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Who has kidney disease and allergies?
- By moz100 · New reply 4:21 pm
- Discussion in Adults with nephrotic syndrome · 27 replies
- I thought it would be interesting to start a thread to find out how may people on this site have both kidney disease and allergies .... my son has both ...
Support your group and raise awareness with badges
- By Walter · New reply 4:04 pm
- Journal · 53 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
nephrotic range
- By ritsr · New reply 3:29 pm
- Discussion in Adults with FSGS · 2 replies
- Hello everybody, hope you are doing well.... can somebody tell me if 3gm protien/24 hours urine could be described as falling in nephrotic range......Thanks ...
Genetic test - ACTN4 mutation?
- By alisan · New reply 2:24 pm
- Discussion in Children with FSGS · 1 reply
- My 6 yr old son had genetic testing performed for familial FSGS. They test for 3 specific genetic mutations. The 2 most common genetic defects (TRPC6 and NPHS2) were negative. However, they did detect ...
Albumin Albustix???
- By cschorr · New reply 12:37 pm
- Discussion in Children with nephrotic syndrome · 7 replies
- I am going insane- My daughter is on 40 mg a day of prednisone- they want me to check her with the Albustix- so I have been- Thurs. she swelled up and albustix read the highest- last night she was reading ...
How Stiff Person Syndrome Has Changed My Life
- By 1955-53 · New reply 10:24 am
- Journal · 65 replies
- I was finally diagnosed after 5 years searching desperately for an answer. In May, 2009, I finally got the diagnosis. Then I started falling, broke my wrist in July and the Sunday after Thanksgiving I ...
Lets Complicate Things a Little More~~~~~~
- By MelissaShuford · New reply 9:10 am
- Journal · 3 replies
- Yesterday i received a letter from the review of my sleuth heart recorder (implanted loop recorder)Stating that after review on 2/25/2010 they had attempted to contact me for several days to discuss findings ...
NIH research hospital
- By Vivigirl · New reply 7:12 am
- Discussion in Children with nephrotic syndrome · 6 replies
- Has anybody went to NIH or heard of anyone going. We have friends that tell us it is amazing. Their child has a auto immune deficiency and has had wonderful treatment. She has never been so healthy. I ...
Moon Face Solution? [Read]
- By minimalchange · New reply 1:59 am
- Discussion in Help desk · 11 replies
- Ok, when we're on high dose of preds, one of the common side effects is moon face [everyone hate]. I think i got a way to lesser it, that is quite obvious to everyone. The more we eat, the bigger our ...
prednisone side effect Moon face
- By PIKU · New reply 1:56 am
- Discussion in Adults with nephrotic syndrome · 1 reply
- Hello There, I have just come off of this med after taking it for a complete 4 yrs. I have SLE, so the dosage always flutuated from 20-60 mg. My face looked like a ballon for all these years. I kinda ...
Does this sound like IGA NEPH?
- By Brandyburke · Posted yesterday at 8:22 pm
- Discussion in Adults with nephrotic syndrome · 0 replies
- Hi all. Let me start off by saying we know i have an autoimmune problem, they just haven't figured out what type yet. I have recurrent uveitis, all sorts of skin rashes, heart failure brought about by ...
The first meeting of the Las Vegas chapter of NephCure
- By cherigit · Posted yesterday at 6:58 pm
- Discussion in NephCure advocacy · 0 replies
- Hi All, The first meeting of the Las Vegas NephCure chapter will be held on Tuesday March 16th at the Srping Valley Library, located at 4280 South Jones Blvd. It will start at 7:00PM. Please join in and ...
First Meeting of the Las Vegas Chapter of NephCure
- By cherigit · Posted yesterday at 6:58 pm
- Discussion in Children with FSGS · 0 replies
- Hi All, The first meeting of the Las Vegas NephCure chapter will be held on Tuesday March 16th at the Srping Valley Library, located at 4280 South Jones Blvd. It will start at 7:00PM. Please join in and ...
First meeting of the Las Vegas NephCure group
- By cherigit · Posted yesterday at 6:57 pm
- Discussion in Adults with FSGS · 0 replies
- Hi All, The first meeting of the Las Vegas NephCure chapter will be held on Tuesday March 16th at the Srping Valley Library, located at 4280 South Jones Blvd. It will start at 7:00PM. Please join in and ...
Dealing with medical debt
- By thewatcher101 · New reply yesterday at 6:07 pm
- Discussion in Adults with FSGS · 5 replies
- So after my hospital stay (60K) and out patient care (5K and growing) - I find myself in medical debt since I have PPO through my school which requires me to pay 20% with an annual stop loss of around ...
I met My Father today~~~~
- By MelissaShuford · New reply yesterday at 5:58 pm
- Journal · 9 replies
- WOW !!!! What am I feeling.....God please embrace me and hold me close...tenderly remind me of your unconditional love that has carried me thru almost 47 years now....even when I didn't know it you were ...
Em.....Nerves ...... and the Gettysburg Address
- By MelissaShuford · New reply yesterday at 5:41 pm
- Journal · 3 replies
- My precious Em, Bless her heart and may I request a prayer for her as we I post~~~~She has studied the Gettysburg address inside and out and knows it well and today is THE DAY to recite it in class ~as ...
Coming off predisone
- By Takisha · New reply yesterday at 10:51 am
- Discussion in Adults with FSGS · 11 replies
- I was just wondering if anybody knows the answer. When you come off the predisone do you loose the weight and the puffy face. I know working out will help I do that but I was just wondering if I would ...
Heading toward dialysis
- By alisan · New reply yesterday at 9:42 am
- Discussion in Children with FSGS · 12 replies
- Well, our journey started 4 months ago when my 6 yr old son was diagnosed with FSGS (collapsing). We have tried pred, cyclosporine, and now cellcept but his renal function has declined rapidly. His Creat ...
Cataract surgery
- By cherigit · New reply yesterday at 12:14 am
- Journal · 9 replies
- Well, I had my second cataract (left) removal today and it went very well. Much better than the first one (right). I was surprized last summer to find that I had developed bilateral cataracts which the ...
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