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Does anyone know anything about reclast iv? what happens if you have a reaction to it since it stays in your body for a whole year. what do you do then?
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Reclast iv
- By bratt
- Posted November 20, 2008 at 5:21 pm · 18 replies
- In Osteoporosis medications
- Shared with the public
18 replies
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- Newest first
- By pain
- Posted November 20, 2008 at 9:49 pm
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yyI had a recluse infusion one month ago. My bones have never hurt so much. I am achy all the time. I thought it would only last 2 weeks, but I guess not. I have no idea if it is doing its job, but it certainly hav made me aware of osteoporosis. It is no longer the SILENT disease. I hurt every day. Anybody else who can assure methis is temporary?
- By morning132
- Posted January 5, 2009 at 12:22 pm
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My sister was very healthy prior to the Reclast infusion. Bone & muscle "aching" is an understatement. Her condition has gotten so bad that she now can't take care of herself at all!! Her doctor has done all testing and agrees that Reclast was the cause of her debilitating pain! Her doctor knows her well as he has been her doc for many years. So, this is definitely due to Reclast. The pain started right after the Reclast infusion was administered. It is so terrible! All the doctors know to do is prescribe other meds to reduce the pain. But, they can't produce meds to help her lift herself again and walk! I am sure we are going to see lots of litigation as a result of this med. But, it sure isn't going to help those affected by Reclast. My sister's infusion was performed in April 2008. Pain has continued to get worse and worse! Run, don't walk, away from this med!
- By kiminaz
- Posted January 7, 2009 at 1:55 pm
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I had the IV Dec. 8th and am still hurting. I was NOT given any paper work to read or information except (verbally on the phone) it does not affect the jaw like others, you will just have minor flu symtoms for two or three days and it only takes 15 minutes. I thanked the nurse (who later I found out she works for Reclast!) for making me feel comfortable about any side effects. I have fibromyalgia, chronic fatigue, Epstein Barr and was told the week before the IV that I had osteoporosis -2.5. The flu symtoms were horrible, extreme pain in arms, wrists and hands. My wrists and hands swelled up two weeks later, I went to the doctor and he refused to say it was the Reclast. I went to him two days ago and he still will not believe anything. I still have extreme pain, feeling like I'm on fire inside, extreme fatigue, my legs don't want to hold me up for long and have not been able to do much of anything each day. I can no longer hand write without pain and I made jewelry (last 5 years) including seedbead work and now I can't so far. What are we to do? I really don't know who to go to for any help. The nurse that gave me the IV said she had another patient the previous week with fibromyalgia had the same reactions as I did.
- By Tom-WI
- Posted January 10, 2009 at 8:07 pm
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Hi KimInaz,
I think your dr is in denial. You might want to print out all these other posts from people with similar symptoms and that have more honest doctors. You could show him/her that you are not making this up! It really gripes me when doctors treat patients that way, especially women patients. Good luck,
Tom
- By murjone
- Posted January 11, 2009 at 10:26 am
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I guess I am going to be the only one to write about the fact I had NO problems with Reclast. I had very mild flu symptoms a week after the infusion and that was the extenct of my reactions. I would have no problems recommending it to others. To me this is the answer to treating my osteo. I hope there are others out there that had no problems that will write about their experience. For me it was great.
- By Anne_
- Posted January 11, 2009 at 10:58 am
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I just had the Reclast Friday. I drank the water & took the tylenol as directed. I have had no pain or discomfort. Someone that my husband works with has terrible pain for 3 days after so I was a little nervous but so far nothing. Do you need to have pain for it to work or is there pain yet to come??? I guess everyone has different affects & I'll have to wait and see.
- By CONCERNEDLADY
- Posted January 11, 2009 at 4:25 pm
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I have read nothing but horror stories since I was first told to take the reclast almost a yr ago. You cannot get it out of your system once it is given. If you have not taken any of these drugs by mouth ---DO NOT TAKE THE RECLAST. When I refused the reclast they put me on Actenol. I took it for 5 months. Each month my pain became worse and worse. I didn't realize at first it was coming from the Actenol. Then I called my drug store. They advised me to get off and see what happens. I did and a month later felt like a new person. If I would have taken the reclast , I know I would have ended up in really bad shape. My Dr. did agree that the pain came from the Actenol. If you take any of these meds and start getting more or new pain , contact your Dr. immediatly. I am sorry that these Dr.'s and the FDA is not more in tune with what they are giving to us.
