well my son is now 16 diognosed with fsgs/diffuse messengial, segmental bla bla. too long. he was diognose at 2 like everyone, started prednisone, on it for 5 years. finally got him off and on cyclosporine for
9 years. damn thats a long time. i know that many of your kids have been on it longer, and this is where i am hoping i can get knowledge. what can i expect in the future. how long can you be on cyclosporine without having irreconsiable side effects. whats next???????