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Third time lucky?

kduk
  • By kduk · Posted May 18, 2013
  • Discussion in Adults with MCD · 9 replies
  • So yesterday I got my blood works back and they confirmed what the albustix were telling me. I'm having a full discrete relapse. I've started the pred at 30 this morning so I'm doing the edgy/tired weird ...

Restricting Fluids

Joanne62
  • By Joanne62 · Posted May 18, 2013
  • Discussion in Adults with nephrotic syndrome · 4 replies
  • Please stop telling people to restrict their fluids this is very dangerous. If you have been told to restrict fluid by your Nephrologist then fine but those of you who are not told to restrict them then ...

painful/heavy arms

melis01
  • By melis01 · Posted May 18, 2013
  • Journal · 2 replies
  • i was diagnosed with mcd in october 2012, i am still on pred , cyclosporin, lasix,eltroxin, blood pressure and cholestrol meds. i have had the normal side effects and loss of hair but the last few weeks ...

Short of breath

kerkoke
  • By kerkoke · Posted May 17, 2013
  • Discussion in Children with MCD · 5 replies
  • I have a question for MCD people. My daughter (16) is constantly trying to get a deep breath. She says she feels like she just can't get one of those satisfying breaths. We have discussed this with docs ...

Genetic testing for FSGS

Pdf
  • By Pdf · Posted May 17, 2013
  • Discussion in Children with FSGS · 7 replies
  • My daughter was first diagnosed with mcd about 7 month ago. She was put on a very high amount of prednisone but when we tapered her off she relapsed and then prednisone just stopped working. She had a ...

Low Albumin

jgneph
  • By jgneph · Posted May 17, 2013
  • Discussion in Children with FSGS · 1 reply
  • My son has FSGS and has stopped spilling alot of protein (down to about in between trace and 30). However, his albumin has not gone back up to normal (it has gone up from 2.1 to 3.0 but still well below ...

How much protein should be included in ns diet

cesegers
  • By cesegers · Posted May 17, 2013
  • Discussion in Adults with MCD · 0 replies
  • Has anyone had their doctor tell them how much protein should be eaten each day? Mine hasn't really said, and I haven't been able to really pin down an amount in the articles I have read. I know that ...

Blood work

batman7
  • By batman7 · Posted May 17, 2013
  • Discussion in Children with nephrotic syndrome · 0 replies
  • My son's part one of blood work came back, elevated sed rate. Looked for information on line to understand, but I still don't get it. The rest of his results come in today. Anyone have any experience ...

Absolute Pain

ECawley
  • By ECawley · Posted May 17, 2013
  • Journal · 7 replies
  • I am up again. The third day this week. I wake in the early morning hours, generally around 3 to 5 a.m. in so much pain, it hurts to breathe. Indigestion, I guess. Nothing helps. I vomit, gag, pace back ...

does prednisone or cellcept lower function?

popsycle
  • By popsycle · Posted May 16, 2013
  • Discussion in Adults with FSGS · 5 replies
  • Hi, I just went to the neph today and I'm down to 20% kidney function! :( I have been in the high 30's to 40's for quite a few years now and I have been on cyclosporine for about six years. The Neph took ...

nephrotic

arlando

Having troubles with steroid therapy/ rituxan??

MallorysNana
  • By MallorysNana · Posted May 16, 2013
  • Discussion in Children with nephrotic syndrome · 1 reply
  • My 12 year old has had nephrotic syndrome since she was 2. She has has to take progaf in addition to prednisone for 9 years. In the past year she has had troubles with protein coming down when on high ...

FSGS in my 19 year old. 30% kidney function

varga
  • By varga · Posted May 16, 2013
  • Discussion in Adults with FSGS · 4 replies
  • What I don't understand is now my son went from 60% kidney function to 30% kidney function and his dr has the nerve to tell us when she saw the report a few weeks ago she had no idea what to do and didn't ...

too many relapses!!!

AndrewsMom10
  • By AndrewsMom10 · Posted May 15, 2013
  • Discussion in Children with nephrotic syndrome · 6 replies
  • My son has been on steroids for almost a year and he continues to relapse. Has anyone else experience this in the first year? And what drugs did your doctors put you on after too many relapses? How long ...

Acne

edgard
  • By edgard · Posted May 15, 2013
  • Discussion in Adults with FSGS · 3 replies
  • Any solution for acne while on neoral and prednisone?thanks ...

pregnancy

mojo2
  • By mojo2 · Posted May 15, 2013
  • Discussion in Adults with nephrotic syndrome · 1 reply
  • Can someone please answer this question... as I didn't get a reply last time! Has anyone been pregnant and had kidney flare up? What medication did you take? Was there any harm to your baby ...

transplant blood type question

thomasmatthew
  • By thomasmatthew · Posted May 15, 2013
  • Discussion in Adults with FSGS · 1 reply
  • Hey folks, I need a bit of help. I have AB+ blood type. My Neph says I must have a match from only another AB type donor. He is a very well respected Neph in Dallas. HOWEVER, everything I read as well ...

Baking soda stop need for dialysis?

thomasmatthew
  • By thomasmatthew · Posted May 15, 2013
  • Discussion in Adults with FSGS · 3 replies
  • Anyone heard of this working? In UK researchers say simple sodium bicarbonate (bakig soda) may stop the need for dialysis. Google it and read about it. It sounds way too good to be true ...

Cytoxan

cesegers
  • By cesegers · Posted May 15, 2013
  • Discussion in Adults with MCD · 5 replies
  • Is there anyone out there who has been on cytoxan for awhile. I have been on it for almost a month, and feel weak and nauseous when I first get up in the mornings. I had to stop taking it for a week when ...

One year without hospital stay is a real great thing for us...

mango1990
  • By mango1990 · Posted May 15, 2013
  • Discussion in Children with nephrotic syndrome · 4 replies
  • Hi all... I have joined this site almost a year ago, when my little brother got admitted to hospital with a relapse, while he was on pred and MMF. During that hospital stay, he had a biopsy and it confirmed ...

Things you can do

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