what are the chances?

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Hoping someone can help me. I received my first abnormal pap in March '07, also tested positive for high-risk HPV. Then in Sept. '07 received another abnormal pap, gyno did a colposcopy/biopsy in Oct. '07, diagnosis--- carcinoma in situ (state 0 cervical cancer). I then had a cryo in Jan. this year. In June, I had a re-pap and it was normal. I read the discussions here and see so many women having multiple procedures done because their paps come back abnormal and other tests come back positive. Im just wondering what are the chances that this will come back? Are the chances high or low that it will come back? Also should I get a pap every 3 or 6 months? My gyno never said anything, and its so hard for me to communicate with him! I know I need to get another gyno. Just hoping that you all can help me, and provide me with some advice.

5 replies

Once you have the HPV virus you will always have the virus and it's a very common one. The majority of us are here because the procedures were uncessful in clearing up the dysplacia.
You should be getting tested every 3 months with a pap and the hpv test (papsure) until you get a few clean tests... if you are not then you may want to seek a second opinion. Did they follow up with any radiation?
My feeling about cancer is that it's not 'if' it comes back, it's when.... you need to be sure that you are being checked and if your doctor won't do it - find one who will!! Good luck, keep us posted!

bloodflowers, although there are many of us who have had multiple cervical surgeries, the majority of women will need only one to successfully remove the dysplasia and not have it return. that said, it's a bit unusual that your doctor chose to use cryotherapy rather than a leep. it's great to hear that your follow up pap was normal; you may want to ask if the hpv test was also negative. and, have you had an ecc done which takes a sample of the cervical tissue higher in the cervical canal than where they can see via colposcopy? that's an important test, to be thorough. and, yes, you want to find a doctor who will communicate effectively with you, along with having all the medical technical skills and knowledge. if (if!) you have an abnormal pap again, i would encourage you to see a gynecologic oncologist as they're the experts with cervical dysplasia/cancer. you've found a warm and supportive community here, so don't hesitate to ask questions, share, vent, etc. and let us know how you're doing!

hello, bethieboo. i'm sorry that you feel that it's not a matter of 'if' you'll develop cancer, but 'when'. i've had dysplasia, not cancer, and my doctors believe, and i agree, that i won't develop cancer as long as i continue to be closely and carefully monitored. and, it's been many many years that i've dealt with this. dysplasia's not great, but it's certainly much more easily resolved than invasive cancer. and, though there are certainly many women who need to have repeated procedures/surgeries, they're in the minority; most women who have a leep for their dysplasia do not need further treatment.

Thanks you both! I did not have a follow up with radiation. I am going to get a copy of my medical records to see exactly what has been done and what the results exactly were. I know I did not have an ecc, and now that I know about it, I will be seeking to have that procedure done because it is very important to me to be through when it comes to my health. Thank you so much! I feel so comfortable communicating with everyone here! I have nothing but love for everyone here!

is very important to me to be thorough*

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