I'm kinda confused

Dawwnmari
  • By Dawwnmari · August 17, 2012 at 2:18 pm · 15 replies
  • In HPV and cervical cancer vaccine prevention strategies
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I've had hpv for a few years now... classically getting pap every 6 months for preventative measures but I just feel like its not enough. Are we waiting to see if my cells are changing? Is there anything we can do to be pro-active? I'm 45 yrs old, completely finished with having children but my ob/gyn does not want to give me a hysterectomy partial or anything. I want it all out!! Anyone else going thru similiar?

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15 replies   

lillith113

I can sympathise with you, I have high risk HPV, CIN 3 on biopsy, CIN 1 result after Lletz treatment, I asked to have the whole lot taken out but the Consultant said that was very drastic and it is no something they do as a first line treatment. I think they only offer it if you keep getting CIN cells and guess there is only so many times you can have a Lletz treatment. My next smear is in 6 months time and I will be worrying incase it comes back again.

wow24

remember when having HPV gettin a hyst. only pervents from cervical cancer HPV can cause cancer other parts such as the vaginal wall i think do some more research on that before you do anything also if you want to be more proactive about your HPV you should look in to nautral such as eating right, vitamins and stuff even maybe seeing a ND

lillith113

Yes I have also heard about the HPV on vaginal walls after a hysterectomy too, your right that getting rid of the HPV should be looked into before thinking of having a hysterectomy.

Dawwnmari
  • By Dawwnmari
  • Reply 3299327 · In reply to 3299248 by lillith113
  • August 17, 2012 at 5:47 pm
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But how to get rid of it? My Dr. has never offered me any kind of treatment!

mililani

Another option is this:

http://en.wikipedia.org/wiki/Cervicectomy

And, although HPV can cause other cancers, the main concern is cervical. A new research report showed why the cervix is much more susceptible to HPV and cancer. And, for the most part, vaginal and vulvar cancers are very rare compared to cervical. They also typically occur (over half) in older women (over 65). So, I think getting a hysterectomy is a viable option for you. You are at the age where menopause starts to begin anyways.

mililani

^^ That is misinformation. Surgery can remove the virus. Although, only where ever it is localized. OP, consider finding another gyno that would do the hysterectomy. You may need to see a few before finding one that will.

ellymay12

Dawwnmari, are you showing dysplasia or just active HPV? My first bad Pap showed CIN3, which is a precursor for a hysterectomy. After that Pap I had a colposcopy/biopsy/EEC, a transvaginal ultrasound (showed nothing) & a cold knife cone biopsy that finally showed cervical cancer. I had a radical hysterectomy followed by 33 rounds of radiation.

I was already post-menopausal (57 at the time) but I read somewhere that even post-menopausal women still produce a small amount of hormones that help the body, and removing the ovaries early isn't something to be considered lightly. But with my diagnosis it all came out. If you did have a hysterectomy they would probably leave your ovaries, so this wouldn't apply to you.

Approximately 80% of sexually active people have HPV, many with high risk strains, but not everyone will develop cervical cancer because of it. In fact, statistically speaking, only a small amount do. There's nothing small about it when you have CC, but we truly are in the minority.

There are many posts on here about natural methods to "cure" HPV (there is a debate on whether it can be cured or just put in dormancy). I bought "Women's Encyclopedia of Natural Medicine [Tori Hudson]" on Amazon.com which has a chapter on curing HPV naturally.

Personally, after my cc diagnosis & treatment, I am trying to live as healthy a life as possible. I got tested for food allergies and found out I am allergic to wheat, so I try to eat wheat free (still can't find a good gluten free pizza). I stay away from my other allergy foods (easier than wheat). My next test is to see if I am gluten intolerant or just allergic to wheat. I exercise, take my vitamins/supplements, eat little meat & rarely eat red meat, don't drink alcohol & never smoked. Not much more I can do with the exception of dumping sugar 100% (my only vice) & being 100% vegetarian or eat raw (not for me).

Dawwnmari

I feel like my obgyn isn't taking this seriously enough I mean it's hpv.... and it could possibly turn into cancer. I am thinking it's time to find another obgyn one who listens to my concerns. I "begged" my obgyn to give me a hysterectomy... and he flat out said I did not need one. I'm so worried this is spreading by just sitting here waiting for my next pap to be abnormal again. Did anyone else g through the same thing as this? What did your dr tell you? What did you do to get them to really listen???? Thanks for adding to this post I am storing all your replies in my tiny little brain waiting for a doctor to REALLY listen or is it all really ok?

ellymay12

Once again, do you have severe dysplasia? If not, it will be difficult finding a doctor that will perform a hysterectomy just because you have HPV. 80% of sexually active people have HPV, imagine if hysters were given to every woman with it. There would have to be a special hyster clinic ;)

A hysterectomy comes with it's own risks and is not to be taken lightly. I am of the group that believes HPV can only go dormant and it can't be completely "cured". You can have a hysterectomy and still get HPV in your vagina, vulva & anus.

Hysterectomies are normally considered for women with CIN3 (severe dysplasia) up to Stage 1 of cervical cancer. Above Stage 1 it is usually treated with chemo and radiation. Some women with CIN3 get a leep or cold knife cone (CKC) biopsy first. I had the CKC because my pathology after a colposcopy/biopsy/EEC showed CIN3. Only the CKC found the cancer.

Complicated0618

I did not mean to give misinformation but from my understanding, dysplasia can be removed by surgery but that HPV (like other viruses) remain in your system and can go dormant but will still be there and can pop up in various places.

Dawwnmari

No I do not have severe dyplasia. I have had a cone biopsy and a colposcopy and was just wondering what the next step was, believing a hysterectomy. Uninformed and a bit naive I'm afraid.

ellymay12

Why did you have a cone biopsy if you didn't have dysplasia? Again, 80% of sexually active people have HPV - I recently read on here that a doctor told a member that most that have it have a high risk strain(s). I've not read that anywhere else but maybe it's true.

So are you telling me you had a cone biopsy just because of HPV? I'm surprised your insurance company paid for that as it is not protocol as far as I know. Even with CIN2 most doctors wait to see if it will regress.

Complicated0618

Do you remember what they said the Cone biopsy was done for? CIN2, CIN3, CIS, AGC, or AIS?

Maybe getting a copy of your records would help you understand why the doctor does not feel like a hysto is necessary. That and a second opinion if you do not feel comfortable with your current GYN. OBGYNs or GYNs are not as specialized in this stuff as GYN Oncologists are.

Best wishes.

heidigirl943

You may also want to consider dual therapy and make an appointment with a naturopathic physician who specializes in women's health. I know there are procedures that they called escharotic therapy. That is what I am planning on doing if my 6month pap comes back abnormal again.

http://www.drnick.net/index.php?p=67783

Complicated0618

Hi there, hope you have figured things out. I'm not sure what level of dysplasia you have (CIN1,2,3...etc) but I hope you feel less worried now. :)

Best wishes!

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