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They are going to start her on Actonel once a month. She took Lupron for 7 months for the endo and now has osteo. Is there anyone out there that has it or knows someone at such a young age?
They are going to start her on Actonel once a month. She took Lupron for 7 months for the endo and now has osteo. Is there anyone out there that has it or knows someone at such a young age?
Where is the start of this discussion?
Mother Goose
I don't understand the question of where this discussion started? I joined this web site to see if anyone knows anything about a 17 year old girl having t-2.6 bone density score, and the treatment for it.
Hi angelsmom: Sorry to hear about your daughter. Do you know if she has osteopenia or osteoporosis? I have a family member who took Lupron for endo and now has osteoporosis, but she's almost 40. I don't remember how long she took the Lupron, but I know it's not recommended for more than 6 mos.
Did her Dr discuss this possibility with you prior to rxing the Lupron? If the Lupron helped with the endo, then you would have to decide if that benefit outweighs the risk of osteo, but since we can't turn back the clock, I would do my best to deal with it without laying blame anywhere, and hope that the Lupron prevented severe endo problems for her. I realize she is young, which makes this even more heart wrenching, but young people get osteo too. I was dx'd at 30 but probably had it a lot longer than that and just didn't know it. I'm 54 now and my scores have gone from severe to normal, while taking Forteo.
There is also idiopathic juvenile osteoporosis, that occurs in children even younger than your daughter. I know there are some really young patients at the Osteo clinic I go to. I talked to the mother of a 6 year old that had this and was having many fractures, so I just hope there is medication out there for those who are pre meno and for boys.
Let us know how she does, and I'll keep her in my prayers with all the others here.
Here's a link to Drugs.com that explains how Lupron lowers estrogen levels, which *might* lead to bone loss.
http://www.drugs.com/lupron.html
Dear Angelsmom:
I am sorry, but it seemed you started out asking questions, but gave us little background with which to give you answers.
Did/does your daughter have eating disorders?
Is she an athlete who has stopped her periods for 3 months or more at a time?
Is she under the care of an endocrinologist?
How is her nutrition?
What sort of build?
Lupron is given for endometriosis, but only for 6 months because of the bone loss possibility. Endometriosis is such a nasty thing that at the time, you might not have paid attention to this possible side effect, BUT, "done is done"and go on from here.
This cannot be the first time such a situation has come up -- a healthy life style with excellent nutrition and varied physical activities/sports is the first line of defense. Good luck to you both.
Discuss this further with yur endocrinologist and if you do not get satisfaction, consider an osteoporosis center.
Lucy Buckley PT aka Mother Goose
Hi angelsmom: Since you started the thread, I assumed you were asking about your daughter. If not and you are looking for someone, use the search box above to look for a key word that would explain the post you are looking for.
Thanks for your prayers they are very much appreciated.Yes we did know the side effects before going on the Lupron shots, but it was a very slim chance that she would get osteoporosis. Our Dr. says it is reversible and it's different a 17 year old having it from a menopausal woman having it.The shots did help with the endo. She has been off them for 1 month and has had a period every 2 weeks and pain with it. He has started her on progestin and actonel monthly pill. The side effects from actonel have been really bad. She doesn't want to take it again. Does any one out theere have bad side effects from actonel? She is begging him for a hysterectomy, he says no way shes only 17.
Thanks for your response. Sorry for not giving enough info. I'm new to this. She doesn't have eating disorders, She is not an athlete, She has a very tiny frame. We just see our gyno not an endocrinologist. Would that be ago place to go?
Yes, indeed,an endocrinologist with special interest in osteoporosis AND young women/teenagers would be the person to seek out.
Depending on your location, you might want to consider an osteoporosis center -- usually connected with a teaching hospital. The National Osteoporosis Foundation (NOF) has a directory within its website -- to whom this site is attached -- that you might visit and search for possibilities.
Talk with your gynecologist about possible references. Do not blame him/her for what has transpired.
Good luck!
Lucy Buckley PT aka Mother Goose
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