2nd LEEP Results...& Next Procedure - Hysterectomy

• By stalin
• Posted October 24, 2009 at 6:03 pm
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hi, i have cin3 and had a pap done along with biosopy, my doctor told me to have a hysterectomy. i have mixed feeling. my surgery is schedule for nov.23.

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• By flowershoplady
• Posted October 24, 2009 at 6:31 pm
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inspiredbyu and stalin, if your leeps have successfully removed all of the dysplasia (clear margins, etc.), why are you having a hysterectomy, additional surgery, which is major surgery? please get a second opinion. and, remember that the uterus and cervix have many functions other than just for pregnancy.

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• By stalin
• Posted October 24, 2009 at 8:05 pm
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my dr also told me my uterus has become small from the 2 leeps and said maybe i will not have avaginal hysterectmy. he have to make a incision. anyone with advice, thks to flowershop lady for advice. thks

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• By flowershoplady
• Posted October 24, 2009 at 8:44 pm
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stalin, a leep, or even 2 leeps, will not make your uterus smaller. perhaps you need to talk with the doctor again to better understand what he meant. and, please get a second opinoin before major surgery!

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• By inspiredbyu
• Posted October 24, 2009 at 11:14 pm
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flowershoplady: I did not have "clear margins" after my 1st or 2nd LEEP procedures. I'm 58, and my doctor said that what is best for me is a hysterectomy. I have complete trust in my ob/gyn doctor, whom I have been with for the past 15+ years.

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• By STellak511
• Posted November 6, 2009 at 4:24 pm
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Best wishes to both of you! Please go wjth your instincts. Everybodys body is different and you need to do what you and your dr. and faily feels is the best option for you! A hysterectomy may seem daratic to some but when weighed against costant poking and prodding and a possible worse outcome as time continues of the wait and see measures that leep procedures offer, I say go for it! Best wishes to you and yours.

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• By flowershoplady
• Posted November 6, 2009 at 7:34 pm
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inspired, i'm sorry to hear that even the 2nd leep didn't bring clear margins, and that now a hysterectomy is recommended. even if you trust your doctor, it's always a good idea to get a second opinion before major surgery. keep in mind that you'll still want to keep up with your paps and hpv testing....vaginal dysplasia is unusual, but it's not rare. i see that you're having the davinci hysterectomy, and most women give feedback that indicates the surgery and recovery are much easier than with a traditional tah. still be sure to remember it's major surgery....best wishes to you.

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• By Faith2
• Posted November 8, 2009 at 12:43 am
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Dear Inspiredbyu,

I'm saying this with respect, having complete trust is not the same thing as being informed. Please be certain that you are informed prior to having a hysterectomy and that you understand whether you have other options. A hysterectomy can bring on many other problems, so you want to be absolutely certain of your choice because it is also irreversible, and by the way, it is your choice, not your doctor's and you will sign an informed consent before your dr would even dream of doing surgery on you that releases her/him of liability and states you understand the surgical procedure and all of the risks. Remember, you are the person who will live with the consequences of an irreversible surgery, not your doctor. Once you are truly informed then you are in a place to make a decision. Allowing your doctor to make a decision for you, may not always be in your best interest and you may find, post-operatively, that had there been other choices, you would have preferred them. The problem is that once a hysterectomy is done, that's it, there is no going back. Further, the cervix and uterus are also sex organs that are part of the orgasm package - not just the clitorus is involved, so there will not be uterine cramping during orgasm, nor cervical tapping, nor cervical lubrication. If you haven't gotten your pathology reports yet, it would be wise to do so and read through them, as well, before making your decision and, getting at least a 2nd opinion. There is no age that dictates that a woman should have a hysterectomy - it's not a rite of passage, it's surgery. Wishing you all the best for an optimal decision for you.

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• By simplynat
• Posted November 8, 2009 at 9:47 am
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Hi Inspired, I also wanted to add that in addition to some of the recommendations above I would encourage you to be referred to a gyn-onc at this point instead of continuing with your ob/gyn. I had two cervical procedures as well (a LEEP and a cone) that did not provide clear margins and they were performed by my ob/gyn - whom I trusted completely. After two years and a third recurrence I was referred to a gyn-onc and my last surgey did provide clear margins. While ob/gyn's often manage and try to treat cervical dysplasia gyn/onc are the specialists and they deal with it everyday.
One more thing you may wish to consider before making a decision is that not having clear margins does not necessarily mean another surgery (whichever type it is) is immediately necessary. Often once the bulk of the dysplasia is removed the virus will go dormant and the body can then clear any remaining dysplasia on it's own. Regular follows ups are still important (as they will still be even with a hysterectomy) to monitor whether or not there is a recurrence. My first colposcopy after my second surgery was clear and my gyn-onc scheduled me for my next follow up in 6 months. She told me that the liklihood of recurrence was around 40% compared to about 5-10% when the margins are clear however given those percentages it is more likely to not have a recurrence than it is too.
Best wishes to you.

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• By kelley-ia
• Posted November 9, 2009 at 12:11 am
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Just wanted to share on this discussion a little bit. I was diagnosed with CIN 2/3 and just went through the LEEP proceedure. My GYN said I have the most difficult and ugliest cervix she has ever seen and repeatly asks me if I still want to have children.... which to me means a hysterectomy. For me it most likely will be a total one since I have PCOS (really ugly ovaries too).

My situation is I never have been able to have children naturally though we have been trying for nearly 15 years... hoping for that miracle I guess. I have come to accept I may never be able to have children, allready being age 41, but I will certainly ask my GYN a few different questions before I decide.

1) Is there a chance I could be a mother with a little help?
2) What is my cancer risk if I do NOT have a hysterctomy?
3) Can we do more testing (on the other parts of the female antomy) to be sure a hysterctomy is warranted?

I personally would risk it all to have one child but only if a child will ever become of it.

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