Hi everyone! I've been reading on here for about a month now, but haven't posted until now.
My name is Beth and I've been dealing with cervical dysplasia for years. It has always been mild, until my last pap/colposcopy/ECC. This time it came back as severe dysplasia/carcinoma in situ (squamous cell). I had a cone biopsy and fractional D&C and there were clean margins. I went for my post-op appointment today and now my gyne said he is going to consult with a gyne onc to see what he recommends we do.
I was already diagnosed at age 29 with breast cancer (I'm 30 now), had bilateral mastectomies, did 17 rounds of chemo, 31 doses of radiation, and will soon be having my reconstruction surgery. I've been extremely aggressive with my treatments, but I really do not want to have a hysterectomy.
If you have been diagnosed with carcinoma in situ what treatment did you have? Did it return?
If you have cervical cancer, how long did it take to become invasive?
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Carcinoma in situ
- By momgoingcrazy
- Posted November 3, 2009 at 6:12 pm · 5 replies
- In Dysplasia including procedures
- Shared with the public
Explore topics in this discussion:
Cancer Surgery Hysterectomy Cervical dysplasia Cervical cancer Breast cancer HPV Carcinoma in situ
5 replies
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- By movingon
- Posted November 3, 2009 at 7:47 pm
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First off I just want to say that I am so sorry that you are possibly facing cancer again. I had stage 3 cancer. Mine either went undetected by paps or spread quickly either way is possible. My cone biopsy didn't come back with clear margins. If you don't want a hysterectomy I recommend a radical trachelectomy. Its a fertility sparing procedure that is fairly new. Google it and you will find all the info you need.
- By flowershoplady
- Posted November 3, 2009 at 8:42 pm
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i'm so sorry to hear you have been dealing with breast cancer, and i wish you the best in that battle. for the cervical dysplasia, you may not need further treatment since you had clear margins, and it's an excellent idea to see a gyn/oncologist for his/her opinion. you'll need/want diligent follow ups, but it sounds like all the abnormal tissue may have been removed with the conization. let us know how you're doing!
- By dazednconfused
- Posted November 3, 2009 at 9:25 pm
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I agree that the clear margins are a hopeful sign, but also think it's great that your doctor wants to follow up with a gyn/oncologist. You deserve the best screening and care possible, so it's great to be proactive. Best of luck :)
- By Faith2
- Posted November 4, 2009 at 11:39 am
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Dear mom,
clear margins are really a good thing - it's what you want to have happen after a LEEP cone. You will most likely have more frequent Paps to monitor for any changes, but mild dysplasia often regresses on its own and isn't a reason to have a hysterectomy. I also had squamous CIS, diagnosed by LEEP cone, and had mild dysplasia approx 10 mos prior to. The dr's thinking was previous Paps had missed endocervical changes. He explained, generally, it takes approx 5 yrs for normal cells to change to CIS, and approx another 5 yrs for invasive cancer, give or take, if left untreated. Also, liquid Paps may not have been used, which yield a more accurate result. My story gets rather involved, but I did have a hysterectomy, though I did not want to, but my dr preyed on fears of microinvasion, etc., and there was lack of disclosure of HPV - all in all, a nightmare, and since I have had subsequent surgery to repair problems from the hysterectomy & am still not 100%, some days are better than others, but I don't whitewash my experience, it has been a struggle to make that happen. I think a 2nd, even a 3rd or 4th, opinion is always a good thing - for various reasons, not all drs are on the same page when it comes to HPV, treatment options, etc. And, a 2nd opinion from a pathologist may be a good idea as well. Since hysterectomy is major surgery, it is wise to have more than one opinion. I am sorry about the breast cancer and I wish you all the best with upcoming reconstructive surgery. I'm probably telling you something you already know, be your own best advocate and do your homework! Keeping you in my prayers.
- By momgoingcrazy
- Posted November 4, 2009 at 2:57 pm
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Thanks for all of your replies. I haven't heard back from my gyne to hear what the recommendation was, but I will let you know when I do.
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