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question re: lymphatic fluid in abdomen

Kalea
  • By Kalea · Posted April 21, 2014
  • Discussion in Living with lymphedema · 0 replies
  • My 11 yo son was diagnosed a little over a year ago with lymphedema. it is in his cheek, neck and arm. He has had chronic stomach aches for a while, has been tested for gluten issues and doesn't seem ...

Micro surgery

Tom184
  • By Tom184 · Posted April 21, 2014
  • Discussion in Living with lymphedema · 0 replies
  • I have lymphedema in my left leg and pelvic area. The exact cause is uncertain. Possibilities include that it was caused by my having multiple myeloma (a blood cancer), the radiation treatment I received ...

Is Running okay?

Rebeccca
  • By Rebeccca · New reply April 16, 2014
  • Discussion in Treatment and garments · 12 replies
  • Hi, Two months ago I had the lymph nodes removed from my right groin because of a Melanoma on my leg that had spread to the lymph nodes. My leg is still swollen and recovering. I was very active before ...

Looking for Doctors

Rebeccca
  • By Rebeccca · Posted April 15, 2014
  • Discussion in Treatment and garments · 0 replies
  • Hi- Does anyone know a good Doctor, therapist, or yogi in the Sherman Oaks/San Fernando Valley area that works with Lymphadema? Thank you ...

Any ideas on how to "borrow" a high-weight scale?

Barbara_I
  • By Barbara_I · New reply April 12, 2014
  • Discussion in Living with lymphedema · 4 replies
  • My 52-year old daughter is now home bound with lymphedema. She was told by her Primary Care doc that she had LE about 20 years ago. But finding knowledgeable professions in Indiana has been difficult ...

Have lymphedema and need knee replacement

chorkie
  • By chorkie · New reply April 7, 2014
  • Journal · 4 replies
  • I have primary lymphedema and need at least one knee replacement. I have been told by two different orthopaedic surgeons that it would be too dangerous of infection. I have tried the hylaronic shot which ...

Stomp Out Lymphedema - Fundraiser for the NLN's Education Campaign

NLN_Robin
  • By NLN_Robin · New reply March 31, 2014
  • Journal · 2 replies
  • The National Lymphedema Network is excited to announce our first annual Stomp Out Lymphedema virtual walk/run—a campaign that encourages patients to get moving and raise awareness about this often overlooked ...

night time compression garments

daisy144
  • By daisy144 · New reply March 30, 2014
  • Discussion in Treatment and garments · 9 replies
  • I am trying to get info on the type of night time garments that use Velcro to fasten around your legs. I currently have a set of garments that have been returned once for refitting but they still don't ...

Waiting for an opportunity (Esperando una oportunidad)

Altalymhpvida
  • By Altalymhpvida · New reply March 27, 2014
  • Discussion in Living with lymphedema · 8 replies
  • (Comentario en español al final) I'm Puerto Rican lareña living in Orlando. In August 2006 2007 to go I was confined to a bed, dependent on the care of my parents for cellulitis chronic in my right leg ...

Waiting for oportunity

Altalymhpvida
  • By Altalymhpvida · Posted March 26, 2014
  • Journal · 0 replies
  • I'm sad because I've been 10 months in orlando, where I moved in search of hope for my treatment. I have been denied medicaid 8 times, because I have no children, no I am 65 and because social security ...

If you have truncal lymphedema, do you have daytime compression that works?

RemRem
  • By RemRem · New reply March 24, 2014
  • Discussion in Treatment and garments · 12 replies
  • I'm always looking for new solutions for daytime truncal compression and I prefer compression T shirts, because they compress just about everything. Too bad what's out there tends to have shortcomings ...

It has been a little while

PattyLee5
  • By PattyLee5 · New reply March 24, 2014
  • Journal · 2 replies
  • I started out thinking my journal would be a reflection of my success with my Lymphedema treatment. The treatment was a win-win. But my follow up on my self care has not been. my garments for my legs ...

Kinesio tape

Asphalt
  • By Asphalt · New reply March 20, 2014
  • Discussion in Treatment and garments · 5 replies
  • Do any of you have experience with Kinesio tape for full leg lymphedema? I have just heard that the Kinesio tape can be used to control lymphedema. I have secondary lymphedema in my full right foot and ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

lymphatic cysts and fistulas

MyoJu
  • By MyoJu · Posted February 24, 2014
  • Discussion in Secondary lymphedema · 0 replies
  • I have secondary lymph edema in my legs for 23 years. It seems I have now developed 2 small fistulas which excrete lymphatic fluid from the skin of my thighs. Lymphorrhea? Does anyone have experience ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Wearing compression sleeve/glove while traveling to higher altitudes?

shgonza
  • By shgonza · New reply February 14, 2014
  • Discussion in Treatment and garments · 10 replies
  • I was diagnosed with Breast Cancer about 3 1/2 years ago. At the time, I was told to wear the compression sleeve whenever I traveled to higher altitudes and that I should continue to wear it while in ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

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About this community

The National Lymphedema Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the National Lymphedema Network, an Inspire trusted partner.