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Does anyone know anything about reclast iv? what happens if you have a reaction to it since it stays in your body for a whole year. what do you do then?
Does anyone know anything about reclast iv? what happens if you have a reaction to it since it stays in your body for a whole year. what do you do then?
yyI had a recluse infusion one month ago. My bones have never hurt so much. I am achy all the time. I thought it would only last 2 weeks, but I guess not. I have no idea if it is doing its job, but it certainly hav made me aware of osteoporosis. It is no longer the SILENT disease. I hurt every day. Anybody else who can assure methis is temporary?
My sister was very healthy prior to the Reclast infusion. Bone & muscle "aching" is an understatement. Her condition has gotten so bad that she now can't take care of herself at all!! Her doctor has done all testing and agrees that Reclast was the cause of her debilitating pain! Her doctor knows her well as he has been her doc for many years. So, this is definitely due to Reclast. The pain started right after the Reclast infusion was administered. It is so terrible! All the doctors know to do is prescribe other meds to reduce the pain. But, they can't produce meds to help her lift herself again and walk! I am sure we are going to see lots of litigation as a result of this med. But, it sure isn't going to help those affected by Reclast. My sister's infusion was performed in April 2008. Pain has continued to get worse and worse! Run, don't walk, away from this med!
I had the IV Dec. 8th and am still hurting. I was NOT given any paper work to read or information except (verbally on the phone) it does not affect the jaw like others, you will just have minor flu symtoms for two or three days and it only takes 15 minutes. I thanked the nurse (who later I found out she works for Reclast!) for making me feel comfortable about any side effects. I have fibromyalgia, chronic fatigue, Epstein Barr and was told the week before the IV that I had osteoporosis -2.5. The flu symtoms were horrible, extreme pain in arms, wrists and hands. My wrists and hands swelled up two weeks later, I went to the doctor and he refused to say it was the Reclast. I went to him two days ago and he still will not believe anything. I still have extreme pain, feeling like I'm on fire inside, extreme fatigue, my legs don't want to hold me up for long and have not been able to do much of anything each day. I can no longer hand write without pain and I made jewelry (last 5 years) including seedbead work and now I can't so far. What are we to do? I really don't know who to go to for any help. The nurse that gave me the IV said she had another patient the previous week with fibromyalgia had the same reactions as I did.
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