any advice?

• By Strirun
• Posted May 31, 2008 at 5:43 am
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I would ask to have the 24 hour urine and a blood test to see what your Vit. D level is at and how much calcium your body is getting rid of. If the Vit D. is low that could be the problem. You need Vit D to help the body absorb the calcium. Perhaps you have had that done already and just did not mention it. If not, it is important to do so.
Sandy

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• By pgreene
• Posted May 31, 2008 at 11:40 am
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I was diagnosed at the age of 33 and have been on Fosamax for 12 years now. My scores have gone from -2.5 to -1.2 this January. My endocrinologist said it has been on the market the longest and studied the longest. But I'm like you - I will be taking it for many years and not sure what the long-term results will be.

Peggy

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• By windblown
• Posted May 31, 2008 at 6:27 pm
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Hi Pacer: I was dx'd at 30, but not with a t-score. I had a bone biopsy that showed osteoporosis. When I finally had a dxa, years later my score was -3.6.

Unfortunately no one can tell you what will work for you, but having a drop in score from loosing hormones is the norm. I went through early non surgical meno and wasn't put on HRT, so the general consensus was my bone declined as a result of that plus family history of osteo and other spinal probs.

During the years from dx to my first dxa I took supplements and exercised, but for me I didn't see an increase in scores until I took Forteo. I'm almost finished with this med and have improved a whole point. I started out on Actonel, but was switched to Forteo when my scores didn't improve.

I know lots of people that improve on HRT and supplements, bisphosphonates and other meds, so it's something that you'll have to decide on after determininig which is best for you.

I agree on the 24 hr urine test and some others like thyroid, parathyroid, and vit D tests to see if you have a secondary cause for this, which can be treated, but in a different way than with bone meds.

Good luck with your reading and decisions...

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