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TIRED
- By Jedi · New reply 9:10 pm
- Discussion in Adults with nephrotic syndrome · 12 replies
- dose anyone suffer with tiredness and depression due to this illness because it seems im tired all the time and sleep so much which makes me depressed ...
NephCure has 3 New York Marathon Spots!
- By NephCureNadia · Posted 12:08 pm
- Discussion in Fundraising and awareness · 0 replies
- NephCure has just acquired 3 spots in the New York Marathon. If you or someone you know would like to run in the most famous of marathons as a fundraiser to fund research for FSGS and Nephrotic Syndrome ...
FSGS + SEIZURES
- By TLRFSGS11 · New reply 12:08 pm
- Discussion in Adults with FSGS · 3 replies
- hello, this is my first time in a discussion. but i have been diagnosed w/fsgs for 11 years im 43yo, i started having seizures 5 years ago im not on steroids, dialysis. i just became allergic to lisinisopril ...
Pittsburgh and surrounding areas
- By buffie · New reply 11:56 am
- Discussion in Fundraising and awareness · 4 replies
- Hi everyone! We are trying to start a chapter in Pittsburgh, PA, and the surrounding areas! Please respond to me if you are in the area and are interested! We want to do support groups, walks, and anything ...
Atlanta Support Group
- By alisan · Posted 7:59 am
- Discussion in Fundraising and awareness · 0 replies
- Just wanting to know if there are any of you in or near Atlanta that would like to become part of our Atlanta NephCure chapter. We have been meeting monthly for the last several months and are planning ...
remission during cough & cold
- By mdcool · New reply 7:50 am
- Discussion in Children with nephrotic syndrome · 1 reply
- Hi friends My son has been dx with Minimal change ds in 2008, he was in remission for a year & this yr back with 4 relapses. The last one was during a cold,it was trace for 3 days & 4th day it was +3 ...
Remission signs and symptoms
- By MichelleSC123 · New reply 5:40 am
- Discussion in Children with nephrotic syndrome · 9 replies
- My son, 2 years old was diagnosed with Nephrotic Syndrome about 4/5 months back. He has had 2 relapses since then, one accompanying a convulsion. The last 2 weeks have been terrible! We had bloods done ...
Week One.
- By DenishaDonna · Posted yesterday at 5:59 pm
- Journal · 0 replies
- The first week of cellcept was fine, i didnt feel as much pain . when i had predisone. But Im feeling okay and I pray that it stays that wayy. Oh yeah, my foot is still kind of swollen . Thank you for ...
social security disability
- By wedad · New reply yesterday at 4:57 pm
- Discussion in Adults with FSGS · 15 replies
- Hello, I was wondering if any of you have applied for social security dis.and still working,how long did it take and were any of you denied. I can't continue to work full time and totally fatigue,and ...
First time with FSGS/prednisone..worried and confused
- By burchln · New reply yesterday at 12:58 pm
- Discussion in Adults with FSGS · 7 replies
- I'm 21---and am going through my first treatment of prednisone. I was on 60 mg for eleven weeks...then tapered to 50 mg for two...now I'm in my second week of 40 mg. I go to the Dr. next week with hopes ...
MCD, Thin Basement Membrane & Remission
- By Beth75 · New reply yesterday at 12:26 pm
- Discussion in Adults with nephrotic syndrome · 1 reply
- so I met w/my Neph today and I will have to be on the medicines the rest of my life to control the protein spillage from my kidneys (I will probably never reach remission w/out the meds). I think he said ...
thumbs/hands tremors/cramps
- By samy-D-D · New reply yesterday at 11:13 am
- Discussion in Adults with FSGS · 12 replies
- i been having thumbs/hands tremors..like cramps..more or less..very similar to the ones in this vid for like a month....i duno if it forbidden to put vids here,,,..but i want you guys to check it out..and ...
What do you do for a living unrelated donor?
- By bro · New reply August 31, 2010
- Discussion in Adults with FSGS · 4 replies
- I had a tx last year from a living unrelated donor. I am so thankful for her. We stay in contact and we love them but I just don't know how far to go. I don't want to bug them to death but I don't want ...
Dipstick (leukocytes and specific gravity)
- By Beth75 · New reply August 31, 2010
- Discussion in Adults with nephrotic syndrome · 2 replies
- I use the dipsticks with about 10 different things on them and the protein part I understand. There are two other tests on there where I do not have the color I should, they are Leukocytes (just a few ...
how to deal with urinary tract infection while Nephrotic syndrome
- By zhgy1999x · New reply August 31, 2010
- Discussion in Children with nephrotic syndrome · 3 replies
- my little girl with Nephrotic syndrome often get urinary tract infection ,how could we deal with it ...
Vit D good or bad
- By ValeriaZ · New reply August 31, 2010
- Discussion in Children with nephrotic syndrome · 11 replies
- Hello, Many here say the doctores prescribe Vit D. Why? Just because of Calcium deficiency while on steroids? Or Vit D somehow meant to improve the immune system? I am asking because I have recently read ...
from heppy re: posts
- By heppy · New reply August 31, 2010
- Journal · 8 replies
- I don't get on the computer everyday, so I just don't get it...I don't want to post in every group. just bascially the group that I am in when I post...should I just select none? hwppy ...
Anybody been through a transplant?
- By hope4health · New reply August 30, 2010
- Discussion in Adults with FSGS · 9 replies
- Looks like I will have a transplant end of September. I'm worried about the recovery and meds and how I will feel. Anybody have any experiences/knowledge to share ...
long term use of cyclosporine
- By varga · New reply August 29, 2010
- Discussion in Children with FSGS · 9 replies
- well my son is now 16 diognosed with fsgs/diffuse messengial, segmental bla bla. too long. he was diognose at 2 like everyone, started prednisone, on it for 5 years. finally got him off and on cyclosporine ...
MILITARY- FSGS AND MINIMAL CHANGE
- By smokler · New reply August 29, 2010
- Discussion in Adults with FSGS · 2 replies
- The Nephcure Foundation is seeking observations of treatment of FSGS and Minimal Change in the military. If you have such an experience and wish to share it publicly, please post in this discussion. If ...
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