2 Recommendations
Hello
My name is Sarah, I am sstarting a support group in Paris, Il and one in Terre Haute IN and information or support from other group leaders, I will appreciate.
Hello
My name is Sarah, I am sstarting a support group in Paris, Il and one in Terre Haute IN and information or support from other group leaders, I will appreciate.
Hi Sara: Good for you starting a support group in your area. I considered this very thing several years ago, but at the time I went around to the osteo docs to find out how many people might be interested, without much luck. What I found out, in my area, was that most who would be interested couldn't drive or were in wheel chairs, and I never came up with a solution to that as far as transportion goes, since I'm limited physically myself.
In any event I didn't follow through on it, and am so happy you are making the effort!!! I hope it's a great success, and would love to know how it all pans out. Since you live in a metro city, I would imagine you would get more interest than I did living in a small town without public transportation. Could you keep us posted on this, and what your plans are for the group?
Again, I hope it's a great success, and am sure you'll get some advice from others who are familiar with this type of endeavor. I have an friend who started one in Northern CA, but I haven't talked to her recently on how it all is going.
Hello Sarah,
I'm hoping to start a support group in north Dallas, Texas. Perhaps we can share ideas and keep in touch on how things go?
Jennie
Hello windblown
I have many ideas for the group. from the facts to exercise, diet, medicine , basically I would like to cover it all. One of the support groups will be help in a rual community . The other is in a little larger city.
I will keep you posted on my progress . I also have plans on doing speaking at community events to highten the awareness about osteo. I would like to add you to my friends list and keep in touch. I am sorry you did not have good luck with your support group. Any ideas are thoughts I will gladly take and use.
Hi Jennie
I am glad to hear that you are starting a support group. I would like to share ideas and share in each other progress. We can chat on here or by email. When is your first meeting?
Hi Sarah: Again I wish you all the luck with your new groups. I don't know that I could be of any help, but if you think I can, I would proudly provide any input you would like that falls into my strict guidelines for accurate and verifiable osteoporosis research. I always rely heavily on our wonderful professionals in the field, here at the NOF, since they've studied this disorder for many years and have clinical applications that are invaluable for all of us from real life experience, through their individual medical/rehab practices and years of education.
JennBBB: Kudos for your support group as well. We truly need more osteo awareness, disseminated through a caring and comfortable place where people can meet, make friends and get the answers they need to deal with this. Fear seems to drive many at first, for obvious reasons with this dx, so I hope you are able to turn that fear into strength & power through education!!! My favorite personal mantra SPTE.
hi windblown
You have aready been help you have gave me support and more people to contact. I hope you are okay today.
Add to the discussion