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Mainstream going anti-bisphosphanates

huessysignoret
1 Recommendation

An oral-surgeon friend of mine recently returned from a convention of his peers. One of the speakers detailed at great length the objections many of us have raised against bisphosphanates -- and said the injections were worse than the pills. He warned about jaw necrosis, increased pain, killing off osteoclasts, creating old, hard, but not necessarily stronger bone, and urged his colleagues to warn their patients away from the drugs. Has anyone else run across main-stream opinions giving a thumbs-down to bisphosphanates?

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54 replies

bettyrenshaw

YOU HAVE THE WORD====IT IS COMING OUT AND THIS IS THE BEST OF WAYS ==PASS THIS ON- AS FAST AS YOU CAN---THIS IS WHAT INSPIRE SHOULD BE TOTALLY AND COMPLETELY TELLING OTHERS.......DONT HUSH ON WHAT YOU ARE FINDING HERE. I SEE NO REPLIES YET AND THAT IS BAFFLING === DONT BE QUIET ==

IT IS ALL HERE==ENLARGE ON WHAT YOU HAVE HINTED THAT YOU CAN TELL. THIS IS THE PLACE...

sdivas

Your post is interesting. I would want to know the guest speaker background and the basis of the speakers statement. I've attended NOF clinician meetings with guest speakers that are working in the front lines of osteoporosis care.

sdivas

Bettyrenshaw, I respect your opinion, however Inspire is the host for The National Osteoporosis Foundation. Please, at your convenience, check www.nof.org. You will see that NOF only gives information, but does not advise regarding medication. The InspireTeam is here to provide health communities for chat; not to advise. You may be interested in reading NOF's journal postings on the community. Thank you.

bettyrenshaw

sandi
...Hussy's subject is the suggested 'OSTEOPOROSIS MEDICATION' one of the NOF standard subjects..


are you saying;
DON'T PAY ATTENTION--- TO THE WORDS OF THE CONVENTION OF THE PROFESSIONAL
SURGEON AND HIS PEERS?. THAT THIS IS NOT THE PLACE TO PASS ON TO ANY ONE WHO MIGHT NEED TO KNOW THEIR FINDINGS? -- THAT NOF DOESN'T WANT THIS ''INFORMATION'' KNOWN? THEN HOW, MAY WE MAKE USE OF DISCUSSIONS ,AND, WHAT PART OF MY REPLY CAN BE MISUNDERSTOOD AS ' MY OPINION'?

drizzit

Betty, it is hard to read in all caps. Had to get my glasses lOL

I also would want to know who the speaker was and his/her credentials and research data to support the conclusions.

I don't doubt it occurred but there are a lot of speakers at conventions and some are good and others I can never figure out how they got to talk as an expert since they had no qualifications and little supporting data.

But then I am a doubter about most claims on both sides of the discussion until I see real evidence. I have turned down reclast for now but I am not sure I buy all the positive or negatives on the med yet.

bettyrenshaw

drizz

caps are imposed.
my numb small finger, left hand, dominates the caps, and my eyes concur in lieu of tiny font.

i think that the speaker's basis is clearly open and specific; warming-- to be passed on to patients- '' away from the drugs''

I will say that, I for one, can be sure the speaker in question is not affiliate to FDA OR PHRMA.......

drizzit

Betty

Sure but what is the affiliation then, if there is one. I see speakers who speak against the evils of drugs then you turn around and they are selling some natural solutions that compete with the pharma drugs. Their motives are very very suspect at best and it is usually to make a buck.

Sorry I need to know who it was, supporting materials, and their credentials before I buy into the advice.

thanks for the cap explanation. now I understnad.

bettyrenshaw

Hussy, Drizz, Sandi


eMJA: Bisphosphonates and osteonecrosis of the jaw
The Adverse Drug Reactions Advisory Committee (ADRAC) has recently received 13

I SOUGHT: DR GOOGLE and the answer to your question on the Authority of the Speaker at the
Convention===looks like She might well be --- AUSTRALIAN.

bettyrenshaw

Hussy, Drizz, Sandi

dr google's article is lengthy and ends with ;

Also, it is important for patients to be informed of the risk of this complication of bisphosphonate therapy, so that they have the opportunity to assess the need for dental treatment before starting therapy.11 It is not known at this stage whether discontinuing bisphosphonates before major dental procedures can help prevent the problem, but, given the persistence of bisphosphonates in bone, it is unlikely. Prescribers should also be aware that osteonecrosis of the jaw can occur in association with oral bisphosphonate therapy for osteoporosis.

sdivas

Thank you Bettyrenshaw for the information. It is important we make our dentists aware of our bone loss so any necessary precautions may be taken during procedures. Since I've been on meds, I've had major dental procedures done without any problem. However, my dentist does an antibacterial rinse prior, during and after all procedures. But of course, every person is different. NOF and the ADA worked on a brochure that is now available for all dentists to have in their office. Dentists only have to contact the ADA and request the brochures. Sandi

April995

Sandi,
How do Dentists know about your information?
I personally do not think they have the time to find this site!

