Surgery gone wrong...

I had surgery as a child because I "Had trouble peeing" (my mom is apparently ashamed or embarassed about it and won't give me any info, so I know very little about everything) and had some sorta urethra surgery when I was 4. Well they widened it too much and I had no control or feeling when I had to pee and would always have accidents whether in my pants or in my bed. My mom never took me back to the hospital to have the surgery fixed and instead just put me back in diapers from age 4 (when the surgery happened) until age 9 when I no longer lived with her. Not too much has changed with it and I still wear diapers too.

8 replies   

You should see a urologist. There is a new procedure where a substance is injected into the uretha kind of like botox. This works for some. It can be done in the office or outpatient.

I also think it is a good idea to go and see a urologist, try and find one that specialises in complicated urological problems. I had nerve damage to my ureathra, and after changing doctors after numerous surgeries, had a urinary implant for my incontinence, and it has changed my life. Good luck.

I have had a hell of a time getting ahold of any info about my surgery. I recently found out that my records were found. I am going to be sent a release form sometime soon, bring it to my medical doctors appointment and they'll have the forms in my records faxed to the office and make me copies so I have them for myself. I also got an appointment to see a femal urologist (I don't feel comfortable with a male touching me) on October 26th to try and figure out what the hell happened to me (since my mom doesn't seem to care and just like when I was a child I'll have to do it myself) so I know. I will also show her (the urologist) the records too. I hope all goes well for me down the line.

I am glad you are going to a urologist, and hopefully she can help sort it all out. Make sure you take a copy of your medical history for the urologist to keep in your file, this info will help her a lot .I have urinary incontinence from nerve damage in my lower back, and after a lot of different surgeries and finding a good urologist that specialises in problems, who has helped me a great deal, I have a urinary implant, which keeps me dry . ( I spent a fortune on incontinence pads etc over the years.) Keep in touch and let me know how things are going. Vicki from Aussie.

It's nice when I can find someone to relate to about this problem. So you were only incontinent as an adult? How was your childhood in terms of that? What kind of incontinence do/did you have? What absorbant products do you wear? Because of my mom refusing to get the surgery fixed and because she just kept diapering me, I never used a toilet until I was 9 years old. To me it was normal for a person to spend half their childhood wearing diapers. At this point in time whether I would need them or not, I still have always depended on diapers since #1. out of necessity, and #2. it was the only good memory I had from my childhood and I guess because it was mainly the only time my mom gave me attention (and the only good memory I have of gher too) since I was in diapers 24/7. My counselor tells me that that actually wasn't a good memory because her not getting the surgery fixed and continuing to diaper me was what he considers to be "abuse". Diapers I guess were also the only way I felt protected as a child, as my dad (amongst other people I lived with) abused me and my mom (as you can imagine) let abuse happen to me. Even today it feels basically the same while I have a diaper on. Only the sad part is that no woman there to change me nowadays.

My incontinence started after I had back surgery about 15yrs ago, so mine was caused by nerve damage, and my bladder could not hold the urine in my bladder, and this got severe over the last few years,and I wore lots of pads etc . I eventually found a good urologist who specialises in complicated problems. and I had a urinary Implant inserted and have had great success with it since, and I have had it in now for just over 2yrs. The implant I have in is an AMS 800 Artificial Sphinchter inserted, and this works like a plumbing system. Actually this is more commanly put in men after incontinence after prostate surgery, look it up on the web. (www. AMS800artificialurinarysphincter.com). You get very dependent on the Diapers and pads when you have our problems, and this gets very expensive over the years. I had no problems with my waterworks when I was a kid, and I think it was not fair that you did not get surgery when you were a kid. I really hope this urologist can do something for you, it will make you feel so much better about yourself. There are a lot of different types of surgery they do, so I hope one will help you. Keep in touch. Vicki.

Well first off, I don't want to go through another surgery to be honest with you. Second, the only place from what I gather that would do it is in Rochester,NY, far away from me and I'd have no ride anyhow. Third, it would be hard to live without diapers as they are an emotional thing with me, and I'd feel weird not wearing 1.

-Sean

I hope your urologist can help you, just wait and see what she says, hopefully you wont need surgery. I didn't like the thought of surgery either,but I had enough , it was affecting my life too much, ( and the cost of incontinence pads etc was rediculous) so I looked into what could help me, and thankfully for me it has helped me.

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