Journals
painful/heavy arms
- By melis01 · Posted yesterday at 8:47 am
- 0 replies
- i was diagnosed with mcd in october 2012, i am still on pred , cyclosporin, lasix,eltroxin, blood pressure and cholestrol meds. i have had the normal side effects and loss of hair but the last few weeks ...
Absolute Pain
- By ECawley · Posted May 17, 2013
- 7 replies
- I am up again. The third day this week. I wake in the early morning hours, generally around 3 to 5 a.m. in so much pain, it hurts to breathe. Indigestion, I guess. Nothing helps. I vomit, gag, pace back ...
Happy Mother's Day to all mother in this site!!
- By FlacaD · Posted May 12, 2013
- 3 replies
- Wether you are a mother of a child or a 4 legged furry, or you just may just a care for others. then you are an Amazing mother and you deserve to celebrate it any way you want!!! most of the time we are ...
Swelling/bloating and water retention
- By Tigress · Posted May 10, 2013
- 3 replies
- Oh dear! Into my third day of tapering Prednisone down to 40 mg/day (from 60 mg/day) and I have a little swelling and water retention. My shoes are a bit tight. Never had this before. The only change ...
From MPGN, to remission, to transplant, to paralysis, to dialysis, now home
- By dputrich · Posted May 9, 2013
- 2 replies
- In 2001, when my wife was 63 her legs swelled-- went to a doctor and it was eventually established that she had Membranoproliferative glomerulonephritis. There are three "types" of this disease and I ...
Prednisone and Nephrologist visit (a month after)
- By Tigress · Posted May 7, 2013
- 2 replies
- I first took Prednisone (60 mg/day) on April 1, 2013 and on April 30, 2013, I had my 24 hour urine collection and blood test in preparation for my first visit with my Nephrologist after a month of taking ...
tranplant talks
- By keyur2483 · Posted May 7, 2013
- 10 replies
- So I think the time has finally come to start planning for a transplant. Luckily my mother is a match. After 20 years of dealing with meds, side effects, symptoms and declining kidney function, my gfr ...
Fibrillary Glomerulonephritis (GN)
- By kisnsmooch · Posted May 6, 2013
- 5 replies
- I was just diagnosed with Fibrillary GN, stage 3. Currently my doctors are writing letters to my insurance company in the hopes of getting them to allow a drug called Rituxan to be given to me. This drug ...
In It For The Long Run...
- By IAmJen · Posted May 5, 2013
- 10 replies
- Having been on 60mg Prednisolone for 14 weeks, my albumin finally reached a normal level. The consultant decided that I can't stay on 60mg any more because the side effects have become too severe and ...
Hello
- By Stkmrkts · Posted May 2, 2013
- 1 reply
- Just diagnosed and looking for information ...
my story
- By renalkid · Posted April 30, 2013
- 4 replies
- Hello! I'm Troy, I'm from ohio. I have kidney disease, however on 12/9/2012 I was blessed with the gift of life via a kidney transplant! Someone told me about this site today so had to check it out because ...
Day after day
- By Michika · Posted April 29, 2013
- 2 replies
- My 12 year old daughter was diagnosed with NS on January 24 2013. After 4 weeks of prednisone she did not seem to respond, and after 2 more weeks and a biopsie we found out she had FSGS. Our world began ...
Knot on back
- By ECawley · Posted April 29, 2013
- 5 replies
- I have recently noticed a very small knot on my lower back. Approximately quarter sized. It wasn't been there before. I only noticed it yesterday evening because my lower back was hurting and I was trying ...
Please help me out and pray for us..
- By mango1990 · Posted April 16, 2013
- 11 replies
- I have twin brothers, 5years old. One of them has nephrotic syndrome. The other one was doing well. But recently, he had some infection few weeks back and and last week he was caught by flu, had high ...
Five million
- By Brian · Posted April 11, 2013
- 205 replies
- Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...
Remission of FSGS - Collapsing Variant
- By 007Jai · Posted April 9, 2013
- 2 replies
- I sent this out to my co-workers and friends yesterday. I wanted to share it with you guys too... After all, you have also been there since the beginning ...
Me and Bee Venom Therapy
- By jalamasi · Posted April 8, 2013
- 27 replies
- Hi everyone , Finally I decided to travel to try Apitherapy as a treatment for FSGS . The flight is tomorrow , so i decided to talk about my experience in this journal. I have decided to try this because ...
Erratic Sleep after 1 week in my journey with Prednisone
- By Tigress · Posted April 8, 2013
- 2 replies
- On Friday evening or early Saturday morning rather, my day 6 in Pred, I woke up at 3:30 am, went to the washroom, went back to bed and stayed wide awake! This was the first time I experienced this. I ...
Well I never!
- By IAmJen · Posted April 5, 2013
- 11 replies
- No one can understand what we go through on a daily basis or what it can entail. There are so many aspects to this illness that even close family cannot begin to perceive. I speak a lot on here about ...
diabetic nephrotic syndrome
- By ursula20 · Posted April 5, 2013
- 0 replies
- Hi is their any one with diabetic nephrotic syndrome on insulin and gaining weight i need a diet plan whent from 87kg to 110kg in 6 months from south africa ...
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