Fundraising and awareness

Share information about fundraising and awareness opportunities.

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Help Nephcure with Research

jewels223
  • By jewels223 · New reply December 29, 2012
  • 6 replies
  • I wanted to pass this information along from Nephcure. They are compiling a data base of patients with MCD, FSGS, and MN. All information is confidential and helps fund research. Most pharmaceutical companies ...

Lunch & Learn in Milwaukee, Wisconsin

jmuchytil
  • By jmuchytil · Posted October 21, 2012
  • 0 replies
  • INTERACT with medical professionals MEET other patient families LEARN about: • Nephrotic Syndrome and its causes • Research and what it means to you • Treatment options • Patient Support Activities Registration ...

Non-profit fundraising

Diannejean
  • By Diannejean · Posted October 18, 2012
  • 0 replies
  • I work with a company that provides an opportunity for registered non-profits 5013C to have retail websites for their products free of charge. Once the websites are set up which takes about 15 minutes ...

Nephcure Walk in St Louis

LaciLou
  • By LaciLou · Posted August 3, 2012
  • 0 replies
  • http://www.kintera.org/faf/home/default. asp?ievent=1033890%20 About NephCure Walk The NephCure Walk program furthers NephCure’s efforts towards Saving Kidneys, Saving Lives. More than a fundraiser, The ...

NephCure Walk Long Island

CatherineML
  • By CatherineML · Posted May 24, 2012
  • 0 replies
  • NephCure Walk Long Island is June 10 at the Holtsville Ecology Center in Long Island NY. Meet other families and find support among a great group of patient families. Contact: CLepone@teamnephcure.org ...

Nephcure Walk Charlotte, NC 06/09/12

SandiDee
  • By SandiDee · New reply April 24, 2012
  • 7 replies
  • Hi everyone! If you are in the Charlotte, NC area please come out and support the first Nephcure Walk. The Nephcure Foundation is dedicated to finding a cure and the cause for Nephrotic Syndrome and FSGS ...

Richmond VA--NS or FSGS

aubsmom
  • By aubsmom · Posted October 27, 2011
  • 0 replies
  • We are having a Team Richmond meeting on 11/5 at 9:30 at Robius Landing Park-shelter 3 in Midlothian. For more info please contact Cindy at 804-787-3110 or cliberatore@teamnephcure.org or Beth at bspagnoli@nephspace.org ...

Aluminum-free

jenjen76
  • By jenjen76 · New reply October 7, 2011
  • 1 reply
  • I know that somewhere long time ago I brought this up but it was prolly over a yr. ago-I was reading through some diff. posts and was reading about soda drinking that made me want to rebring this up-It ...

Nephcure walk-Lombard Illinois 9/25

jenjen76
  • By jenjen76 · Posted September 22, 2011
  • 0 replies
  • Hi, walk is this sun. just wondering if anyone from the forum was comming? This will be my first im so excited,I know many of you live so far away I wish I could meet many of you on here you are my heros ...

Nephcure Walk in St Louis

LaciLou
  • By LaciLou · New reply September 21, 2011
  • 1 reply
  • Hello to all in the St Louis area. The Nephcure Foundation is going to be hosting their first walk in St Louis on Oct 8th at Kirkwood Park. If you are in the area please come out to support! The Nephcure ...

walk in Chicago 9/25/11-???

jenjen76
  • By jenjen76 · Posted August 10, 2011
  • 0 replies
  • Im going just wondering if anyone else is going or has gone before-this will be our first time going im excited ...

anyone know of any walks in illinois?

jenjen76
  • By jenjen76 · New reply August 6, 2011
  • 2 replies
  • just wondering ...

Northern VA Families - Baseball Game

Curtnik
  • By Curtnik · Posted July 11, 2011
  • 0 replies
  • Join us for some baseball fun! On Friday, Aug 12 we are gathering at the Potomac Nationals Baseball Game in Woodbridge, VA to support the NephCure Foundation. My family has purchased a set of group tickets ...

NephCure Walk - Connecticut

CatherineL
  • By CatherineL · Posted June 16, 2011
  • 0 replies
  • Our first NephCure Walk for Connecticut will be held Sunday, June 26 at Sherwood Island State Park. Registration is at 9:00 and the walk is at 10:00. Contact me for more information at clepone@nephcure.org ...

Bronx, Brooklyn, NY Support Team Forming

CatherineL
  • By CatherineL · New reply June 16, 2011
  • 2 replies
  • The NephCure Foundation is creating an opportunity for families in the Bronx, Manhattan and Brooklyn to form their own Support Team. We will hold meetings, seminars and a Fundraising and Awareness NephCure ...

FREE DC Metro Area NephCure Lunch & Learn

Cindy_Liberatore
  • By Cindy_Liberatore · New reply May 28, 2011
  • 1 reply
  • Courtyard by Marriott Capitol Hill/Navy Yard 140 L Street SE Washington DC 20003 Registration begins at 8:30 am These FREE half day educational sessions are designed to introduce you to some of the top ...

GF diet-NS/FSGS/EVEN RA-arthritis read this!!

jenjen76
  • By jenjen76 · New reply May 26, 2011
  • 6 replies
  • I know there has been alot of talk on here about gluten free diet and many of you may already know this -I have posted several things about the celiac/or gluten free diet I think its great but my primary ...

Connecticut Families Wanted

CatherineL
  • By CatherineL · Posted May 17, 2011
  • 0 replies
  • We are holding a NephCure Walk in Connecticut on Sunday, June 26 at Sherwood Island State Park (Westport). This is a great opportunity to get acquainted with other families and support the research efforts ...

NephCure Long Island Walk - June 4

CatherineL
  • By CatherineL · New reply May 9, 2011
  • 1 reply
  • The NephCure Long Island Walk will be held at Holtsville Ecology Center on Saturday June 4. You are welcome to register today and join us. FREE http://nephcure.org/long-island-walk-201 1 See you there ...

NephCure Walk Richmond, VA-June 11

Cindy_Liberatore
  • By Cindy_Liberatore · Posted April 27, 2011
  • 0 replies
  • Please join us for the second annual NephCure Walk, Richmond VA. This year, we will meet at the Robious Landing Park in Midlothian, VA for family fun ...

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