My son has been on steroids for almost one year. To make a long story short, if that is possible....he has not been off them for one day during the past 11 1/2 months. He has MCD and early onset of FSGS. We are told he is steroid resistant which frustrates me for many reasons. Our doctor is suggesting Prograf, Cyclosporine, or Cellcept. Trying to get into to see a doctor a Strong Memorial and Levine Hospital for a second opinion. Any insight or help you can suggest would be wonderful. On a side note, by son is 'multiple handicapped' which adds to his situation, so it is not as easy as putting him on another drug. The side effects concern us greatly. Thanks.