Hello everyone. I have had abnormal pap smears since 2002. I was pregnant that year and delievered the following spring. By then, the Health Dept. would not push the issue. They could not tell my why my test was abnormal, so they told me not to worry. They did re-do my pap and it was abnormal for 2003 too. In 2004, the same result from my pap came back, and again, the Health Dept. said not to worry. In 2005 I did not have one due to my husband being in Iraq. In 2006, under military insurance now, I saw a gyne and had another pap and it came back abnormal too, but they could not tell me why. They told me to be retested the following year. I was also pregnant and I delivered in spring of 2007. When my pap results came back abnormal again in 2007, they also told me I was pregnant again. I had my last son in summer of 2008. While I was pregnant with him though, they did do a col-po (spelling), but they could not give me much information because they could not biopsy me nor risk disturbing my pregnancy. HPV is a common test ran in pregnant women, and I never came back positive. My gyne did confirm there is a large patch of cells on my cervix though, 12 o'clock position, but could not confirm or deny how deep it was or if it was in my utereus.
I now have a son with a rare form of Epilepsy, who is terminal, called Ohtahara Syndrome. The neurologists do not know what caused this, and because most children die as infants, there is not much information on the disease or causes. He requires 24/7 care and all our friends and family have left our side. To say the least, I have not been back to the gyne because I think he caused this condition by not treating my diabetes during pregnancy. Anyway, going to the doctor, let alone having a procedure is really impossible because I have no one to care for my terminal son, let alone all my other kids. We are working with tri-care prime and got my son into the Echo program so he will soon have private duty nurses here to help so my goal is to get my health taken care of now.
Does anyone here know if you can get cervical cancer without HPV? I have heard that dysplasia (spelling) takes quite a few years until it forms into cancer, right? Are the symptoms of cervical cancer obvious or can it readily go undiagnosed because of the lack of symptoms? I know I need to go back to a new gyne, but it is really hard when there is no one that has a heart to help us. I am also curious on what questions I should ask a new gyne and how pushy I should be about my condition. I imagine I will need a new col-po so they can do a biopsy now, right? My previous gyne stated I might use the Leep or cone procedure and I am curious if after all this time is that still a possibility now? If this is cancer by now, then what procedures work best? I do not want to die before my children and especially before my terminally ill son dies; please provide any information you can.
From most of the posts I have read here, there is a link between cervical cancer, dysplasia, and HPV. I have came up negative everytime for the HPV test though. I also do not understand, with the new high tech paps my insurance pays for, how my paps keep coming back abnormal but cannot give me any specific information? Any advice would be greatly appreciated. With kindest regards,