I have been so disappointed with my LE doctor he is a therapist, he does not have good bedside manner. I keep telling him what my issues are; he does not seem to want to admit that these symptoms are caused by lymphedema, when I research my lymphedema I see that it is thought that lymphedema does not cause pain. However, when I read about those who have lymphedema I see many complaints about the pain and debilitating effect of LE.
This must just be something that the medical community does not want to admit? I am not certain.
My LE doctor does not return my phone calls; he does not answer my email. I have the feeling that he cringes when he sees my name anywhere. I would just change LE doctor but his office is the only one in my HMO. I have a strong feeling that he would do the “dance of happiness” if I left his practice.
I do worry that others are feeling the same way about him and his practice. I really don't know what to do from here. I don’t want to change group because I have an amazing primary doctor who I admire and trust. If I leave this group I lose her and that would be sad.
I am really getting tired of my frustration with the LE doctor, I am tired of having LE for that matter it limits my life in many ways, not having a supportive or understanding LE doctor does not help the problem.





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