National Cervical Cancer and HPV Coalition Support Community

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Not sure where to turn

By hughes01 · New reply 2:01 am
Journal · 4 replies
Hi there, I was diagnosed with CIN3 back in the end of 2008 and had LEEP treatent in April 2009. The Dr told me that my cervix was riddled with the bad cells and wanted me to go under but I refused and ...

FINALLY SOME HOPE........

By tootsie21 · Posted 1:52 am
Journal · 0 replies
In february i went to planned parenthood and found out i had genital warts, i had never felt so hopeless in my entire life. I was so angry because i have only had one sex partner and the doctor was so ...

Colposcopy and Biopsy..

By Jnc2180 · New reply yesterday at 9:30 pm
Discussion in Dysplasia including procedures · 7 replies
I finally found a great dr in jan that listens to me when i say "something just isnt right". For years ive had abnormal paps but no drs that would follow up with the abnormalities. At the end of Jan i ...

My turn to worry

By willtosurvive · New reply yesterday at 6:43 pm
Discussion in Health challenges after treatment · 4 replies
Last night while having a shower I noticed a small lump just above my right groin area. I had chemo assisted radiation to my pelvic area about 1 1/2 years ago and had a complete hysterectomy last April ...

petscan vs catscan- positive nodes

By schnookums · New reply yesterday at 2:26 pm
Discussion in Cervical cancer stages and treatment · 17 replies
I have having a petscan in April 2010 after having had a radical hysterectomy with 2 positive nodes last May 2009 with 27 external radiation and 6 Cisplatin treatments. Anyone out there with positive ...

Tell us how you are treated...

By ShannonZ · New reply yesterday at 1:37 pm
Journal · 43 replies
at/by your doctors/nurses offices/clinics/hospitals... I am so sick of what has been going on at my doctors offices that I need to...i dont know ...build a group or protest or something... Let us know ...

Young bodies can fight cancer!

By NellyMum · New reply yesterday at 1:35 pm
Journal · 8 replies
I am in a battle right now, and this is one battle in my life I intend without a doubt on winning. My name is Janelle Madigan and I am 32 years old. Last year, just, at 37 weeks pregnant, I went for one ...

Radiation Dr. Check up, what do they do?

By mrsfletch1978 · New reply yesterday at 1:20 pm
Discussion in Cervical cancer stages and treatment · 3 replies
Well, I go see my Radiation dr. on Friday. I finished my treatments (25 external and 3 internal) Feb. 9th. What will my check up be like? Do I have a pelvic exam? The only side effect that I am concerned ...

Halfway! (pregnancy mentioned)

By mobilis · New reply yesterday at 10:40 am
Journal · 2 replies
20 weeks today and we've just had a scan. Our little boy (confirmed with VERY lurid pic that we'll save to embarrass him in front of unsuitable girlfriends one day) is still measuring almost 2 weeks ahead ...

Older women at Lower Risk of New HPV Infections that lead to Cx Ca.

By aileen · New reply yesterday at 10:12 am
Discussion in Early detection and testing · 6 replies
See NCI Story: http://www.cancer.gov/ncicancerbulletin/ 030910/page3#d ...

Support your group and raise awareness with badges

By Walter · New reply yesterday at 9:08 am
Journal · 45 replies
Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

European Charter of Patient Rights

By corellin · New reply March 9, 2010
Discussion in Early detection and testing · 4 replies
http://www.patienttalk.info/european_cha rter.pdf Check out the above link to the "European Charter of Patient Rights." The 14 rights are listed starting on page 4. They are amazing!!!! So comprehensive ...

1 year almost!

By amy_11 · New reply March 9, 2010
Discussion in Cervical cancer stages and treatment · 1 reply
I joined a year ago almost scared because i was in the stage of hpv before cancer and looked for help. Im glad to say that in 2 weeks its my final 3 month check up and i can go bak to yearly paps if this ...

Link to Abstracts from WACC Conference

By corellin · Posted March 9, 2010
Discussion in Early detection and testing · 0 replies
Here's a link to the materials that came out of the WACC (Women Against Cervical Cancer) conference that was held in Monte Carlo. I liked the welcome/introduction by the president and also the information ...

Having a tough time before my wedding

By RMW · New reply March 9, 2010
Discussion in Finding emotional support · 6 replies
I am getting married in 2 weeks to the most wonderful man. Too bad my first post LEEP pap and ECC came back positive for CIN 2-3 in the endocervical canal. Since my LEEP came back without clear margins ...

Anal Bleeding

By skinsfan · New reply March 9, 2010
Discussion in Early detection and testing · 14 replies
I have a question about rectal bleeding. When I have a bowel movement my rectum burns, stings, itches and is very painful for hours. I have started using the baby wipes and now it is bleeding (Not due ...

cone biopsy and pregnancy

By Sariri_Naira · New reply March 9, 2010
Discussion in Cervical cancer stages and treatment · 8 replies
Hello all who may read this note, I hope this day is full of peace and that you are smiling. I have to apologize because I don't feel like writing about or describing my own cancer experience. Now, I ...

Result Help?

By Jenn948 · New reply March 8, 2010
Discussion in Early detection and testing · 7 replies
So I got my pathology report from my surgery, I couldn't get all my med. records b/c i was 5 mins late and they closed, but luckily the hospital had surgical records. But... I don't understand them, maybe ...

Leep procedure

By singlegirl · New reply March 8, 2010
Discussion in HPV/cervical cancer vaccine prevention strategies · 5 replies
Hello, Just got back the news today that my colpscopy came back high grade and now I need to have the Leep biopsy next week. I am not looking forward to this at all as the colposcopy was bad enough. I ...

Bowel pain after hysterectomy?

By kb1200 · New reply March 7, 2010
Discussion in Health challenges after treatment · 65 replies
I had a total hysterectomy March 31 for adenocarcinoma in situ. Since then I have had horrible bowel pains from gas and anytime I have a bowel movement it is excrutiating. My ob thinks it may still be ...

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stopcancernow: Mapping vision for National Cancer Program by NCI Director: http://www.cancer.gov/ncicancerbulletin/030910/page4

stopcancernow: Older women at lower risk of new HPV infections: http://www.cancer.gov/ncicancerbulletin/030910/page3#d

stopcancernow: NCI 2011 CANCER PLAN: http://plan.cancer.gov/pdf/nci_2011_plan.pdf

stopcancernow: HPV and HPV Disease Information by the CDC: http://www.cdc.gov/hpv/

stopcancernow: CDC info. on Vaccines. http://www.cdc.gov/vaccinesafety/vaccines/hpv/gardasil.html

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The National Cervical Cancer and HPV Coalition Support Community connects patients, families, friends and caregivers for support and inspiration. The National Cervical Cancer and HPV Coalition Support Community is sponsored by the National Cervical Cancer and HPV Coalition in partnership with Inspire.