0 Recommendations
Is anyone familar with the Helen Hayes Osteo. center in NY. I live on long island . I have very severe osteo. i am 50 and it is hereditary.
Is anyone familar with the Helen Hayes Osteo. center in NY. I live on long island . I have very severe osteo. i am 50 and it is hereditary.
Jennielynn:
Although I am much older than you, I started in a program at H.H. in October of this year. I was diagnosed w/osteo when I was in my early 40s.
The program I am in is a clinical research study on postmenopausal women but I can not say enough good things about the staff and facility at H.H. They are located in W. Haverstraw, N.Y. They have many studies going on all the time and I would highly suggest that you call them and speak to them about your situation. I feel quite certain that they would be interested in hearing your history and perhaps they have a study going on for premenopausal women. They are just a phone call away and you have nothing to lose. I only wish that they had been available when I was first diagnosed.
I would be interested in what they have to say if you do contact them.
Good luck!
Ally
Ally
I'm also from L.I.
I have worked in radiology for many years there.
The center you mention has always been spoken of
VERY highly!!!!! Great staff .....Fine Docs ect!
If I had access I would certainly check them out.
I wish you well
Karina
Do you have a phone number or web link to them? I wonder if I could participate in the studies if I live in Illinois?
Karen
For information on the Osteoporosis Center, call 845-786-4318
For information on Osteoporosis clinical trials call 845-786-4828 or 1-888-70-REHAB Ext. 4828
Add to the discussion