Reclast IV = Pain

I had the Reclast IV Dec. 8th and am still hurting. I was NOT given any paper work to read or information except (verbally on the phone) it does not affect the jaw like others, you will just have minor flu symtoms for two or three days and it only takes 15 minutes. I thanked the nurse (who later I found out she works for Reclast!) for making me feel comfortable about any side effects. I have fibromyalgia, chronic fatigue, Epstein Barr and was told the week before the IV that I had osteoporosis -2.5. The flu symtoms were horrible, extreme pain in arms, wrists and hands. My wrists and hands swelled up two weeks later, I went to the doctor and he refused to say it was the Reclast. I went to him two days ago and he still will not believe anything. I still have extreme pain, feeling like I'm on fire inside, extreme fatigue, my legs don't want to hold me up for long and have not been able to do much of anything each day. I can no longer hand write without pain and I made jewelry (last 5 years) including seedbead work and now I can't so far. What are we to do? I really don't know who to go to for any help. The nurse that gave me the IV said she had another patient the previous week with fibromyalgia had the same reactions as I did.

By CONCERNEDLADY
Posted January 12, 2009 at 5:57 pm
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I am very sorry you have so much pain. I was told to take reclast as well. I was also given no information. Luckily I did massive research on it and discovered just what you are saying. Since then I have read so much more. I even had the nurse tell me at the Dr.'s office , that people are getting very sick on this medication. She told me not to say she told me. I think it is a disgrace that more information is not provided. I still say it is all about money. They are making a fortune with these infusions. I hope your pain goes away. I am sorry I could not reach you before you had the fusion.

By ejoyce
Posted January 12, 2009 at 6:21 pm
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My understanding is that Reclast is a once a month iv infusion of the same bisposphante as Zometa, used for cancer patients with bone metatestes. Zometa contributed to ONJ (jaw bone death) that my husband is now suffereing with. ONJ is not something to be taken lightly.

By CONCERNEDLADY
Posted January 12, 2009 at 10:50 pm
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Hi ejoyce,

Yes it is a bisposphante. It is a once a yr infusion. According to my Dr. it takes longer then a yr to get it out of your system. So that is not good if you have a reaction.

By Duchess3
Posted March 23, 2009 at 11:05 am
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I had the Reclast infusion on Feb 17 and have had some slight body aches. What has been bothering me constantly is my teeth and jaw has ached. Even a couple of days ago, I thought the pain was subsiding but yesterday I sure felt it. I was wondering if anyone has experienced teeth pain or discomfort? I am very concerned about the ONJ (as mentioned by ejoice). I had lots of bloodwork to make sure I was a candidate for the Reclast but I hope I didn't make a mistake with this one.

By AnnMetalWoman
Posted March 23, 2009 at 2:04 pm
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I was prescribed Bonita. It is the once a month pill. I endured the same symptoms. I told my doctor about it. He said try in for one more month and if I have the same reactions, he will change my script.

Why do they make such dangerous meds that make us suffer even more, rather than giving us relief from our forever pain?

Annie

By iola
Posted March 28, 2009 at 10:20 am
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Hi Ejoyce, I had Reclast infusion in nov Had no side affect till now my Jaw has been hurting the pass week not bad. have false Teeth for menly years i was wondering what is the pain U Husband stared with what do they do for him?

By Milford
Posted April 22, 2009 at 8:42 pm
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You certainly have my sympathy.
I had my reclast on Nov.17 and have had pain 24/7 since then. The pain moves from place to place, from my hips all the way to my feet, from there to a shoulder to a hand or a knife in my back.The most frightening time is when it moves from my neck to the top of my head, closing my hearing,blurring my vision and increasing pain in my facial and jaw bones.I have small sores over most of my body,am tired, walk with a strange gait,have a cough,thinning hair, itchy skin and scalp and have just had tests confirming Atrial Fibrilation. No one has a clue as to how long it will last, one doctor said it might last the rest of my life! (I didn't need to hear that!!) It is what MAY result from all of this that is frightening --- a stroke from the Atrial Fibrilation,renal failure and the worst one, necrosis of the jaw !! Once the zoledronic acid is put in the blood stream there is no antidote and np way to remove it. I was my doctor's first patient to have it and he says he will never prescribe it again.

By ZeriZ
Posted October 16, 2009 at 5:46 pm
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A friend is about to start Reclast, but is concerned about the possible side effects, and asked me how I was doing on it. She said that once it's in, it's in. So I looked up "Reclast - antidote" and found this site and these posts. It is usuually true that when something is going well, you don't hear about it, so I want to be heard.

I received my first Reclast infusion about a year ago; my second is scheduled for next week. I was healthy when I first got it and continue feeling good. I am a competitive ultra-distance runner whose race times are still improving. I am not aware of having any side effects or adverse reactions. I've had a couple of minor surgeries in the last year, so have had blood chemistries and an electrocardiogram (EKG) each time, which have been normal. I do not doubt that others who have posted here have had terrible experiences after Reclast, but I also know there are many whose experiences are positive - but they aren't online researching the negatives, so anyone looking here for hopeful information won't see posts from them. I do hope all of you feel better soon. Zeri

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