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"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Psychiatric symptoms in adisson's disease

Welcom
  • By Welcom · New reply April 14, 2014
  • Discussion in Addison's disease · 15 replies
  • Hi I've got Addison's disease, and I suffered a lot before the discovery of the disease, psychologically, very concerned, Terrible anxiety ،obsession, depression, is there from the experience? Is there ...

DHEA Replacement Dose for a woman?

KLRC
  • By KLRC · New reply April 14, 2014
  • Discussion in Addison's disease · 10 replies
  • Hi All, I recently had my DHEA tested and it is zero.Im wondering what many of the female community on this forum might use as a replacement dose? Any input would be appreciated.I suspect I will start ...

Low sodium after adrenalectomy for Conn's

MarieWG
  • By MarieWG · New reply April 14, 2014
  • Discussion in Hyperaldosteronism · 7 replies
  • Hi. Has anyone else had low sodium levels after unilateral adrenalectomy for Conn's ? I had hypertension for 15 years, hypokaelemia for 10, and these are now ok, bp on mild drug, but my sodium level is ...

Referral needed in Raleigh, NC area

Fifi586
  • By Fifi586 · New reply April 11, 2014
  • Discussion in Addison's disease · 5 replies
  • Hello, My 21 year old daughter was diagnosed with Addison's last year. Her original endocrinologist is affiliated with UNC, but his limited patient hours and the delays in obtaining timely responses from ...

Surgery Just Around the Corner

jalakara
  • By jalakara · New reply April 7, 2014
  • Journal · 2 replies
  • Haven't posted for a while. My surgery was scheduled for March 31st (they always tel you at the last minute). Had to postpone it because I had to fly to Yuma, Arizona and drive back with a car; 2125 miles ...

Hydrocortisone not working

Busylizzy115
  • By Busylizzy115 · New reply April 7, 2014
  • Discussion in Addison's disease · 15 replies
  • Help somebody. I just don't know. The hydrocortisone seems to be not working. I am so tired all the time, no matter how much sleep I get, I just don't seem to have any energy. I will sit down to watch ...

Hydrocortisone Absorption issues

Ohhdee
  • By Ohhdee · New reply April 6, 2014
  • Discussion in Addison's disease · 5 replies
  • Hi all, My son is almost 16 and has for the last 6 months(that we know of) we have several times had blood work show very low and sometimes zero cortisol levels, even when he is stress dosing. We have ...

What is the name of your doctor?

Carolann-a
  • By Carolann-a · New reply April 6, 2014
  • Discussion in Addison's disease · 7 replies
  • Have you found anywhere in the United States good doctor Help with Primary Addison's disease ...

Recommendation for Endocrinologist for Osteoporosis Philadelphia/Washington

brendaj
  • By brendaj · New reply April 4, 2014
  • Discussion in Open discussion · 2 replies
  • I am 62 with Osteoporosis and my endocrinologist has stopped practicing. Am in need of new doctor. I live in Harrisburg Pa but will travel to Philadelphia or Washington/ Baltimore area. I do not wish ...

digestive issues

KMJ
  • By KMJ · New reply April 4, 2014
  • Discussion in Addison's disease · 16 replies
  • I'm wondering how related my burping is to my addison's disease. I'm taking 10mg of hydrocortisone in the morning and 5 at 1:00 in the afternoon. I've always been taking my cortisone with my thyroid meds ...

AARP pushing people off Hydrocortisone

tedparker
  • By tedparker · New reply April 2, 2014
  • Discussion in Addison's disease · 14 replies
  • If you are on medicare and using AARP'S Medicare D benefit program, they treat Hydro-cortisone as a tier 3 medicine not eligible for coverage. I protested but was denied Medicare prescription coverage ...

trouble breathing

jeslats
  • By jeslats · New reply April 1, 2014
  • Discussion in Addison's disease · 19 replies
  • anyone else have shortness of breath while on steroids for addison's? I have anxiety and agraphobia which may be contributing to it but not sure ...

Do I have Adrenal Disease?

okydokysmokypoky
  • By okydokysmokypoky · New reply March 31, 2014
  • Discussion in Open discussion · 4 replies
  • I have been having what I can only describe as adrenal flushes ever since I entered Menopause. It's like a zap of adrenalin goes through my body and it can be brought on by the least little thing. it ...

Addison's Disease: Do things get more difficult as we age?

Mcw2014
  • By Mcw2014 · New reply March 30, 2014
  • Discussion in Addison's disease · 14 replies
  • I am 33 years old, diagnosed with AD a little over two years ago. Looking over the other threads I'm starting to get the impression that having Addison's gets more and more difficult as we age. I've read ...

Generic versus brand name cortisone

buzzsau12
  • By buzzsau12 · New reply March 29, 2014
  • Discussion in Addison's disease · 27 replies
  • Hi everyone! Just wondering if any of you have been on generic hydrocortisone and not felt as good as when on brand name cortisone such as Cortef. I have been having trouble lately not feeling as well ...

weight

smask
  • By smask · New reply March 29, 2014
  • Discussion in Addison's disease · 5 replies
  • I am desperate to lose weight as I feel it is hampering my chances of dealing with Addisons, epilepsy and Cushings.it makes me so miserable, I am keeping a happy face for my family who get worried when ...

Answers please Up dosing for exercise while on prednisone

KLRC
  • By KLRC · New reply March 27, 2014
  • Discussion in Addison's disease · 6 replies
  • Ok questions....I take prednisone.Im trying to figure out how much to up dose prior to exercise? And would you updose with HC or the prednisone? Today I rode a stationary bike 15 minutes and had to dose ...

AVS Tomorrow

jalakara
  • By jalakara · New reply March 25, 2014
  • Journal · 3 replies
  • The endocrinologist at 192/112 was too high. To be fair, that was a spike which I shouldn't have told her about.; more usual was 159/94 or 161/90, which is far too high anyway. She threatened that if ...

Secondary Addisons?

shrimpton
  • By shrimpton · New reply March 24, 2014
  • Discussion in Addison's disease · 3 replies
  • I had a pituitary tumor removed back in 1987 and since then I have been on replacement hormone therapy since then including hydrocortisone. Does this make me a secondary Addison's patient ...

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The National Adrenal Diseases Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the National Adrenal Diseases Foundation, an Inspire trusted partner.