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Chiropractor
- By juliomexicano · New reply 5:15 pm
- Discussion in Adults with nephrotic syndrome · 3 replies
- I was wondering if anyone tried doing chiropractics to help with kidney functions. You may not know but the main trunk of the nervous system runs through the spine and then the nerves branch off off the ...
Cellcept--help?
- By buffie · New reply 4:55 pm
- Discussion in Adults with FSGS · 12 replies
- Hi! I am trying to find out how much success/how long it takes for cellcept to work for other people. I was deemed "steroid resistant" by my doctors, so I was just put on cellcept. 1500/mg a day. Plus ...
My first journal, entry number 3
- By MooseMom · New reply 4:04 pm
- Journal · 16 replies
- I'm tired of looking at my pee. A bit over a year ago, I started looking at my pee because it got a bit foamy. It was right around the time my ankles swelled just a bit. I've got skinny little ankles ...
Levamisole
- By Kaif · New reply 3:53 pm
- Discussion in Children with nephrotic syndrome · 11 replies
- My Son had NS since Feb2009 and had three relapse. Yesterday i visited my Ped.Nephrologist and advised me to start Levamisole 25mg alternate day along with prednisolone 10 Mg. Prednisolone need to reduce ...
February 7th, 2010
- By ChelseaChip09 · New reply 3:12 pm
- Journal · 3 replies
- I haven't been posting lately, but I decided to share some things today! On friday, I ate Church's Chicken and I've been swollen alllll weekend. Not SUPER swollen, but swollen enough where other people ...
Nephrotic Syndrome and cold weather
- By CarolNeph · Posted 2:42 pm
- Discussion in Adults with nephrotic syndrome · 0 replies
- Hey Everyone, The first time I was diagnosed with nephrotic syndrome back in Dec. 2008 I remember having a severe cold right before it and I did not threat it with antibiotics. Well, my first relapsed ...
My Lexie is back
- By Erin_B · New reply 12:29 pm
- Journal · 2 replies
- I haven't been on this site for quite awhile. I think I just needed a break. While the discussions are informative, I was finding it really hard to cope. I don't think it's gotten any easier, I just found ...
lisonopril - remission?
- By Beth75 · New reply 10:59 am
- Discussion in Adults with nephrotic syndrome · 6 replies
- Anyone go into remission w/lisonopril? If so, how long did it take? I've been on it for a month and doing ok I think but still no remission. I have MCD. My new doc also took me off cellcept a couple weeks ...
Primary FSGS or Secondary FSGS?????
- By lookonthebrightside · New reply 8:13 am
- Discussion in Adults with FSGS · 18 replies
- So when i first found out i had fsgs i was told it was secondary due to hypertension.. now i had my brother in laws brother (whos a pathologist) look at my actual kidney biopsy slides let me know he believes ...
your valuable advice needed
- By ritsr · Posted 2:20 am
- Discussion in Adults with FSGS · 0 replies
- dear friends, hope you allare doing well. I am a 32 years old male, recently diagnosed with FSGS. My urine albumin is ++. however, blood creatinine and urea are within limits. 24 hours urine albumin is ...
How Common Is Genetic Testing for FSGS?
- By SoaringHigh · Posted yesterday at 8:57 pm
- Discussion in Children with FSGS · 0 replies
- Our son isn't responding to the usual meds. The neph. ordered genetic testing and we hope to hear back in about 2 more weeks. My husband and I don't have any history in our families of kidney problems ...
polymyalgia rheumatica
- By ayel · New reply yesterday at 2:15 pm
- Journal · 17 replies
- I dont have fibromyalgia but do have polymyalgia rheumatica, along with giant cell arterits, I know fibro and poly are very similar. would be interesting to talk to others out there who suffer with either ...
My Personal Battle against Kidney Disease and Nephrotic Syndrome
- By ChristiL · New reply yesterday at 12:57 pm
- Journal · 29 replies
- My Personal Battle against Kidney Disease… I hope my story can help you write yours... I'm not sure how to share my story/my illness with you. So, I guess I'll just jump in and hope you can follow. I ...
Hair loss/thinning and Prednisone
- By skimonger22 · New reply February 6, 2010
- Discussion in Adults with nephrotic syndrome · 27 replies
- Any other women out there on pred experience any hair loss or thinning while on pred? If so, what dose are you at and for how long have you been on it? Any response would be greatly appreciated ...
Membranous Nephropathy - my story
- By Domaldo · New reply February 6, 2010
- Discussion in Adults with nephrotic syndrome · 4 replies
- Hi everyone. I'm a 36 yr old man who has recently been diagnosed with Membranous Nephropathy and wanted to share my story with you all. In late Sept 09 I had a severe stomach bug that caused me to be ...
Low protein
- By debmiller · New reply February 6, 2010
- Discussion in Adults with FSGS · 11 replies
- Anyone who has FSGS likely has low protein, what are some methods to get protein up...it sounds like this is backwards because preotein leaks so most think it shoudl be low, but our DR. thinks he needs ...
New member in San Diego, CA!
- By Ras-Hype · New reply February 6, 2010
- Journal · 3 replies
- I am looking for people to connect with in the San Diego/Southern California area that have FSGS/kidney diseases too. I am new to this site and would like to help raise awareness of these diseases in ...
Bubbles In Urine
- By minimalchange · New reply February 6, 2010
- Discussion in Children with nephrotic syndrome · 9 replies
- Hey, i have nephrotic syndrome and is going to stop taking prednisone. I was wondering, when you urine [in toilet bowls], do you see bubbles on top of it? I see that normal people has clear urine. So ...
NEW TO ALL THIS
- By christineMNk · New reply February 6, 2010
- Journal · 18 replies
- Hi, my name is Christine. I am 43 years old and in May of 2009 woke up with swollen ankles. Never ill prior to that. After many doctor visits, forwarded to a Neph for follow up. Had a kidney biopsy in ...
Membranous Nephropathy are my results
- By Alfonso123 · New reply February 6, 2010
- Discussion in Adults with nephrotic syndrome · 16 replies
- I got the results of my biopsy, the Neph says membranous nephropathy, but the report says membranous glomerulopathy?? Looks like I have less than 10% scaring. I was told about 1/3 of cases go into remission ...
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The NephSpace Support Community connects patients, families, friends and caregivers for support and inspiration. The NephSpace Support Community is sponsored by The NephCure Foundation in partnership with Inspire.