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Anyone ever had MCD turn out to be FSGS??

jburke
  • By jburke · Posted yesterday at 7:52 pm
  • 6 replies
  • I was just at my nephrologist and he said if I keep spilling more protine they may have to take another biopsy to see if what I actually have is FSGS. This is deffinetly new to me I've been dealing with ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

FSGS

joda29
  • By joda29 · Posted April 11, 2014
  • 14 replies
  • I have a question my 29 year old son has FSGS and started prednisone 60 mg treatment on March 10, yesterday, April 10 he had a lab test and his creatinine has gone up as follows: I will type in the range ...

Ticks me off

AugustaGirl
  • By AugustaGirl · Posted April 3, 2014
  • 4 replies
  • I'm TOO HEALTHY for Disability, but TOO SICK for Life Insurance. I tried to get life insurance in case something does happen to me, my house will be paid for so my husband won't have to worry about making ...

allopurinol vs

1965maria
  • By 1965maria · Posted April 2, 2014
  • 2 replies
  • Hi my son has glomerulocystic kidney disease. he is 23 and is presently taking Diovan to help protect the kidneys, allopurinol to make sure the uric acid stays within normal range (he has never had a ...

how my mind is going today.

harlenep
  • By harlenep · Posted March 29, 2014
  • 2 replies
  • I have been sick my whole life never a day without pain or the threat that this could be the day I have to go to the hospital and run the risk of being admitted and probed to death. I hate hospitals even ...

New to nephrotic syndrome

Ktrose03
  • By Ktrose03 · Posted March 28, 2014
  • 8 replies
  • My daughter was diagnosed with NS. She has been on prednisone for 10 days now and her eyes seem really sunken in. Has anyone experienced this before? Also I just received the albustix and tested her today ...

staying positive?

findacurein2014
  • By findacurein2014 · Posted March 28, 2014
  • 3 replies
  • I have read a lot of posts on here and a lot of people say stay positive, stay positive. Well that is hard to do. We are on last line treatment except rituximab. Which neph doesn't think will work so ...

Anyone in San Diego area with FSGS?

shelbyrianne123
  • By shelbyrianne123 · Posted March 27, 2014
  • 1 reply
  • I was diagnosed with FSGS last year however, I didn't actually realize how serious it was until recently. I'm very scared and feel alone because no one in my family realizes that the is a big deal. Just ...

Day one..blowfish

Pitbullmom
  • By Pitbullmom · Posted March 24, 2014
  • 0 replies
  • My doctor got my biopsy results back this morning...I basically already knew what he was going to tell me...( I'd had this at age 8 )... It still made me break down when the Dr said it out loud though...the ...

new comer

sammyuk
  • By sammyuk · Posted March 19, 2014
  • 3 replies
  • hi everyone !! i'm new to the site and interested in everyone experience with nephrotic syndrome and hopefully with feedback can help me . my story begin with my 5yrs old daughter who become ill at Christmas ...

nephrotic syndrome/blood pressure

melis01
  • By melis01 · Posted March 19, 2014
  • 2 replies
  • hi guys im back after a long time tha few questions :- in November I was in full remission since oct 2011 I have been on pred ( which was reduced each month) , Lasix , blood pressure, thyroid , cholesterol ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

nephrotioc syndrome

melis01
  • By melis01 · Posted March 18, 2014
  • 0 replies
  • hi guys im back after a long time tha few questions :- in November I was in full remission since oct 2011 I have been on pred ( which was reduced each month) , Lasix , blood pressure, thyroid , cholesterol ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · Posted March 14, 2014
  • 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Leg or Foot Massage Devices???

Duvie
  • By Duvie · Posted March 11, 2014
  • 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

frustrating

findacurein2014
  • By findacurein2014 · Posted March 11, 2014
  • 3 replies
  • Once again checked my daughters urine dipstick. What a down right evil thing to put myself through everyday sometimes twice a day just to have the green 3+ staring me in the face for these last very long ...

Spilling 15 grams daily

jburke
  • By jburke · Posted March 9, 2014
  • 4 replies
  • High everyone my name is Jon I'm a 27 year old male with MCD. I have a unique situation and was wondering if anyone has input I could really use some! I was diagnosed with MCD in 2010 went on prednisone ...

New To FSGS scared

suecheramie
  • By suecheramie · Posted March 9, 2014
  • 20 replies
  • I just got diagnosed with FSGS go to Dr Tuesday to start treatment plan. Any advice would be great ...

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