On July 1st 2009 I was called to inform me I have a 6mm mass (tumor) growing in my pituitary gland. Boy oh boy the hits keep on coming. I was feeling better but this really takes the wind out of my sails. I have been fighting so long and hard that this feels like a mortal wound. I am working on picking my head back up and continuing forward. My wife and little ones deserve it and depend on me so much that to fail is not an option. I have noticed nerve ticks in my hands and body but never put two and two together. I am super tired and have started taking Testim to try and replenish my testosterone which is super low right now and I have been told it is causing my osteoporosis. I would not have guessed that it would take over two years for someone to look inside my head and find a tumor. Really stinks when your expecting the 7 or 8 doctors who are working you over to find something to try and tell you what the h@#$ is wrong with you. Hope this finds everyone else on the up and up. Please take this information and use it if you need it or can. I was at the point where no one could tell me what was wrong with me. First they diagnosed the Osteoporosis, then they determined the low Testosterone levels. In searching for a reason for that they found this mass in my ptuitary gland. So I only hope this can help someone else shortcut all of the time spent trying to figure it out and more time working on getting better. My kids do not know anything yet, now is not the time to tell them-still too much to find out myself. I know this is not your normal discussion format or style, sorry for that. I just wanted my story told and hopefully made useful too others. Thank you-- Keep up the good fight and don't ever give up:)
"It is not always the obvious enemies in which we engage our battles" -K. Alves Jr. 7-5-09
KRAJR427
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Osteoporosis and Pitituary Tumors
- By Krajr427
- Posted July 5, 2009 at 12:38 pm · 7 replies
- In Men with osteoporosis or osteopenia
- Shared with the public
- Edited July 5, 2009 at 2:04 pm
Explore topics in this discussion:
7 replies
- Oldest first
- Newest first
- By Krajr427
- Posted July 5, 2009 at 12:43 pm
- Report post
I am not sure if everyone with osteoporosis has a chance of having a tumor or not I just wanted everyone to know about this part of the issue and the possibility that it could be part of their issues.
- By osteochick
- Posted July 5, 2009 at 7:44 pm
- Report post
I am sorry you have to go through so much. Was it found via an MRI? Two years ago I had an MRI and was told that my pituitary was slightly enlarged, and to check it again down the road.
How bad is your osteoporosis? What other symptoms did you have?
If you don't mind, please share some more information.
Thank You!
- By iola
- Posted July 6, 2009 at 10:59 am
- Report post
Krajr427, Hang in there you not going any where for a long time. See all good Dr. The word for today, fight.
- By SusanRae
- Posted July 6, 2009 at 8:31 pm
- Report post
Hey Krajr46 ~
I am so sorry to hear about your problems. Having a mass on your pituitary must be really scary. I hope that you have a successful resolution of your condition, now that you finally have an idea of what caused it.
Have your doctors checked your cortisol levels? I had a tumor on my adrenal gland which caused it to produce too much cortisol--basically I overdosed on steroids for 8-10 years, causing OP and more (Cushing's Syndrome). The pituitary gland can get a tumor that produces too much cortisol as well (Cushing's Disease). It can really mess things up, as you have discovered.
You might take some time and look around the different discussions on this web site to see what other people are doing about their osteoporosis. You'll see discussions about medications, supplements, exercises, and so on. There are many different opinions on every topic.
Welcome Aboard and Best wishes.
Susan
- By Krajr427
- Posted July 9, 2009 at 6:44 pm
- Report post
Hello,
Thank you for your support. They found the mass with an MRI + contrast. My OP is averaging -2.5 t-score with nothing better than -2.4. I had many symptoms and cannot even remember them all. Aches, pains and many more that didn't go along with the norm. I had serious stomach and chest pains with violent non stop vomiting and near loss of consciousness(I think I spelled that wrong). I was acused of being a pain medicine addict by everyone except my wife who watched me fall apart first hand. I really wish some people could feel what I feel just to let them realize how horrible this can be. But then again I would not wish this horrible pain and discomfort on anyone! Thanks again and I hope all is going well for you. Are you in the same boat as I?
- By Krajr427
- Posted July 9, 2009 at 6:54 pm
- Report post
They are checking my Cortisol levels as we speak. It is really scary to think about this, but I cannot nor will I give in. Thank you for your interest and support. I thank everybody for their support.
Krajr427
- By SusanRae
- Posted July 9, 2009 at 9:50 pm
- Report post
Hey Krajr ~
You're too young for this. I hope you get some answers soon so they can figure out what's causing your pain, O.P, and everything else.
I have absolutely no medical credentials and no PubMed studies to back me up, but I would guess that your cortisol's not abnormally high. Cortisol functions as an antiflammatory/pain killer (among many other things), so if it were high my guess is it would dull your pain. I had high cortisol and even though I broke 6 bones at 5 different times, it didn't hurt bad enough to make me cry. I had my own built-in pain killer.
Keep in touch.
Susan
Add to the discussion