- By CONCERNEDLADY
- Posted January 11, 2009 at 4:27 pm
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Depends on the reaction. If you have flu like symptoms , they should go away. If you have joint pain your stuck with it for at least and yr probably longer. That is not my opinion, but what I was told by a Dr.
- By kiminaz
- Posted January 11, 2009 at 9:03 pm
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Thanks, Tom, I did print out the info from the Reclast website and he still would not comment. I had the IV 12/8 and 1/7 I finally got over the weakness but I still have numbness in my fingers and pain and tingling in my left arm, wrist and hand. Of course, I'm left handed. :-)
I am really happy for everyone that is okay with the Reclast, I thought I would be also! It is hard to not talk against the IV with what I went through.
- By sweetie
- Posted February 21, 2009 at 7:22 pm
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I also had the IV Reclast done last year in April. I have not had any problems with it. But I am concerned about getting another one done this April. I have always had problems with my teeth in the past and am afraid of getting ONJ. The Dentist that I go to told me that the jaw bone mass never goes back to the way it was before taking any of the oral meds. or Reclast IV. That is hard to believe. When I took Actonel it messed up my stomach so I have to take stomach pills for that.
- By Tricia2
- Posted February 22, 2009 at 11:56 am
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I just had my second dose of Reclast on Wednesday. My bones have definitely improved in the last year since I rec'd my first dose. I see my dr. on Monday to see when I should have my next DEXA so I know exactly how much improvement I have had.
After reading every horror story on here, I was really afraid to get to the IV on Wed., but know it has improved my life in the past year. I have muscle pain alot, but I know its due to things I do and push myself too hard. I can pinpoint everything. Plus when my spine collapsed from all the compression fractures, I lost a total of 3" of height, so everything was pushed down thru the middle of me. I know that has alot to do with my muscle pain too.
I felt Reclast was the only option for me at the time to start getting my life back together. I'm not going to sit around and complain about whats wrong with me, but figure out how I can get better and not live my life for this disease.
I had the flu like symptons really bad when I took the Reclast last year, but this year was just a bit achy, and was able to function like any other day.
- By karen698
- Posted February 22, 2009 at 2:55 pm
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I had my first Reclast IV in August '08. I have had no problems. Did it help? I don't know. My next DEXA will be soon. Keeping my fingers crossed
Karen698
- By murjone
- Posted March 10, 2009 at 10:16 pm
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I think I forgot to mention maybe a big difference I am finding between how I was prepared for the Reclast infustion. I had the paperwork that told me to drink 2 quarts of water before. Not only was I to drink a lot of water my Dr. gave orders for 2 pints of fluids by IV before the Reclast IV. The nurses even called my doctors office to let them know I had drank a large amount of fluids before I had came in that morning and were wondering if I could forgo the Fluid IV's. Dr. was firm that I get the 2 pints of fluids BEFORE I got the Reclast IV. This could be the reason for my sucess with Reclast.
- By iola
- Posted March 11, 2009 at 10:19 am
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I took it, so far unlest the need for driking lost of water every so often. what i am mad about no one toll me to drink lots of water befor or after. i took it in nov 08 can i still have problems to come ?
- By badhip
- Posted March 24, 2009 at 8:54 pm
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I am just one week out from having Reclast for Paget's disease. I've had the flu symptoms and some increased pain in my Pagetic hip but I think that is to be expected with my disease. I'm confident it will get better. I'm concerned that none of you talk about how important it is to take you calcium and Vit.D. Reclast keeps the calcium in your bones so you have to keep you blood level up from food or supplements. Please be sure you are taking your supplements in amounts recommended by your doctor.
- By really
- Posted March 25, 2009 at 11:15 am
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My doctors said this drug is still considered "experiemental" by most doctors and not recommended until more clincal trials have been completed. They were very opposed to this drug being used on live patients! Thank goodness I have knowledgeable doctors
- By iola
- Posted March 25, 2009 at 12:15 pm
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Did any one have the jaw or face hurting ? This past week i have this hurting in the face on one side.
i took reclast on Nov 8th, i have falst teeth but don't thank that causing the hurting i say hurting cause it not real painfull please any one out there can give me a reply ? Thanks
- By jshu43
- Posted March 26, 2009 at 11:06 pm
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Oh, I came to this site to check and see of anyone else had problems with Reclast. Seems like they do. I had a Reclast infusion a week and a half ago and have been gritting it out. I've been in so much pain I am basically balled up in bed in agony unless I down several pain pills. I was told two weeks was the outside limit of side effects - I thought I just had to hang on for a few more days. Hopefully this won't last a year or I'm in trouble.
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