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Anybody else feel like screaming from a mountain top?

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So I'm new to this whole thing but figured the best way to start might be with my first "about me" text since I'm hoping this will change as time progresses. This is "my shout out" to anyone out there going through the same thing or anyone who might offer some inspiration since I'm fresh out at the moment.

I'm a 26 year old new mom recently diagnosed with osteoporosis and multiple vertebrae fractures. As if trying to have a career, a family and a soul wasn't challenge enough!

I recently suffered through months of "back pain is normal during pregnancy" and "back pain is normal after a c-section", and excruciating physical therapy listening to "it's gotta hurt before it gets better" and other mistakes that made me unable to do even normal tasks like getting out of bed, going over a bump in a car without screaming, or lifting my baby out of her crib.

Finally someone finally took me seriously enough to take an Xray and since then I've had every test anyone can think of but still haven't gotten any answers from doctors who seem to have no sense of urgency or care for my quality of life. I've gone from one specialist to the next and seem to be learning more on google than anywhere else.

I've been able to live somewhat normally through use of a back brace I basically had to beg for and daily hour walks with the stroller (which sadly does little to counteract the sedentary reality of my deskjob).

I've pretty much lost all faith in the medical industry since I have to fight for attention and no one wants to suggest anything to help me heal until I've been better "diagnosed". I wish someone would find out what's wrong with me so I could get some hope for my future. My daughter is not getting any lighter and I was really hoping to have more children!

I've finally made the tearful choice to start weening my baby since I read about pregnancy/lactation induced osteoporosis online - been feeling a little misled and abandoned by all the pro-breastfeeding "propaganda" that still makes me feel so guilty for that choice (and to think I thought I was doing something to PREVENT osteoporosis!). It's taken me months to listen to everyone in my family who have urged me from day one do what's best for my health rather than my baby since in reality she needs a healthy mom more than she needs breast milk - guess I was either in denial or hoping I'd get some other alternative from my doctors.

For years I used to worry that I'd never be strong enough to "fix" my "bad posture" - now the list of things I worry I'll never be able to do again is immense. I feel guilty that it never occurred to me that something like this would ever happen to me - I used to think being healthy and exercising was something I could get to once life slowed down. I'm desperate to find some sort of hope that I can make my life "normal" again even if I made the time!

I can't say how excited I am to find a support group like this - this is the first time I thought anyone might truly understand how I feel. I honestly wish that no one else had to go through this same thing - but at least now I don't feel so alone.

I feel like warning every woman I meet that this kind of thing happens! I wish to god I could have had a bone density scan years ago to prevent me from progressing this far and causing this much damage! How could so many different doctors miss the signs? How could such a huge community exist online and I never even knew osteoporosis happened to people my age?!

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OsteoporosisNOF: NOF supporters have sent hundreds of messages in support of S. 769/H.R. 1894 to Congress! Send a message today at bones.nof.org/DXA

OsteoporosisNOF: 36 patient, professional, health and community organizations that have endorsed S. 769/H.R. 1894

OsteoporosisNOF: “Medicare Fracture Prevention and Osteoporosis Testing Act of 2009” (S. 769/H.R. 1894) has 101 cosponsors in the House & 13 in the Senate

OsteoporosisNOF: Working on materials for tomorrow's Congressional Briefing for a National Action Plan for Bone Health. To attend, call NOF (202) 223-2226.

OsteoporosisNOF: Getting ready to honor Sally Field, Phil & Jan Fenty and Michelle King Robson at tonight's Silver Silhouette Awards Dinner!

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