Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Osteoporosis caused by Ehlers Danlos

0 Recommendations

I was recently diagnosed with osteoporosis and it might be caused by a condition caused Ehlers Danlos. Has anyone else experienced this? i'm only 26 years old.

Explore topics in this discussion:

Osteoporosis

2 replies

and to add to that, I have broken two bones in 6 months...I worry about what is going to break next...

There is a strong possibility that I have Ehlers Danlos.
My daughter was diagnosed with it and it is said to come from one of the parents. I do have some of the
symptoms. Now, at 73, I have severe osteoporosis.
There are so many things that can be attributed to
my osteoporosis.

Always tell your healthcare professionals about the
Ehlers Danlos. (although I always tell mine and they
ignore it). Eight months ago I went to a new
physical therapist. He had me lie down while he
pushed very hard against my hip for ten painful minutes. (I was limping while recovering from
a fall that led to a hip replacement the year before).
He said he pushed on my hip to break down connective tissue. Well, he broke it down all right.
He upset my balance and, two days later, I fell (I didn't
trip. I fell). I got a severe compression fracture of
the spine and have never been the same. An attorney
assured me that there was no use trying to sue. Had the physical therapist paid attention when I told him I had Ehlers Danlos, he hopefully wouldn't have pushed my connective tissue. So please, tell them and remind them again and again.

Add to the discussion

Don't have an Inspire account? Join now!

Forgot password?

OsteoporosisNOF: Download NOF's new brochure Hormones and Healthy Bones @ http://bit.ly/3Yg7tq

OsteoporosisNOF: NOF's CFC information: CFC #:11043; Osteoporosis Foundation, National

OsteoporosisNOF: NOF announces the launch of their Combined Federal Campaign (CFC). Visit www.nof.org.

OsteoporosisNOF: Need information on osteoporosis? Visit NOF's Web site at www.nof.org or email request@nof.org. NOF can send you free educational materials.

OsteoporosisNOF: Volunteer to start an NOF support group to help yourself and others with osteoporosis in your community. Call (800) 231-4222 to learn more.

Group leaders

You