Any Stage IV folks out there?

• By funkycervix
• Posted August 18, 2009 at 4:24 pm
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I'm not but I'd love to be your friend! What your going through sounds very scary and I don't understand all the lingo but I'm a good listener....or reader in this case!

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• By rkh
• Posted August 19, 2009 at 2:12 am
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I too am not (as of yet, and we never know)but would love to be your friend:) I agree with funkycervix that it sounds scary what you are going through and I would be glad to support you in what ever way I can. I don't want to feel alone in my situation, nor should you or anyone.

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• By chickracer
• Posted August 19, 2009 at 12:50 pm
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I'm stage IV. Feel free to read my story (it's too long to re-write). I am currently doing everything I can to keep the reocurrance at bay. Would love to chat with you!

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• By SurvivorJan
• Posted August 19, 2009 at 9:53 pm
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I was not originally diagnosed with Stage IV CC but am currently going through treatment for a recurrence. I've heard some folks refer to recurrence as Stage IV.
Are you in treatment now?

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• By yesshecan
• Posted August 20, 2009 at 12:29 pm
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Thanks for the response. Support is appreciated. This can be a lonely journey. Anyone else out there?
I'm not sure whether to be concerned or not. The BC Stage IV is pretty active. Is Stage IV in CC less likely to produce more chronic survivorship? Does it become lethal faster, sooner?
Survivor Jan- finished chemo May 4th, PET scan in July was'all clear' , then the new 7mm nodule jumped out at MD. It was not doing uptake on PET , and three other nodules have been present since the beginning- small 3mm or so, no uptake, and no growth
in almost a year. He is concerned re new nodule. Cannot reach with interventional radiology to biopsy, so will need thoracic surgeon to do biopsy with general anesethesia and hospital stay. Want to wait to drop off daughter for first year of college. Am a solo parent, she is last off, and the past year has been hard enough on her. I don't want her to leave with yet another medical drama.
MD OK with this. He also suggested mayne another CT to see if there is any change in new nodule.
I will try and get some PMs out to you all if I can.
Again thanks for the support.

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• By momof4_1985
• Posted August 20, 2009 at 3:33 pm
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I'll be praying for you! We are all here for you on this site. Feel free to write me anytime. I love making new friends. I pray that God puts his healing hands upon you and blesses you to live a long and healthy life.

Take care and God bless :-)

Turly,
Lynn*

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• By TracyH
• Posted August 26, 2009 at 1:11 am
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Hi,

I am a IIIB and would love to know what you are going through and any information you may have on recurrence. My first clean pet was on 2-20-09. I would also like to be your friend so please add me.

God Bless,

Love Tracy

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• By marsha123
• Posted August 26, 2009 at 11:17 am
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Did you say you had a clean Pap in March, and was dx'ed with cc in August? My God, that is crazy. I thought I was bad going from Cid1 to Cid3 in 6 months. I'm going to find out the results of my pathology report when I go to my post-op appt. on Fri. (I had a hysteretomy almost 6 weeks ago.) Add me as a friend as well, if you'd like. This site has been very helpful to me, not only with information but with friendships as I went through what was a difficult time. Take care and good luck with everything, M

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• By its_my_goliath
• Posted August 27, 2009 at 10:09 pm
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I am Stage 4 as well. Add me as a friend!!

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• By shaz
• Posted September 2, 2009 at 1:04 pm
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I am stage 4 - in UK this means - I have metastises in my neck and my right ovary - I am currently waiting to start a drugs trial phase 1 - add me!!! I'm always on here, keeps me sane! Shaz x

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• By chickracer
• Posted September 3, 2009 at 9:42 am
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Hi shaz. I imagine you are very familiar with Katie if you live in the UK and have CC. Isn't she amazing?

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• By yesshecan
• Posted October 29, 2009 at 11:53 am
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Quick update. Met in September with thoracic MD who examined July PET and decided that all lung nodules have been there since first CAT scan and all stable, with no uptake.Decided to just follow them. They can be nothing, just there, since many people have nodules from non cancer issues.
Am waiting on PET scan results for regularly scheduled PET done on Monday. Great snowstorm here in Denver is keeping me home bound and anxiously focused on all the 'what ifs'. Sigh. NY Times Sunday front page feature article on MD Anderson added to anxiety. More sighs. Hope all of you out there are doing well. You are a great help through these moments.

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• By jan64
• Posted October 30, 2009 at 9:37 am
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My mom has stage IV cc, it's been a great challenge. She's in the middle of radiation treatments now. They started with chemo and that was easier for her to tolerate. She's had great difficulty with lack of appetite, nausea, and breathlessness. We're scared, and so is she. Good luck.

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• By inspiredbyu
• Posted October 30, 2009 at 10:53 am
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I'm not stage IV, but i would love to be your friend and give you support. That's what friends are for here.

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• By Amaryllis2
• Posted November 1, 2009 at 9:55 pm
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I jumped from 1a to stage IV adeno after hysterectomy and radiation did not do the job, and in fact the DaVinci hyster. spread the cancer to two incision sites. Chemo has worked (after 5 months) and am now in remission, but since it has metastasized it is expected to return eventually. Please friend me, if you like and want more details. Still have trouble believing this has happened, but am trying to lead my normal everyday life!

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