Received this last night...
It has taken five years to go from committee to an actual floor vote, but it is actually scheduled to be voted upon....this Thursday. This is critically important legislation which will help ensure that pediatric rheumatologists are trained to deal with the 300,000 cases of juvenile rheumatoid arthritis here in the US, and to continue research funding against this chronic debilitating disease. PLEASE take two minutes and pick up the phone and call Wash DC ==202-225-3121== ask for your Representative's office. Ask the staffer you reach to let your Representative know of your support for HR 1283, the Arthritis Prevention, Control and Cure Act. Ask your Representative to vote FOR this legislation when it comes up for a vote THURSDAY.
Thanks for taking the time to make your voice heard in Washington.New Flash! APCCA Scheduled for Floor Vote on Thursday, September 25th! Arthritis Act Scheduled for a Floor Vote Thursday! Take Action!
Call Your Representative Thursday Morning
The unbelievable and miraculous has occurred – we have just gotten word that the US House of Representatives has scheduled a vote expected tomorrow, Thursday on the House floor on HR 1283, the Arthritis Prevention, Control and Cure Act. Thanks to all of you for your hard work these past 5 years, but your work is not yet done. We need to make sure that if a recorded vote is requested and taken on this bill that 2/3 of the Members of the US House of Representatives vote YES. Being a co-sponsor of the arthritis bill does not guarantee a Member of Congress will vote YES when it reaches the floor, nor does a non-co-sponsor indicate he or she will vote against it. For those of you with Members of Congress who have not co-sponsored but have indicated they would vote yes when it reaches the House floor, now is their chance to support the bill.
PLEASE CALL YOUR REPRESENTATIVE ON THURSDAY MORNING OR AS SOON AS POSSIBLE AND ASK THEM TO VOTE YES ON HR 1283, the Arthritis Act. Offices will be open from 8:30 am- 6:00 PM EST. We need all of you to please call the Capitol switchboard at (202-225-3121) or call your Member directly and ask him/her to VOTE YES tomorrow on the Arthritis bill, HR 1283.
This is truly exciting news and we will keep you informed as the day progresses.
Muriel
www.amyloidosissupport.com