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Nephrotic Syndrome and cold weather
- By CarolNeph · New reply 11:15 am
- Discussion in Adults with nephrotic syndrome · 2 replies
- Hey Everyone, The first time I was diagnosed with nephrotic syndrome back in Dec. 2008 I remember having a severe cold right before it and I did not threat it with antibiotics. Well, my first relapsed ...
your valuable advice needed
- By ritsr · New reply 11:13 am
- Discussion in Adults with FSGS · 5 replies
- dear friends, hope you allare doing well. I am a 32 years old male, recently diagnosed with FSGS. My urine albumin is ++. however, blood creatinine and urea are within limits. 24 hours urine albumin is ...
nose bleeds
- By SherryManouar · New reply 10:37 am
- Journal · 2 replies
- Hi, Has anyone had nosebleeds from taking meds? I guess im assuming it has to with meds....Alex has membranous glomuralopathy....he is taking simvastin ,lisinopril,rantidine,he is weaning down on prednisone,fish ...
Hair loss/thinning and Prednisone
- By skimonger22 · New reply 8:59 am
- Discussion in Adults with nephrotic syndrome · 29 replies
- Any other women out there on pred experience any hair loss or thinning while on pred? If so, what dose are you at and for how long have you been on it? Any response would be greatly appreciated ...
February 7th, 2010
- By ChelseaChip09 · New reply 8:42 am
- Journal · 5 replies
- I haven't been posting lately, but I decided to share some things today! On friday, I ate Church's Chicken and I've been swollen alllll weekend. Not SUPER swollen, but swollen enough where other people ...
Rituximab for FSGS
- By JosephsMom · New reply 7:54 am
- Journal · 19 replies
- Has anyony used this for FSGS ...
ATTITUDE IS A LITTLE THING THAT GOES A LONG WAY
- By CarolNeph · New reply 6:32 am
- Journal · 11 replies
- The irony of life....Lately I've been thinking about it. Sometime I complain and can easily drown myself in a glass of wate. But it did not hit me until I watched the news 2 weeks ago and saw what happened ...
My first journal, entry number 3
- By MooseMom · New reply 12:17 am
- Journal · 17 replies
- I'm tired of looking at my pee. A bit over a year ago, I started looking at my pee because it got a bit foamy. It was right around the time my ankles swelled just a bit. I've got skinny little ankles ...
Chiropractor
- By juliomexicano · New reply 12:04 am
- Discussion in Adults with nephrotic syndrome · 4 replies
- I was wondering if anyone tried doing chiropractics to help with kidney functions. You may not know but the main trunk of the nervous system runs through the spine and then the nerves branch off off the ...
OK What came first the Chicken or the Egg...FSGS vs autoimmune something
- By MelissaShuford · New reply yesterday at 11:12 pm
- Discussion in Children with FSGS · 7 replies
- Emmy's short time with FSGS has not been a road less traveled...lots of opinions from multiple physicians...the ride on the roller coaster is never very short...we think we understand what to do...then ...
Feb. 8, 2010 - CT scan results and general update.
- By Mrkewl98 · Posted yesterday at 7:57 pm
- Journal · 0 replies
- The final test of all the "big tests" (CT), so my neph says, is a big negative. Another 6k down the tube (for literally 10 minutes of scans) but I guess at least we "ruled it out". I gota say though ...
Cellcept--help?
- By buffie · New reply yesterday at 4:55 pm
- Discussion in Adults with FSGS · 12 replies
- Hi! I am trying to find out how much success/how long it takes for cellcept to work for other people. I was deemed "steroid resistant" by my doctors, so I was just put on cellcept. 1500/mg a day. Plus ...
Levamisole
- By Kaif · New reply yesterday at 3:53 pm
- Discussion in Children with nephrotic syndrome · 11 replies
- My Son had NS since Feb2009 and had three relapse. Yesterday i visited my Ped.Nephrologist and advised me to start Levamisole 25mg alternate day along with prednisolone 10 Mg. Prednisolone need to reduce ...
My Lexie is back
- By Erin_B · New reply yesterday at 12:29 pm
- Journal · 2 replies
- I haven't been on this site for quite awhile. I think I just needed a break. While the discussions are informative, I was finding it really hard to cope. I don't think it's gotten any easier, I just found ...
lisonopril - remission?
- By Beth75 · New reply yesterday at 10:59 am
- Discussion in Adults with nephrotic syndrome · 6 replies
- Anyone go into remission w/lisonopril? If so, how long did it take? I've been on it for a month and doing ok I think but still no remission. I have MCD. My new doc also took me off cellcept a couple weeks ...
Primary FSGS or Secondary FSGS?????
- By lookonthebrightside · New reply yesterday at 8:13 am
- Discussion in Adults with FSGS · 18 replies
- So when i first found out i had fsgs i was told it was secondary due to hypertension.. now i had my brother in laws brother (whos a pathologist) look at my actual kidney biopsy slides let me know he believes ...
How Common Is Genetic Testing for FSGS?
- By SoaringHigh · Posted February 7, 2010
- Discussion in Children with FSGS · 0 replies
- Our son isn't responding to the usual meds. The neph. ordered genetic testing and we hope to hear back in about 2 more weeks. My husband and I don't have any history in our families of kidney problems ...
polymyalgia rheumatica
- By ayel · New reply February 7, 2010
- Journal · 17 replies
- I dont have fibromyalgia but do have polymyalgia rheumatica, along with giant cell arterits, I know fibro and poly are very similar. would be interesting to talk to others out there who suffer with either ...
My Personal Battle against Kidney Disease and Nephrotic Syndrome
- By ChristiL · New reply February 7, 2010
- Journal · 29 replies
- My Personal Battle against Kidney Disease… I hope my story can help you write yours... I'm not sure how to share my story/my illness with you. So, I guess I'll just jump in and hope you can follow. I ...
Membranous Nephropathy - my story
- By Domaldo · New reply February 6, 2010
- Discussion in Adults with nephrotic syndrome · 4 replies
- Hi everyone. I'm a 36 yr old man who has recently been diagnosed with Membranous Nephropathy and wanted to share my story with you all. In late Sept 09 I had a severe stomach bug that caused me to be ...
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The NephSpace Support Community connects patients, families, friends and caregivers for support and inspiration. The NephSpace Support Community is sponsored by The NephCure Foundation in partnership with Inspire.