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Do I seek a 3rd opinion nothing is getting done?

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I have been going through this experience for so long now! I am going through a clinic, so appts. are scheduled weeks in advance, and only done 1 or maybe twice a month. I origanlly went to the Dr. because I had non stop bleeding.. I mean non stop months at a time. I had recently been diagnosed with Multiple Sclerosis. I was given progesterin 3 rounds of it. Nothing worked. So off to the gyno. I went... Had a pelvic exam, the dr. diagnosed an enlarged uterus, said she felt a mass in the muscle, and scheduled an internal saline ultrsound and biospy. The soonest they could do it was six weeks from then. Three weeks later, a nurse called to tell me I had high grade severe dysplasia, and that the dr. wanted to schedule an immediate colpos. and leep. Well both of these tests are fine and dandy except I had to keep cancelling due to the bleeding. So I took my records to a new dr. hoping for an easier time scheduling the tests. This was the first time I actually sat face to face with my records and had the results explained to me. I was told they cells are high grade invasive squamous cells. Basically explained that this is cancer, I forgot to ask but there has never been a mention of HPV. She feels that due to the fact that there is something going on with the uterus, tumors fibroids endometrosis, etc. something... That I due the ultrasound biopsy because what ever is causing me all the pain and bleeding most likely stems from there and a hysterectomy will solve both problems. This is actually fine with me since I want no more children. So now the ultrasound is scheduled for the end of the month, and they will do it regardlous of bleeding. Then 10 days later Dec. 3 I will meet with dr. to discuss results and come up with a plan.
I am very confused, my first dr. is upset because I went to a second dr. with my results. The second doctor is concerned that they have been dragging there feet on this for 4 months or so now. So what do I do should I try for a 3rd opinion. In the meantime I have become anemic, and have to do daily injections for this condition, pain is so bad and costant most of the time I feel as though I been repeatedly beaten in the stomach and back and left severly bruised. The pain runs down my legs and causes numbness. I still have a hard time descerning what is the MS symptoms and what is this.
So please give me input do I do seek a 3rd opinion or try to trust these people.
I also should mention I have been in thyroid cancer remission for almost 2 years.

Explore topics in this discussion:

Cancer Hysterectomy Pain HPV Thyroid cancer Multiple sclerosis

10 replies

Sounds like you have had a tough time lady, I'm so sorry that you have been through all of this. 1st off your 2nd Dr. is correct in saying that the 1st Dr. has been dragging their feet, and 2nd off, no GOOD Dr. will ever have a problem with their patient seeking a 2nd 3rd or 100th opinion. Do you mind me asking where you are living? If there is another Dr. that can get you in sooner and seems like they actually have your best interest at heart I would go to them. I know how horrible it is to sit and wait, you feel like everyday that passes is another day that you could be fighting. My heart goes out to you hon, best of luck and stay positive, pray and keep your head up. God bless. Kelli

Thank you so much for responding! Yeah this has not been my year for good health of course neither was the past one. It just seems to me like everything moved much smoother and quicker the last time! I live in ohio. And the biggest part of the problem I believe is that I am uninsured and due to the MS I am currently unmployed. After my last bout with the cancer I had sold my partnership in my business, and gone back to school. Now I am on med leave from school... and going crazy!!! I really want to be aggressive and just get this as removed from me as possible as quick as possible... and move on with my life. But that seems to be against the plan of the current dr.. I just want to scream! Thanks for listening it really helped to just vent it out somewhere. I really appreciate you listening!

sorry you have so many health issues going on.....and doctors that are not responding the way you want. a 'good' doctor doesn't get offended or upset if you go to a second doctor.....it's only an indication of that first doctor's own issues, and it's good you've moved on. also, an indication of HGSIL/HSIL (high grade squamous intraepithelial lesions) is not cancer....it's dysplasia, which some call pre-cancer, but it won't necessarily progress to cancer. and, yes, hgsil is caused by hpv. wishing you the best in getting the best medical care....perhaps there's a university hospital that can better meet your needs.

Have you applied for medicaid?

flowershop lady thank you for your attention to my delima I appreciate it. I also wanted to add that the first dr. told me of the test results over the phone. It was the second dr. that said this is beyond cin3. the cells are high grade invasive squamous cell cancer. I believe the first dr. had avoided telling me this over the phone intentionally. This had led me to believe as you explained that this was in fact severe dyplasia. However the second dr. disagreed when i explained this too her. SHe explained that this is cancer the abnormality of the cells clearly shows cancer. She did say it may be from the uterus and not necesarily from th cervix. Since the original issue was in the uterus. I don't know , I do know that I am tired of the constant pain, naseua, and bleeding and one way or another I will be following up with this.

I am actually going to try to apply next week. I hope I will get it I also have the web address for something called cancer care. Supposedly they also have an assistance program for those without insurance. Keeping my fingers crossed. Having some form of insurance would ease my mind alot, I feel like I am sorta treated as less important because of my lack of mean to paay for health care. But what else can I do right now!

i see that you live in ohio, and as with most states, ohio has a special medicaid program for women with breast or cervical cancer....here's their website:
http://jfs.ohio.gov/Ohp/bcps/bccp/index.stm

Thank you your the best

Good luck, I know what your mean about feeling less important because you don't have insurance. During my first battle with CC I was uninsured, thank GOD I have married since then and my husbands employer offers insurance, I was actually surprised that they would cover me because of my prior history. I will pray that you will be approved for some type of assistance, you have enough to worry about with getting better, you shouldn't have to worry about how you will pay for all of your treatment, God bless. Kelli

Thankyou Kelli and congratulations on your marriage!! I really can't express how much the time you took to respond to my issues meant to me best of luck to you!

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stopcancernow: How about a HPV test you can do in the privacy of your own home and not have to go into the docs office for the test?!!?!?!

stopcancernow: How about HPV Point-of-care testing in Docs office so you can get HPV result while in the office?? We have the technology to do that now.

stopcancernow: It is good to be careful not to over test young adults (under 21). So so many positives that amount to nothing and women over tested!!

stopcancernow: What needs to be added to ACOG guidelines??? HPV Testing. HPV Testing. HPV Testing!!!!!!!!!!!!

stopcancernow: What needs to be added to ACOG guidelines? Add Pap test AND HPV test for women age 30 and over. It should be in there!!!

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