I had a total hys, then i had radation treatments for endomeatrial cancer its all gone but i developed radation entrinitius and a small bowel blockage right at the connction of the large and small bowel, almost died due to the fact Surgeons refuse to touch you after this type of problem i found one surgeon who finally stepped in as i was tossing up all day and night lost so much weight and was hospitalized 3 times for deyhdration over a period of 3 months. the surgeon fixed the blockage the best she could but i am still dealing with loose stools and urine leakage and i can now eat again but have to be careful of what .i have gas pains real bad they put me down for an hour or so, what i want to know is there anyone out here that has has this type of thing happen to them? and how are you dealing with it? i have to wear depends now and cant walk across the street with out having to run back to the bathroom.sex is out my poor husband is a gem i have even told him i wouldnt blame him if he wanted a mistress or out completely.we planned a nice retirement and cant ever have that now. i have even went through the it would be better if i died thing suside has been an option expecially if i need another operation, but i think i have gotten over this for a while i do want to see my grandaughter graduate school oh ya my cancer dr went into denial when i told him i thought i had developed entrinitius mostly because he didnt know how to deal with it seems cancer Dr.s are taught how to rid you of cancer but not how to deal with the complications that come from the radation or chemo. and if he had been then maybe the ball would not have been dropped in my case.the surgeon told me that they get alot of cancer patients dropped off on them in emergency rooms because of this and most of them die because they cant help them.she cant even say if what she did wil not come back in a few months or years so i may be looking at this again in the future. sad hope you dont ever get it or your family member.if i had it to do over i would not get radation treatments. sorry i went on so long.. and yes im still mad at the medical team for cancer centers of america.
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Bowel and urnine problems after so much sugery
- By oregongirl1
- Posted July 27, 2009 at 1:34 pm · 6 replies
- In Health challenges after treatment
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- By oregongirl1
- Posted July 28, 2009 at 3:40 pm
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hummm well im bleeding again and now i have to see the surgon tomorrow and get set for more test's im sure, i thought maybe some one out here might have some knowledge of my problem and be able to discuss it but guess not. i hope you never get entrinitus from radation treatments.i dont wish this type of hell on anyone.i hope all your ills get better.
- By flowershoplady
- Posted July 28, 2009 at 4:00 pm
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i'm sorry to hear you're going through all this, oregongirl, and hope the doctors are soon able to come up with a way to resolve your health issues. sending gentle hugs....
- By marsha123
- Posted July 28, 2009 at 9:02 pm
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I'm having some bladder problems since my hysterectomy 8 days ago. I feel pressure, and need to urinate when my bladder doesn't seem to be full. I guess I'll have to talk to the GYN about this when I see her in 5 weeks. (Yes, I'll call and tell her if it persists or gets worse.) I don't know what it means, but I wanted to let you know, I seem to be experiencing it too...M
- By Kat-t
- Posted July 29, 2009 at 11:28 am
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My thoughts and prayers go out to you oregongirl1.
I had a radical hysterectomy Feb. 23. My bladder is still not working. I have to wear depends 24/7, as I leak urine constantly. I never really have the urge to urinate, just an uncomfortable feeling, and I have to self-catheter to empty my bladder. I've been to urogynocologist. He tried different medications, which didn't work, and finally did test (urodynamics) Finally decided that the nerves to bladder are not working. He suggested something called interstem thereapy. Which is an implant they put by the tailbone, that acts kind of like a pacemaker to the bladder. I've researched this some, and read some good and bad things. I was also told it sometimes takes 6-9 months for nerves to heal. So I've decided to wait it out with many prayers for healing.This can be very discouraging and depressing if we let it. Thankfully I have a wonderful husband who this seems not to bother at all. He helps me have a sense of humor about the whole thing, but it still is difficult to go through. But considering what could have happend I am very lucky. I hadn't had a pap smear in about 8 years, started having weird periods and spotting during relations, my husband urged me to go get check-up. Discovered I had 1B1 cervical cancer, and went through the hysterectomy. I didn't have to have radiation or chemo and am feeling good physically except for the "pee thing". I will keep you in my prayers and hope that you will have some relief. Diet can somtimes cause us to pee more. I stay away from chocolate, and a lot of caffine.
Keeping you in my prayers
Kat-t
- By oregongirl1
- Posted September 11, 2009 at 11:47 pm
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i found this other group of people who have my same symptoms and some of them are doing herbs and it seems to be helping them some so i am thinking of trying the same thing.. it certainly cant hurt ..any ways if you wan to read about it the site is www.cancercompass.com
and the subject is radation entrinites. thanks for listening to my ills i know you all have your own set of problems to conquor..good luck may god be with you.
- By Faith2
- Posted September 13, 2009 at 12:16 am
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Dear oregongirl1,
Just wanted to check in with you - hang in there. Did you say you are seeing a uro-gynecologist?
This is one of the reasons I get so mad about hysterectomies being done to women, and yes, when there's actually cancer, sometimes, it's needed along with other treatments, but there can be some serious side effects that often just aren't told to women up front. I'm truly sorry for your discomfort. I am keeping you in my prayers. Please know that many of us on this site care - we may not always have the answers, but we do care.
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