Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Time to exit this life

Supercharged-S10
0 Recommendations

this sucks

Explore topics in this discussion:

Boniva Back pain Forteo Fractures Lexapro Physical therapy Reclast Suicide Pain Depression Osteoporosis

19 replies

MotherGoose

Your 2-word comment certainly speaks to your discouragement.
At your quite-young age -- with the spinal damage you describe -- you must be suffering .
I DO hope you have available a team of knowledeable, expereinced health professionals that can help you physically, menatlly , and emotionally.
That is important -- and if you are not satisfied with your present care, investigate other options.
It ihas always been amazing to me that people will hang in with clinicians who are offering them little.
IN this year of 2008 we have many options and roads to travel in the management of osteoporosis. My poor mother had few options back in the 70's when she was crushing her vertebrae to the extent she finally lost OVER 1 foot of height. And she lived until 2001.
Explore the information the National Osteoporosis Foundation has about centers for the care of those with bone loss.
Hang in there.
Lucy Buckley PT

Beth

If you are having suicidal thoughts, please call 1-800-SUICIDE, this is a very real issue and if you are truly feeling that bad, please reach out. There are people there to listen and help.

--Beth, Community Moderator

Veronica1

Hi Beth. I'm really glad you wrote that. I am feeling very bad with nowhere to turn. Sometimes I can't bear my thoughts. Maybe it would be a good idea to call a hotline. Thank you, Veronica (harmonica61@netzero.net)

Supercharged-S10

I have lost over 2 inchs in hieght, no I don't have any doctors helping me. No one on this site wants to hear the horror stories I have with doctors.

Quotes from Docroes
1. There is nothing wrong with me
2. I have the wrong records, I only see people in there 80's with this kind of problems
3. The state can't afford to have anymore people on social security, I need to get up out of this hospital bed and go to work.
4. I should buy a gun a shot myself
5. I am a drug addict looking to get more drugs.


These are just some of the things I have heard from doctors.

The doctors in this area didn't see me when I was breaking bones, I lived in Colorado when I broke my neck, then on the way to moving back to Illinois, I broke my back in Overland Park Kansas.

When I did finally make it to Illinois, I went and seen what I was told was the best back surgeon in this area. I had my MRI, he held it up to the light, said there's nothing wrong with me, I need to take this back brace off its just making me weak, ask my nurse, she was in one.

I was in that brace for over 7 months after seeing that doctor, and had to be hospitalized twice in that time, Thats when the doctors came in and told me #1 and #3 from above, and this was the doctor who did the bone density test and told me I had Osteoprosis, and as his buddy followed him out of the hospital room he said # 4 to me, my wife was right there in the room with me when all this went down.

Have I lost my hope, you bet, do I want to die, you bet, but here I am day after day, I didn't get any sleep last night, I hurt so bad, every day I think ok today is it, I won't have to suffer no more, but I am to big of coward to do any thing,

Thats all I can take now, I must go typing is one of the worste things I can do, my back cann't support my weight, I must use my arms to hold myself up and hard to do when i am typing.

H. A. Sweet

aka

Tony

Supercharged-S10

I found a pain med today, I took it and feel so much better. I remember why I wanted off these drugs so bad, sure I feel so much better, but I can hardly think straight. This is no life.

I have many hobbies to keep me going, but when they even become to much to bare, what do you do?

I will go to bed now, sleep the rest of today away, and tomorrow will bring another misirable day.

This Sucks

Tricia2

I know how you are feeling. I am only 48 and a little over a month ago, I didn't think I could go on like the way I was. I had went to a chiropracter which started the compression fractures in my back. And then they just kept going. My dr. didn't feel like he could do anything for me, and told me just to deal with it. Basically try to do Physical therapy and get thru it the best I can. He would supply me with as many drugs that I wanted. Finally after talking him into giving me an MRI, he sent me to another dr. This dr. took more xrays and decided to give me that Reclast infusion. I've finally been able to walk a little the last couple of days without a walker and today without my brace on all the time. The pain has really gone way down and I'm taking stuff that is milder so I can funtion. I also started weight-bearing excercises at p.t. and am getting stronger every day.
I do know drs. stick together, but keep trying till you get someone on your side. I just kept insisting that I was getting worse and they better do something about it and finally they did. Its hard, cause you just feel like curling up and staying asleep. Now I feel like I'm getting somewhere. I still have pain, but it is getting tolerable and I am able to function. I hope this helps that maybe there is light at the end of the tunnel for you. I finally seen it!!! Tricia

Flutterby

You are so precious! Part of your depression could be caused by your medication, as depression is a side effect for some of the drugs like Boniva. I'm not sure what all you are taking, but let the physician who is treating you know what is going on with you. If he/she will not listen, find a doctor who will. Don't give up!

Southernlady

I can't stop thinking about you and I want you to know that you can endure. The Lord is not going to give you more than you can bear. I pray that you receive healing and a message from the Lord to know that he loves you. Keep us posted please of how you are doing. I am here for you all I can be. Thinking of you.......

MotherGoose

Tony:
Have you ever had your testosterone levels checked?
This is a common cause of osteoporosis in men.
Also -- I heard on NPR the other day that a recent study addressed the correlation between low testosterone and depression. This does not mean that one casues the other, but that the two conditions are apt to co-exist. I have not had a chance to research this study yet.
Lucy Buckley PT

JilleWhite

Tony ~ Just now going back thru and reading some posts and found this one. I so hurt for you. I agree with Southernlady that the Lord can be your hope. I know that is not always what we want to hear, but it is true. He can make life worth living. If you have a Bible, read the Psalms. You can read those very Psalms to the Lord and He will comfort you. I've been thru MANY lows.. and He has seen me thru every one of them.. and one day when we get past this life, if we have placed our trust in Him, it will all be worth it. Please do not give up.
Jill

Supercharged-S10

Well I am still here, couldn't walk most last week. Started having real bad pains in left leg and hip 4 days ago, feels like I was run over by a truck.
Boy isn't life just grand
I should got to bed, because tomorrow might be good for something.......I'm not crazy I'm just a little unwell !

