National Lymphedema Network Support Community

The National Lymphedema Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Five million

By Brian · New reply yesterday at 8:08 pm
Journal · 243 replies
Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Getting Diagnosed and Finding Treatment

By Swellgal64 · New reply June 4, 2013
Journal · 2 replies
I was finally diagnosed with Lipolymphedema after years of struggle just to get a doctor to admit that it was swelling and not "It's just adipose tissue!" For some reason most doctors do not want to address ...

Tighening of compression bandages

By Dorlah · New reply June 3, 2013
Discussion in Treatment and garments · 2 replies
Experiencing an increase lately with my bandages becoming tighter as the day progresses. I work as a PTA and on my feet a lot so I am use to some increase in tightness with my compression bandages as ...

Research and study programs associated w/ the lympathic system

By theresaann · New reply June 2, 2013
Discussion in Breast cancer related lymphedema · 3 replies
I would like to know if there are any research programs or study programs in the state of PA? I would like to participate in a research or study programs for lymphatic system and/or lymphedema of body ...

Circaid vs. Farroah

By Tri-girl · New reply May 29, 2013
Discussion in Treatment and garments · 1 reply
Hi there I was diagnosed with Lymphedema almost a year ago. It is primarily in my right calf and foot however I am being treated in both legs. I used the Farroah calf and foot piece and love it. To the ...

Solution for keeping thigh high support stockings up

By jlk57 · New reply May 26, 2013
Discussion in Treatment and garments · 10 replies
I recently was put into thigh high support stockings but am having a problem with them slipping. They slip then pool at the ankles and then I am in a lot of pain. Does anyone have any suggestions on how ...

Lymphedema and Joint Replacement Surgery

By ribolitto · New reply May 19, 2013
Discussion in Secondary lymphedema · 8 replies
I have arm and trunkal lymphedema as a result of breast cancer surgery, chemotherapy and radiation therapy. After trying all forms of non-invasive treatment for a knee with no cartilage, I am faced with ...

A new Inspire report in collaboration with Stanford Medical School

By Brian · New reply May 5, 2013
Journal · 84 replies
As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

The Inspire Q&A: Inspire talks with Deanna Attai, MD

By John2 · New reply April 16, 2013
Journal · 16 replies
Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people in this ...

MLD side effects and blood clots

By Tri-girl · New reply March 18, 2013
Discussion in Living with lymphedema · 3 replies
Hi there I have Lymphedema in my lower extremities. I was diagnosed last July after I had some reconstructive surgery. I have been managing with compression garments. In December I had a second surgery ...

General swelling of lymphnodes

By Pj58 · New reply March 14, 2013
Discussion in Newly diagnosed · 3 replies
Actually not diagnosed, no one will address the problem. Both supraclavicular nodes are swollen and now the back of my neck. Please some one tell me what causes this, they are not painful, just kind of ...

General swelling of lymphnodes

By Pj58 · Posted March 8, 2013
Discussion in Newly diagnosed · 0 replies
Actually not diagnosed, no one will address the problem. Both supraclavicular nodes are swollen and now the back of my neck. Please some one tell me what causes this, they are not painful, just kind of ...

Bandage Alternative Products

By NLN_Robin · New reply February 25, 2013
Discussion in Treatment and garments · 6 replies
Last week we published our first patient focused e-newsletter of 2013, Lymph e-Channel, with articles about bandage alternatives. I've been getting a lot of questions about these garments and wanted to ...

Hello - and how did you get diagnosed?

By franb · New reply February 11, 2013
Discussion in Secondary lymphedema · 6 replies
I had lost weight and was feeling good. Then in Feb of 2010, I had a bad fall. I started noticing my weight going up and my legs were getting bigger and bigger - and were spongy. I started seeing a podiatrist ...

Lymphedema and Weight Loss

By Adilah · New reply February 10, 2013
Discussion in Living with lymphedema · 7 replies
Hi, Has anyone ever experienced a decrease in the size of their afflicted limb by weight loss ...

The Inspire Q&A: Inspire talks with Lindsey Miller

By John2 · New reply February 6, 2013
Journal · 13 replies
We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients and caregivers worldwide. The people featured in our Q&A series ...

my case

By Rosalie728 · New reply January 30, 2013
Journal · 2 replies
I have had trouble with my legs swelling during the day but go down at night for years. Once in a while I would get blisters around the ankles that popped when I touched them and fluid came out. In Dec ...

We're hiring!

By Walter · Posted January 22, 2013
Journal · 0 replies
Hello everyone, We have a position open with our engineering team at Inspire, and I'd like to share the job description with you in the event you know just the person we're looking for. We found our most ...

Share your story to help others!

By NLN_Robin · New reply January 14, 2013
Discussion in Living with lymphedema · 3 replies
The NLN has a patient friendly, bimonthly e-newsletter called Lymph e-Channel. We are interested in sharing your experiences with LE, the good and the challenging. It’s great for others to know that they’re ...

Lymphedema Friendly Clothes

By lymphlady · New reply January 12, 2013
Discussion in Living with lymphedema · 12 replies
Trying to help a patient with lower extremity lymphedema find wide-legged pants. Does anyone know a good store or website that I can direct the patient to? I know that Nordstroms will assign a personal ...

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About this community

The National Lymphedema Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the National Lymphedema Network, an Inspire trusted partner.