I have read many posts on joint pain in this forum but I didn't find any that really "hit the spot" so to speak.
I was on 80 MG of pred every other day for 6 months. My neph scheduled my taper as follows:
40 MG alt days for 3 weeks
20 MG alt days for 3 weeks
10 MG alt days for 3 weeks
5 MG alt days for 3 weeks
2.5 MG alt days for 3 weeks.
Right about the time I hit 5 MG, I noticed joint pain in my hips, knees and shoulders. It isn't all the time either. If I am sitting - no problem, but when I begin to rise from a sitting position, my knees and hips SCREAM. Once I get moving again, the pain goes away. If I stand or walk for any length of time and then go to sit down - here we go again with the knees SCREAMING. When I try to take off a t-shirt (cross arms and pull to get the shirt off) - the pain in my shoulders almost makes me barf.
I told my neph and of course he said - it's not the prednisone. Uh, yeah, right.
I'm in remission and am holding it so that's good and nothing else has changed. I purposefully have changed NOTHING since I got off the cytoxan and started my pred taper.
So - anyone else do a taper and have joint pain that went away? Seems like all the posts I read folks had the pain before or during pred -- I didn't have any pain ever before I started this taper. My vitamin D levels are good (I've been on 2000 IU vitamin D for 10 months). All other meds are the same. . .
So - is this a long term or short term problem? Anyone have clues??
Thanks in advance for your help! S/
NS/MN diagnosed 2/2007
1st Remission 9/2009