Its almost impossible to watch all of those. I "try" not to buy anything with the Sodium is over 300 per serving, almost impossible (for me) to find anything under 200. We've tried giving up canned veggies and went to mostly fresh stuff.

Can anyone suggest a site with recipes?

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By fsgsblahs
Posted July 23, 2008 at 7:27 am

Before my mom had her transplant, she was on a very strict sodium diet of 1500 mg. per day, as well as a diabetic diet. It was extremely difficult for me to cook for her. The nutritionist told us that something is only considered "low sodium" if the label says it has less than 40mg per seving....not many of those! Keep in mind that "No-Salt" and other brands like that are pure postassium and DO NOT use them. I used a lot of the Mrs. Dash and pepper.

I have stage 4 CKD and now I have to be on a low sodium, potassium, protein, and phosphorus diet. The phosphorus is the hardest I have ever come by, as it is in almost everything. When people ask what CAN I eat, I laugh and say cauliflower and iced tea, as well as sweets...which I dislike. lol. I have lost over 30 lbs. because I am scared to eat anything and they don't really tell you what you CAN eat! I am doing much better on the salt part and actually find that I dislike salt anymore...even on potatoes! The other problem I have found, is that there are no cook books for renal diets, but there are some free online cookbooks....here are a few links, but you can always just Google "renal diet cookbooks" or resipes.

www.culinarykidneycooks.com/

http://www.patientsupport.net/renal-diet-cookbooks.htm

Here is a list of them all
http://www.kidney.org/professionals/CRN/cookbooks.cfm

Maybe we should start a discussion dedicated just to nurtition and recipes? There are also a lot of ideas on kidneyfun.net and ihatedialysis.com.

By fsgsblahs
Posted July 23, 2008 at 7:48 am

Here is a link to receive a free copy of Katie Joel's (Billy Joel's ex-wife) kidney freindly cookbook. Her dad had kidney disease, so she came up with this book. I have heard really goos things about this one!

http://www.fosrenol.com/Consumers/ExclusiveOffers/Default.aspx

By wilmamac
Posted July 23, 2008 at 7:42 pm

I use the www.davita.com website. I must have every recipe printed and in a binder. Go to the site and click on recipes and they are all there. Most have been submitted by nurses. Most of them are for dialysis patients but if your dietary restrictions aren't to bad you can try tweaking the recipes a bit to suit.

This is by far the hardest part of my husbands disease. We have 2 young boys who also have to eat healthy but it's hard not to get stuck into the way of cooking 2 different meals!

Good luck and I hope the site helps.

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