I was diagnosed over two years ago with cervical cancer. Then treated with chemo and 6 weeks of external radiation and five internal radiation treatments. Now after two years I'm still having pain in the pelvic region which is worsening by the day. I'm also bleeding MUCH more than ever before on a daily basis. The weakness and fatigue are not subsiding as my doctors had said it would. My question is, has anyone else experienced these side effects this long post treatment?
I'm holding all of you in my thoughts and prayers. Fighting and surviving not only the cancer, but the side effects of its treatment is a tough road to follow, but together we can fight this horrible disease! I thank God every day to have each and every one of you, even though I don't post as often as I should.
~Penny
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Post treatment pain and bleeding
- By penny4
- Posted April 2, 2009 at 7:28 pm · 13 replies
- In Health challenges after treatment
- Shared with the public
Explore topics in this discussion:
Cancer Focal nodular hyperplasia Weakness Pain Menopause Back pain Depression Fever Cervical cancer
13 replies
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- Newest first
- By Lkrmpotich
- Posted April 3, 2009 at 11:49 am
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i finished my treatments last june rad. put me in menopause have no pain or bleeding.but had a ct end of jan and now they found a spot on my liver now im waiting to here about the ct and mri am scared to death
- By penny4
- Posted April 3, 2009 at 12:07 pm
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I was in menopause before I was diagnosed so I had no issues there. I've had several PET and CT's in the last 2 yrs and so far they found nothing new, but my body tells me different. I'm sorry to hear of the ct find, but try to stay positive. I know how hard that is, BELIEVE me, but it's essential. We're all here for one another. Let me know how you're doing...
~Penny
- By its_my_goliath
- Posted April 10, 2009 at 7:12 pm
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bleeding is not good. what has your post-treament follow-up been like?
- By timeout
- Posted April 13, 2009 at 9:40 pm
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I too am about 2 years post treatment for 2b and have recently started bleeding, not heavy, but worrisome. Doc appt in 2 weeks...
I have a queston-
Every time I have a pap it comes back with high grade dysplasia, but nothing is done about it.
Does anyone know the protocol for dysplasia after radiation/chemo/brachy therapy?
- By kyhunny
- Posted May 7, 2009 at 8:42 pm
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I am four years post treatment and I still have pelvic pain, lower back pain, hip pain and rectal bleeding. Pelvic exams, pap smears and CT scans all come back normal.
- By strength
- Posted May 28, 2009 at 11:53 am
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I am 2 years post treatment for 11b, ext and int radiation and chemo. I still experience back and hip pain, no bleeding. Recently had to go on full time sick leave again after attempting full time work for 7 mos. Fatigue and back pain are the main reasons. Docs dx depression as cause of fatigue. I'm not convinced but am cooperating with the tx for depression. I notice my stamina is quite unpredicatable. Anyone else have to give up fulltime work for good after this tx? Anyone else notice feeling more fatigue and pain now than at one year post treatment?
- By Lkrmpotich
- Posted May 29, 2009 at 11:38 am
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I have tailbone pain and am very tired they think the spoton my liver is a focal nodular hyperplasia had a liver biopsey done two weeks ago it hurt like hell and am waiting for the results.
- By penny4
- Posted May 29, 2009 at 11:54 am
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I've had considerable MORE fatique post treatment, among other side-effects. Actually it's impossible for me to work at this time. I've also experienced alot of weight gain in the 2+ yrs post treatment. My radiologist said that alot of people do experience that, but could not give me an explanation. Does anyone else have any suggestions, or ideas why this phenominom occurs, or has anyone else experienced this?
- By strength
- Posted June 1, 2009 at 5:39 pm
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I struggle with the weight gain as well. I am certainly less active due to fatigue and I have more difficulty turning off cravings which I think might be due to fatigue too. None of my oncology docs seem to relate to the fatigue or hip and back pain as caused by treatment. I haven't tried asking the radiology doctor.
- By peggy415d
- Posted June 2, 2009 at 3:27 pm
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After my 2 internal treatments end last October, I've experienced and excruciating painful infection that lasted 2 1/2 mos. Long story short, only anitbiotics would cure but were not given to me until the end.
My doctor still considers me a medical mystery as to why the antibiotics worked at all, since I didn't show any infections from the lab.
Then in for about 1 1/2 mos, beginning in March, I had such extreme fatigue that I literally could't get up off the coach. This accompanied by a daily low grade fever and achy legs. I'm presently laid off on unemployment and consider myself lucky, since I could never had been able to work.
I've just had a PET a few weeks ago. It showed 3 areas of uptake; 2 in lymph nodes - 1 tiny near aorta - 1 near bowe/colon. 1 just under the uterus.
They tried to biopsy lymph node near bowel/colon but couldn't follow thru due to placement of organs. Too dangerous. I want to try again.
The plan B of this is to wait 6-8 weeks and do another PET to see if they've increased in size.
I'm presently waiting for an appointment to come thru with a Certified Cancer Center doctor, who is head of the GYN/Onology dept. I'm really wanting a 2nd opinion here.
Looks we all have to be very diligent with knowing our own bodies and should question any and all so-called "after effects" of the treatment. I for one can't wait for my 2nd opinion.
Thanks for reading this post. Penny4, have you consulted with another doctor??
Peggy
- By penny4
- Posted June 2, 2009 at 3:49 pm
- Report post
No, I haven't consulted another dr, but if it persists, I will. They have repeated PET scans every 3-6 months post treatment and nothing "new" has occurred. It's just really frustrating because it never seems to end.
I am so thankful for this community because there are so many misconceptions about any cancer, and it's treatment and side-effects. I have found it difficult to get even most family members to understand that although I "seem" to be in remission, that doesn't mean that I'm well at all.
~peggy415d~ I'm thinking of you, and sending you positive thoughts.
- By peggy415d
- Posted June 2, 2009 at 5:51 pm
- Report post
penny4,
It's so true, the after effects I'm learning seem to be far reaching. However, it can't hurt for you to get another opinion, especially since unexplained bleeding is involved. Why take the chance??
There are 5 Certified Cancer Centers in the US, I would check with the American Cancer Society to see where one is close to you. They have the all the cutting edge education, which is updated every 6 mos.
I wish you the very best and thank you so much for you well wishes!
Peggy
- By peggy415d
- Posted June 2, 2009 at 5:51 pm
- Report post
penny4,
It's so true, the after effects I'm learning seem to be far reaching. However, it can't hurt for you to get another opinion, especially since unexplained bleeding is involved. Why take the chance??
There are 5 Certified Cancer Centers in the US, I would check with the American Cancer Society to see where one is close to you. They have the all the cutting edge education, which is updated every 6 mos.
I wish you the very best and thank you so much for you well wishes!
Peggy
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