Supercharged-S10

yes they checked my testosterone and I have very little, so they put me on it, I rub it on my chest or I should say I did.
I can not take what it does to me, I am married have a bad disease that keeps me from doing anything, and when I started taking this drug, I wanted to run around, go do thinks I had not done in years. I took this drug for almost one year. It drove me almost nuts.
I tell people this and they laugh. To me it wasn't funny.

Supercharged-S10

I pray to the lord almost every night.
First I say my prayers, then I repeat the lords prayer tell I fall asleep. Every night I pray not to wake, and I am still here, that don't mean he don't listen.
I had something really bad happen once, this was worse than anything that has ever happened to me, it was an accident, but it happened.
I prayed that the lord break my back, I was so sorry what happened, and within less then 24 hours I had a broken back, crushed L-4 L-5.
He listens.

SaraMeeks

Dear Supercharged10:
I've read your posts and, having seen many people like you in my practice, I think I understand your pain, both physical and mental. It sounds as though you haven't yet received exactly the right advice and help you need.
I'd like to offer a couple of things:
1. I have a list of "exercises" called The Re-Alignment Routine" which, when done correctly and regularly, have given relief to many people.
2. With your serious condition, I might recommend the Spinomed III brace. It is the first brace ever to come along that actually STRENGTHENS the body part it is designed to protect--the back. It is an active, not a passive, brace and has helped many people be more active.
If you contact me through the Friends Network on this site, I can tell you more and send you information on my above suggestions.
Unless you are on a medication that is directly causing osteoporosis, there is a lot of help for you available.

sylvia6789

Dear Tony,

Please believe in the Lord. I am sure you've heard of the following poem. Allow me to quote it .....

"One night I dreamed I was walking along the beach with the Lord. Many scenes from my life flashed across the sky.

In each scene I noticed footprints in the sand. Sometimes there were two sets of footprints, other times there was one only.

This bothered me because I noticed that during the low periods of my life, when I was suffering from anguish, sorrow or defeat, I could see only one set of footprints, so I said to the Lord,

You promised me Lord,
that if I followed you, you would walk with me always. But I have noticed that during the most trying periods of my life there has only been one set of footprints in the sand. Why, when I needed you most, have you not been there for me?

The Lord replied, The years when you have seen only one set of footprints, my child, is when I carried you. " ( by Mary Stevenson, 1936 )

Tony,

Hope all is going better for you. If you need more than Faith, perhaps an anti-depressant can help. Four years ago, the doc. prescribed Lexapro for my Mom and it helped significantly. There may be even more effective medicine available now.

Best regards,
Sylvia

huessysignoret

Don't do it! I've been there, too. Get a good pain management specialist. There's life left, although I can't pretend I don't know where you're coming from.

huessysignoret

Tony -- I wish you could come to Statesville, North Carolina, and see Dr. Douglas Pritchard. Really, although I'm sure you need doctors for all kinds of reasons, you need a pain management specialist above all. You don't have to go through life in constant pain. I assume you're not opposed to taking pain-killers if they'll give you relief, and they will. There are other techniques that can help. You have my profound sympathy.

Pam

huessysignoret

The pain meds' mind-numbing effects don't last forever. You'll get acclimated.

nobonesaboutit

I am so sorry to hear all you've been thru. so many of us on this web site live daily with the pain not to mention other life threatening illnesses. there are others here that whether we want to die or not, don't know if we will wake up the next day. The good thing is that tho I am afflicted with so much, many of those days end up having something joyful happen. Not all days are like that, everyone in the world has bad days and good days. Fighting depression is difficult at times since I seem to be allergic to every anti depressant. You on the other hand- have you tried any of those meds and a couselor? It has to be a couselor you feel you connect with or it's useless, but it does help. I also find trying to distract myself with friends (I make myself go out) and once I'm out, realize how much friends help to laugh with. Forteo got me back on my feet along with my own rehab program of making myself go out to those big store that have carts for disabled, working up to walking and using a shopping cart to lean on, increasing the length of the walk just a little further than I thought I could go. No one can do this for you. It takes determination to try to have the best quality of life possible. Losing 70+ lbs helped to not have that strain on my back. All this determination from a person that is one point away from being put on a transplant list-but won't be put on it due to my other medical conditions. It's not easy for any of us to live with osteo, I lost 4 in in height, have a hup on my back, pain, a belly that sticks out of my 118 lb frame. I'm sure others on this site have their other problems and it is tough to deal with- are you up for the fight?

Add to the discussion

Don't have an Inspire account? Join now!

Forgot password?

OsteoporosisNOF: Download NOF's new brochure Hormones and Healthy Bones @ http://bit.ly/3Yg7tq

OsteoporosisNOF: NOF's CFC information: CFC #:11043; Osteoporosis Foundation, National

OsteoporosisNOF: NOF announces the launch of their Combined Federal Campaign (CFC). Visit www.nof.org.

OsteoporosisNOF: Need information on osteoporosis? Visit NOF's Web site at www.nof.org or email request@nof.org. NOF can send you free educational materials.

OsteoporosisNOF: Volunteer to start an NOF support group to help yourself and others with osteoporosis in your community. Call (800) 231-4222 to learn more.

Group leaders

You