National Adrenal Diseases Foundation Support Community

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AI and muscle aches

By NicDsmom · Posted yesterday at 9:51 pm
Discussion in Addison's disease · 0 replies
Hi all, my newly diagnosed 15 year old son has complained twice of muscle aches in both legs/shin, calve area and in both feet on different days. Blood tests showed slight elevations in blood sugar and ...

Tips for Adrenal Insufficiency - Addison's

By ssmillik · New reply yesterday at 1:53 pm
Discussion in Open discussion · 37 replies
I figured I'd start a post just for tips and suggestions. This is my first one: One way that I know I need more Florinef is if I start getting foot and toe cramps when I move my foot around. I started ...

Is there a Doctor in Texas?

By boldbohemian · New reply yesterday at 10:21 am
Discussion in Hyperaldosteronism · 5 replies
I am not satisfied with my Nephrologist's responses to my problems with hyperaldosteronism. When I said I had leg cramps, he said "some people have leg cramps." When I say I have to get up to pee at night ...

DHEA

By Betia · New reply yesterday at 10:11 am
Discussion in Addison's disease · 10 replies
Hello- I am recently diagnosed primary addisons and am wondering about DHEA. Does it help and at what dose? Thanks ...

Need Guidance

By NancyKV · New reply May 21, 2013
Journal · 1 reply
I'm new to Inspire and I'm a little confused. I've corresponded with some of the other members by giving my input. I'm not sure what I should write about in the journal entry section and the in other ...

Weight gain with adrenal disease

By adanstevie · New reply May 21, 2013
Discussion in Addison's disease · 14 replies
Ive always been 125-130 lbs and in the past year ive put on 11 pounds i havnt weighed this much since i was pregnant my dr has me on hydrocortizone. Has anyone struggled with his and knows how to lose ...

Deb

By zabarini · New reply May 20, 2013
Discussion in Open discussion · 2 replies
I am new here. It took three years to get a diagnosis, after I started growing a nice beard! I have Secondary AI, and am looking for help with the difference between a "flare" and a Crisis". I believe ...

Learner Driver Ahead

By Adlis · New reply May 19, 2013
Discussion in Addison's disease · 7 replies
I have Secondary Addisons's due to Pituitary Gland failure, and severe Adrenal Insufficiency (my diagnosis). We are at the moment at the early stages of treatment, with myself taking 50mg of Cortate in ...

Five million

By Brian · New reply May 18, 2013
Journal · 205 replies
Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Low GFR

By mk2211 · New reply May 17, 2013
Discussion in Addison's disease · 2 replies
My PCP has observed that my GFR and been moving downward since 2009 and is now at 46.. She suggested a nephrology consult. He had diagnosed me with Diabetes Insipidus and started me on Desmophressin 2x/day ...

Bone density

By oldchaz · New reply May 16, 2013
Discussion in Addison's disease · 7 replies
What do folks with AD do to protect their bones? Steriods are known to be calcium wasters ...

Endurance Athletes

By ChiArch · New reply May 15, 2013
Discussion in Addison's disease · 24 replies
I'd like to find out who else is leading an active lifestyle with Addison's. Before my diagnosis, I biked daily and ran regularly. Though I'm not back to where I was before, each day is easier and I'm ...

Adrenal Insufficiency causes, effects, treatment

By LilyAngel1 · New reply May 14, 2013
Discussion in Open discussion · 33 replies
After extremely stressful life events, moving, death in immediate family, job loss, chronic illness and stressful life situations such as 3 months worth of "Soot Puffback" inhalation and exposure that ...

Support group for IN

By TJ53 · New reply May 12, 2013
Discussion in Addison's disease · 2 replies
I heard there was a support group in Indiana but I have not been able to find out any information about them. Does anyone know anything about them ...

GYN & PCP in BOSTON?

By chelledee · New reply May 6, 2013
Discussion in Addison's disease · 1 reply
I was wondering if anyone has a good GYN and Primary Care Practicioner in Boston. I am in need for both. Thanks ...

A new Inspire report in collaboration with Stanford Medical School

By Brian · New reply May 5, 2013
Journal · 84 replies
As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

desparate in texas

By andee-shannon · New reply May 4, 2013
Discussion in Addison's disease · 6 replies
I need help and I am to weak to fight std. I have beenin 3ER3 primary care and four specialist and told everything from this is over my head it's psychiatric, you need to move to Dallas. I live in the ...

prednisolone vs prednisone vc cortef

By dennisy · New reply May 4, 2013
Discussion in Addison's disease · 17 replies
Greetings my doctor said try prednisolone 5mg in afternoon around 5pm. never found the right combinations of any meds =( HC always caused me problems and mainly high blood pressure and lasts only about ...

Loveless

By lindseycreasy · New reply May 2, 2013
Journal · 14 replies
Okay, so I don't want to complain but I'm just writing my feelings. I feel lonely and depressed. I don't like my dosability define me but I feel like it does. Having one foot makes me feel ugly. Like ...

Another Tip!

By saguarosharon · New reply May 1, 2013
Journal · 1 reply
Seems like most of us can't indulge in popcorn... I adore jelly beans, fruit snacks and gummy bears. Not only does it help with light nausea but tastes better than any medication. I recently discovered ...

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The National Adrenal Diseases Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the National Adrenal Diseases Foundation, an Inspire trusted partner.