Hello, I'm in So Ca. I was diagnosed at age 50; (now 61, fracture free), told to exercise and take calcium. At the time, I was left on my own. I wasn't aware of any online discussion groups. I didn't have any clue about osteoporosis. When I began phoning hospitals; etc, my request for an osteoporosis support group or exercise group was followed with laughter or comments about going through menopause. I was in the -3 range hips/spine. I took the frustration and all the roller coaster emotions that many of us go through at first and used as motivation to advocate for myself. Although I eventually found an osteoporosis exercise/support group, I have continued to advocate; not only for myself, but for others with bone loss. So. Calif. has the Cordelia Knott Center For Wellness which focuses on cancer healing, but also has other programs and services; including Bones for Life which is based on the teachings of Dr. Moshe Feldenkrais. It may be helpful to phone any cancer wellness centers in your area. I haven't attended any of the classes to know what type of program Bones For LIfe offers, but at least, the cancer community has realized the need. Cancer patients that have been on chemo often have bone loss and cancer organizations tend to focus on the total person; the importance of a healthy mind, body and spirit. Somehow, bone loss has not yet been given the importance of focus in the same manner as cancer. I share your frustration, but I think for those of us with assertive personalities (smile), may be able to make a difference by not giving up, and continually requesting that bone loss be taken seriously. Please post if you have any success. Sandi
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