I was diagnosed with FSGS in february this year. Since that I have been on Prednisolon (strarted with 60mg a day and now I am on 20 mg/day) and later on also Enalapril for the blood preasure (even if it wasn't high it has helped me alot as it seems). Now the question that I hope someone has the answer to.
When I started the treatment my protein leakage was 3,6 g/liter and my blood albumin level was 24 (normal is 36-48 g/L). My leakage is now 0,16 g/L (!) but the albumin blood level is still only 28 (although I have almost no oedema). My doctor is very confused while my spillage has almost been eliminated. I have got a "second opinion" from another doctor and he also thinks this is strange even if he says that it might be caused by the fact that my kidneys are still "inflamed".
I have read that the blood albumin is replaced by the liver within 6 weeks, so If my leakage is almost gone why hasn´t my albumin level been stabilized?
What experiences do you have who are the real FSGS experts :-) ?