Biopsy Diagnosed FSGS Fount out a month ago

• By fsgsblahs
• Posted July 30, 2008 at 6:27 pm

My neutrophils are always high, but they are more of an infection or inflammation response blood cell, which would be accurate for FSGS and the inflammation of parts of the kidney. The doctors have never mentioned any concern with it, so I haven't worried about it either..after I did my own research :-).
Do you know what type/ variant of FSGS you have, or what your kidney function is?

My mom takes Amlodipine for secondary pulmonary hypertension, as well as other hypertension meds, and she does just fine on it.

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• By rferrerj
• Posted August 6, 2008 at 5:33 am

Hello, my name is Roberto and I can feel your pain. I was diagnosed with fsgs in October 2005. Back then, they put me on Norvasc (1x daily, don't remember the dosage) and 80mg of daily of Prednisone. The Prednisone for me did not work. It was a recipe for disaster By the time they realized that it was not going to work, it was a little too late. I went through 9 months of hell on that medication, only to find out that it does not work. It all depends on what stage you are in with your fsgs. But don't believe the hype. You are better off without the prednisone and controlling your weight on your own. The prednisone made me constantly hungry and damaged my joints in my elbows, and my right knee. Till this day, I still suffer those joint pains, and they tell me that it is a side effect that will go away. It has been over 1.5 years since I last took prednisone and I wish I would have gotten off of it sooner. Good luck too you and ask alot of questions. If you doctor can't answer them, look for someone who can. Not every neph doc is fluent with this disease.

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