I have a very good friend that I grew up with.
A few months ago, she had her second tooth pulled.
Her Dentists ask her after he pulled her second tooth, are you taking Fosamax (sp?)? she said yes, and he told her the side effects about her teethetc.
Her Dr. that perscribed the drug never told her the side effects about her teeth, which she has always taken care of , and had beautiful teeth.
She Stop taking Fosamax (sp?). Besides her bones at first where getting better , so her Dexa showed, but then started to get worse on Fosamax.
She eats good, Takes Vits, has a Trainer, and a P.T.
I know everyone is different, but in the end, the results from what I have been reading about Osteo Drugs, are starting to show negitive.

I personally, would like to see more testing before all these drugs are given out, and like to see more alternatives.
I don't think we see too much testing on alternatives , cause there is not as much funding, or money to be made. Drug Co. have the Monopoley on research, cause they have so much money, and are able to advertise.

I know for a fact, the Drug Co. send out there Reps to Drs. offices with lunch, if not tables full of food, along with there Drug samples for Drs.
I don't think Alternatives cures can afford to do that!

huessysignoret

sdivas -- I will ask my oral aurgeon friend about the speaker's creds.

huessysignoret

sdivas and others about the oral surgeon: I forgot to mention that he said the speaker also alleged that the makers of Fosamax had suppressed negative reports much the way the makers of Vioxx had done. Also, there seems to be some misunderstanding about the intent of my post. I was noting that someone a mainstream oral surgeon had attended a speech by someone he considered mainstream, and was interested that mainstream opinion may be rejecting bisphosphonates. I was further interested in knowing whether others knew of mainstream docs who were beginning to advise against them. My own opinion, from person experience and reading posts of this site, is that bisphosphonates produce hard, old, brittle bone, plus necrosis, plus pain, plus esophogeal problems, and do not produce new, stronger, younger bone, but I have no medical credentials at all, and am just searching for reliable information.

huessysignoret

For sdivas and others who asked, my oral surgeon friend gave me these details about the anti-bisphosphanate speaker at his convention: the speaker was Dr. Robert E. Marx, Professor and Surgery Chief of the Division of Oral and Maxillofacial Surgery at the University of Miami. The occasion was the 2009 North Carolina Society of Oral and Maxillofacial Surgeons Annual Meeting. “Topics in the Tropics”-Bisphosphonate Induced Osteonecrosis of the Jaws (BIONJ). You should be able to Google more info about him. I'm still interested in knowing the names and creds of any other mainstream physician, in any field, who is expressing doubt about bisphosphanates.

bettyrenshaw

huessy. i ddnt mean to call you hussy. your letter threw me into 'rush mode'..

YOUR CLEAR, CONCISE RELATING of what DENTISTS are doing==as of the 2009 convention is being
qualified in the right place for members who have continually asked for help about these drugs.

and on google , every drug is named; labeled, with up to date clinical proof that surpasses earlier 2005 clinician meetings and findings,

Huessy, you have successfully answered the many members questions and much more. You deserve an AWARD. You have left nothing unsaid; the search from here is theirs. Else you may be next asked of your credentials. smile~

like you, I have not taken these drugs but I have spoken, and I urged you--speak in behalf of those who are in the way of the danger.''and too--
I know of the trays of food and gifts to doctors by 'pill peddler'---- waiting rooms are filled with them.

April995

Huessy thank you for that important information about Osteo Drugs.

I seems to me, when someone takes Boniva, actenal (sp?) or any of these types of drugs and does not have side effect, such as being ill, etc. they never look any farther to find out if there is side effects down the road, so to speak. Also they do not know to mention to there Dentists what there taking, and they do have Osteoporosis.
To be honest, I didn't say anything to my Dentist either, and we are good friends socially.
I didn't know it was important sinse I was not taking any drugs for it, and I don't like being a winer
Thanks Sandi for that info, I will tell him now.

I have found this is the only group of people that is interested in search for postive and negitive effects of these drugs.
Also what are Altertatives..

Thank you again for Sharing..
April

sdivas

April995, since I have chosen weekly Actonel; since 8/01, it seems I may be one of those people that will let you know if/when there are any long term effects.

April995

Thanks Sandi,
My question would be, how do you, or the Drs. at this point really know from taking Actonel or other drugs, if your bones are TOO hard, Which we are finding out is not good?
But your DEXA would come out looking like there is improvment in harder bones, or does it show bones that are filled in??

Does DEXAScans show the holes in our Osteo bones?
Has anyone actually seen seen there own DEXA/xrays so to speak what they look like?

You have been taking Antonel for a long time. how much of an improvment has it made in your bones?,
And what else are you taking/ Doing?

Take Care,
April

linnyd531

Hi Huessy,
Several months ago i spoke w/my internist about my dexa findings and treatments available. He said that several of his orthopedic md friends are totally against bisphosphonates as they alter the normal dynamic of bone turnover rendering the bone more fragile in the long term...even though there might be improved density. In other words an increased risk of fracture especially seen with the thigh bones.

karen698

I took fosamax for 12 years and have had 2 Reclast infusions and have had no side effects.......no dental or jaw bone problems.

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