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"HYPOKALEMIA OR LOW POTASSIUM"
- By mandyblue · New reply 10:38 pm
- Journal · 14 replies
- I want to share this research information in "My Journal". This is a very long collection of articles, that explains in great detail, about Hypokalemia or Low Potassium. It is for anyone who needs help ...
Aldosterone Blockade - Any Experience?
- By FTL · Posted 9:23 pm
- Discussion in Children with FSGS · 0 replies
- Hi. My son is 10 y/o with biopsy-proven FSGS since Nov 2008. He's been asymptomatic since September 2008. He is on Losartan+Lisinopril+Lovastatin - without any evident side-effects. Initially his urine ...
my daughter's face is so big is it really normal?
- By maloudevilla · New reply 8:00 pm
- Discussion in Children with nephrotic syndrome · 6 replies
- as i looked in the pictures of kids with NS, my daughter's face (u can look at my pictures to see her...) is much bigger and her face really change...i cant help but cry when i looked at her old pictures ...
a "cure" for FSGS?
- By DennisD · New reply 7:47 pm
- Journal · 10 replies
- Hi everyone - I was reading some of your posts and thought I would join to share some info you might be able to use. I am 59 and have been diagnosed with FSGS for a little over 5 years. The first year ...
Different sized Kidneys?
- By kalebsmommy · Posted 6:17 pm
- Discussion in Children with nephrotic syndrome · 0 replies
- HI, My son was just diagnosed with nephrotic syndrome after his kindergarten physical showed high protein. The neph had an ultrasound taken of his kidneys. Fairly soon after that, they referred us to ...
medical insurance help
- By kimikiwi1987 · New reply 4:32 pm
- Journal · 5 replies
- okay im 21 and im on welfare for my medical and if i work and make over 200 dollars a month they will take me off of my medical. so is there any medical insurance out there that doesnt cost an arm and ...
protein
- By Happyjack6 · New reply 1:57 pm
- Journal · 3 replies
- My output of protein has gone down from 22500---4000. I think the hi dose steriods is working. I have only had 7 doses total of 910mg. Prayers help. take care all ...
Cytoxan (cyclophosphamide) for MCD?
- By faith123 · New reply 1:33 pm
- Discussion in Children with nephrotic syndrome · 7 replies
- Hey everyone, Im Rachel and am 14 years old. In Febuary i was diagnosed with NS and it has been quite a difficult, stressful, scary journey since then. I have been on Prednisone for over five months now ...
complete faliure symptoms? Transplant canadate...Cadavir/living?
- By leigho · New reply 11:40 am
- Discussion in Adults with FSGS · 6 replies
- John's GFR is now at 15 and all his other lab work is looking bad. We were told to notify the neph if his symptoms get any worse. I was wondering what everyone that is or has been at this stage went through ...
retixmab
- By debmiller · New reply 9:35 am
- Journal · 28 replies
- Has anyone had any success with retixmab for stoping protein loss? Husband will get 2nd round of it on Tuesday. There does not seem to be alot of information about it ...
White lines in nails
- By 4myangel · New reply 1:00 am
- Discussion in Children with nephrotic syndrome · 7 replies
- I am freaking out! I have just noticed that our son (6 years old, diagnosed almost 2 yrs ago) has white lines across his nails!! Has anybody seen this?? Some places say renal disease, others say arsenic ...
fsgs and dialysis
- By solveis · New reply yesterday at 11:58 pm
- Discussion in Adults with FSGS · 2 replies
- my signifigant other is in need of a transplant he is stage 4 fsgs and his knidneys cannot keep up with his body. they are talking about inserting a tube in his kidnet that will be hooked up daily to ...
Questions about home dialysis
- By SmileGodLovesYou · New reply yesterday at 11:08 pm
- Discussion in Adults with FSGS · 2 replies
- My daughter may need dialysis. How long is the night portion of peritoneal dialysis if you use a night exchanger? Any thoughts on whether the night machine exchange is better than the exchange every 6 ...
protien in diet cause increased protien in urine??
- By roger923 · New reply yesterday at 10:20 pm
- Discussion in Children with nephrotic syndrome · 10 replies
- hi just trying to get my head around things. Does anyone know if high levels of protien intake cause protien in urine to go up a bit while kids are nephrotic, I was just trying to docment stuff and trying ...
I need some advice
- By Shermil · New reply yesterday at 2:32 pm
- Discussion in Children with nephrotic syndrome · 5 replies
- I have a bit of a dilemma and I'm not sure what to do about it. I was hoping to get some opinions. Let me start at the beginning and I'm sorry if I start to ramble. My 11 year old daughter was diagnosed ...
NephCure Walk in Nevada
- By cherigit · New reply yesterday at 2:24 pm
- Discussion in Fundraise for NephCure · 1 reply
- Hi All, I am looking for anyone here in Nevada, or California, who is interested in participating in a NephCure Walk and local support group. I live in Pahrump but am willing to meet in Las Vegas as well ...
A VERY confusing biopsy report... dx's ?? Help please!
- By Emmas_mom · New reply yesterday at 10:41 am
- Discussion in Children with nephrotic syndrome · 2 replies
- My daughter Emma is 4 and had a biopsy last November after months of spilling large protein and mild swelling. We've been trying to get a clear diagnosis ever since. Her biopsy IF showed IgA (3-4+), IgM(3 ...
Traveling to SLC, Utah this summer!!!
- By AmosB · New reply yesterday at 5:08 am
- Discussion in Children with FSGS · 3 replies
- Could you please help? Our family is traveling to see relatives in the SLC area and we would love the name of a pediatric nephrologist JUST in case we need it. It is best to be prepared… Thanks, AmosB ...
tingly and swelling HELP!
- By popsycle · New reply yesterday at 12:48 am
- Discussion in Adults with FSGS · 7 replies
- Hi, I am in stage 3 and was just switched to norvasc because my bp is high and my kidney function is worse. The last two days I have been tingly, starting in my arms and legs and now it's everywhre. I'm ...
Any adults with MCD since childhood?
- By SVenable · Posted July 1, 2009
- Discussion in Adults with nephrotic syndrome · 0 replies
- I had my first incidence of nephrotic syndrome (diagnosed through biopsy as MPGN) at age 2. I am now 25, and I've had numerous relapses through the years, all except one responsive to prednisone. The ...
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The NephSpace Support Community connects patients, families, friends and caregivers for support and inspiration. The NephSpace Support Community is sponsored by The NephCure Foundation in partnership with Inspire.